Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

More (Silly?) Questions From A Newbie!
0

4 posts in this topic

Hi everyone,

So my bloodwork says celiac, awaiting endoscopy in next few weeks, so still eating gluten but trying to get my head around all things celiac in an attempt to be in some way prepared for going gluten free. My history is that celiac was detected after a food allergy screen due to 3 occasions of stomach pain. Other than that, no symptoms to speak of. Since blood tests, periods have stopped (malabsorption or low weight - not sure), I'm aware of bloating, always thought my memory and brain fog were just the way I am.... maybe now not so sure. Anyway, a few questions I need help with please;

1) Is amount of gluten eaten proportionate to the body's reaction? I.e. If I ate something with a trace of gluten, would my body react the same as eating a bowl of pasta? Please note I do not intend to do this... I'm just assuming it will happen by mistake!

2) How much MORE at risk am I of getting some kind of related cancer than a regular person?

3) Aside from bloating, which does not happen all the time, I do not really have many symptoms. How will I know if I've accidentally eaten gluten? Once going gluten-free, do you become more sensitive to it? Or will I just never know?

And in a case of really bad timing, I'm due to go back to my homeland of the UK for Easter with this new diagnosis. 4 weeks of living with friends and family who, as yet, don't know about this and I will have to not only try and explain what it is, why I've 'only just got it' and yet also educate at the same time. DREADING this. Feel like I may as well go back with 'freak' tattooed on my forehead. I don't know enough about it to answer their questions, I won't be able to eat what they make, I won't be able to dine in restaurants where we will be taken. I won't know where to get certain products and I certainly won't have my own toaster/ utensils/ pans to use at everyones houses. What do I do (apart from cry??!)

Thanks,

Jo xx

0

Share this post


Link to post
Share on other sites


Ads by Google:

1) Is amount of gluten eaten proportionate to the body's reaction? I.e. If I ate something with a trace of gluten, would my body react the same as eating a bowl of pasta? Please note I do not intend to do this... I'm just assuming it will happen by mistake!

For a lot of us a trace will make us just as sick. Reactions do differ for some folks though. I can't say how your body will react but it is better to be super strict at first to allow the antibodies to resolve

2) How much MORE at risk am I of getting some kind of related cancer than a regular person?

Once you have been on the diet and healed your chances of getting a celiac related cancer will be no greater than the non-celiac population.

3) Aside from bloating, which does not happen all the time, I do not really have many symptoms. How will I know if I've accidentally eaten gluten? Once going gluten-free, do you become more sensitive to it? Or will I just never know?

It is fairly common for us to have a more noticeable reaction once we have been gluten free. There are some who are not as sensitive but many times once you have been gluten free you will be able to notice a definate pattern to being glutened. Reactions can be delayed for a day or two as the antibodies can take some time to build up. Sometimes things that we might not think are related to gluten like headaches, rashes, difficulty with thinking (brain fog) fatigue may be come obviously related to gluten exposure.

1

Share this post


Link to post
Share on other sites

there are people on here from the UK. Maybe you could post a topic asking for where & what to get. If you don't mind, tell them what city so you can get more specific info.

You can get " toaster bags" that you put bread in. You could get gluten-free bread & toast it that way. I assume they use aluminum foil? You can use it to cook with. Line a pan, cover a potato, etc.

See if this link will work. They are called Toast It. Google that for the bags. I was able to find some at a specialty kitchen store & saved shipping.

http://www.gluten free.com/index.cfm?dsp=public.products.detail&keyID=74592&gdftrk=gdfV22677_a_7c1014_a_7c3797_a_7c74592

That didn't work. I googles " toaster bags for gluten free"

0

Share this post


Link to post
Share on other sites

Hi Jo,

I'd recommend reading around on this board as much as possible - it's the best source of information I've found.

I live in London so do message me if I can help at all with UK advice. Labelling for gluten is pretty good over here, especially supermarket own brands. A few places - Wetherspoons, La Tasca etc - label menus with gluten-free options.

I also carry around my own food kit - chopping board, knife, snacks etc - and make my own picnics if I don't know that I can rely on finding safe foods.

Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,423
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      The DGP IGG and TTG IGG versions of the celiac tests.  
    • Testing After Celiac Disease if IgA deficient
      I am also IgA deficient. My doc took more blood and looked at 2-3 other markers in the blood work , transglutinase, and 2 others. My biopsy showed blunted cilia in sm intestine, but my IgA was low. He suspected Celiac due to cilia so ordered other blood tests. I also presented atypically, burny stomach and reflux...and very little else.
    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined