Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Celiac Cause Lack Of Sleep?
0

20 posts in this topic

My blood test said that I have celiac, but my biopsy said I did not. I was tested because I have Hashimotos and I guess a lot of time you get both if you have one of the diseases? But I have kept eating gluten for like 2 years since that test. I have never been able to sleep through the night..never. If I sleep 3 hrs in a row I am amazed and so I was just wondering if gluten could be a factor

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes! I used to feel totally wired, like my head was plugged into an electrical outlet :o

0

Share this post


Link to post
Share on other sites

I've been gluten free for 10 days now, and I've not slept a full 7 hours since about day two of the diet. When my husband realizes I'm awake, normally around 2 or 3pm that I start tossing and turning, he puts his arm around me and says; "come let me help you". He thinks it'll calm me to be held, but I can't lie still for longer than a few moments. It's the weirdest thing. I've never had a problem with sleeping. I love it, and normally would try get around 8 hours minimum.

Good luck to you though, hope you get it sorted out!

0

Share this post


Link to post
Share on other sites

I could never sleep - NEVER! I had no problem falling asleep but I would always be up three to four hours later. I was on the highest possible dose of Lunesta for almost a year it got so bad but that really only put me to about six hours a night. I have been gluten free since Jan 2nd and I have not taken a Lunesta since about a wweek later. I have very few problems sleeping now. There have even been nights I slept for 11 - 12 hours!

0

Share this post


Link to post
Share on other sites

I've been gluten free for 10 days now, and I've not slept a full 7 hours since about day two of the diet. When my husband realizes I'm awake, normally around 2 or 3pm that I start tossing and turning, he puts his arm around me and says; "come let me help you". He thinks it'll calm me to be held, but I can't lie still for longer than a few moments. It's the weirdest thing. I've never had a problem with sleeping. I love it, and normally would try get around 8 hours minimum.

Good luck to you though, hope you get it sorted out!

Have you tried sublingual Vit-B supplements (especially B6) and magnesium supplements? If not, give them a try.

0

Share this post


Link to post
Share on other sites




I was a raging insomniac for years. Always felt like I was "wired for sound" tossing and turning. Since going gluten-free, I sleep a few hours and wake up still, but now, I can almost always get a few hours more. At one point, I could barely sleep 1 or 2 hours. It was horrible.Now, I manage 5-6.

I was always surprised by people who said gluten made them sleepy.... :huh:

I notice you said in your post "I tested positive for celiac, but have kept eating gluten for two years since the test"....may I ask.... WHY ON EARTH ARE YOU EATING GLUTEN IF YOU ARE A CELIAC?? :blink: !!!!!!!

0

Share this post


Link to post
Share on other sites

I notice you said in your post "I tested positive for celiac, but have kept eating gluten for two years since the test"....may I ask.... WHY ON EARTH ARE YOU EATING GLUTEN IF YOU ARE A CELIAC?? :blink: !!!!!!!

Uh, second this? A false positive on a Celiac blood test is astronomically rare to the point where I've yet to actually find documentation on it. But a negative biopsy isn't uncommon at all. Celiac damage can be patchy in the intestine.

It really sounds like you should have stopped eating gluten two years ago. Either get yourself retested or drop the gluten, pronto.

(And, yes, I was an insomniac before diagnosis too. I would wake up multiple times and just couldn't go back to sleep. I usually sleep fine now.)

0

Share this post


Link to post
Share on other sites

I find I have trouble sleeping whenever I've been glutened. Not when I'm gluten free. Though since being gluten-free, I believe my fitness levels are much lower than they once were. I used to do really well in athletics when I was young however that seemed to change as soon as I went gluten free :(

Strange... :rolleyes:

0

Share this post


Link to post
Share on other sites

My blood test said that I have celiac, but my biopsy said I did not. I was tested because I have Hashimotos and I guess a lot of time you get both if you have one of the diseases? But I have kept eating gluten for like 2 years since that test. I have never been able to sleep through the night..never. If I sleep 3 hrs in a row I am amazed and so I was just wondering if gluten could be a factor

When I was diagnosed with Hashimotos my Natropaths wife who also has Hashimotos, told me it was a good idea to stop eating gluten. Some of the research I have done shows that it can increase the thyroid antibodies. It makes my normally more hypothyroid change to hyperthyroid. When I stopped eating gluten about a year ago, I started sleeping much better, I could focus better and my hot flashed became much less frequent.

About 3 months into my gluten free diet, I intentionally glutened myself to see what would happen. Sure enough I woke up that night covered in sweat, had a couple pretty restless nights, and my thyroid was swollen for over a weak. From my personal experience it really made a huge difference to stop eating gluten. Getting a good nights sleep is so important for your bodies healing.

Best of luck to you.

0

Share this post


Link to post
Share on other sites

One of my first symptoms of being glutened is insomnia. Then I get a visit from depression. And apathy says hello.

I'm strictly gluten-free, and my sleep is so much better now. So are a number of other symptoms. I appreciate good sleep most of all. :D

0

Share this post


Link to post
Share on other sites

One of my first symptoms of being glutened is insomnia. Then I get a visit from depression. And apathy says hello.

I'm strictly gluten-free, and my sleep is so much better now. So are a number of other symptoms. I appreciate good sleep most of all. :D

Ha ha. I read your post outloud to my husband, we had good laugh, as that was my pattern to. Although along with the apathy I've had a bit of denial as well. Am sleeping loads better thankfully and have found some great resources: reading Wheat-Free, Worry Free, a book about living a gluten free life, and its been super helpful and have also found a health shop that is run by a woman with Celiac Disease. Yay for these wonderful small mercies!

0

Share this post


Link to post
Share on other sites

It's good to hear that so many other people have had problems with this. Before being diagnosed I'd have problems falling asleep, often waking up several times in the middle of the night. I tried melatonin, but it didn't work. I've always been the type of person to wake up early naturally, but I'm hoping that once I'm gluten-free for a while longer, I'll be able to at least sleep more deeply. Today is day #10, and I'm feeling so much better!

0

Share this post


Link to post
Share on other sites

I find when my iron levels are low, even though I am tired, I can't sleep - and since iron deficiency is common with having Celiac, it could be a part of the puzzle..?

0

Share this post


Link to post
Share on other sites

I haven't slept well in many years - I notice no difference since being diagnosed with celiac.

0

Share this post


Link to post
Share on other sites

I developed terrible insomnia (ie not sleeping for days) and now that I am gluten-free I have little trouble sleeping...

0

Share this post


Link to post
Share on other sites

This is fascinating! The first effect we noticed when we put our youngest daughter on a gluten free diet was that for the first time in her life she slept right through the night. She's nearly 9, and I'd more or less given up hope of ever having an unbroken night again. Right from the start the slightest noise would wake her up - now she sleeps like a log! Her restlessness seemed to be a combination of constant low level stomach pain and cramps in her legs - enough to give anyone nightmares! Interestingly, my mother (not diagnosed coeliac yet) also has similar problems and "restless legs" which she finds resolve when she goes gluten free.

0

Share this post


Link to post
Share on other sites

I'm so glad your daughter is sleeping well now, and I'm happy you found out while she's still young...you've saved her from a multitude of problems!

Yay mom!

0

Share this post


Link to post
Share on other sites

I am so glad to have found this forum. I've had chronic insomnia for years. Never connected it to celiac disease. But was having terrible digestive problems -- read that could be helped by going low carb. So...in going low carb, I quit eating grains. The indigestion has pretty much cleared up and some other pesky symptoms. I was having nights and days when my brain was so wired I could not sleep. Now while I still come wide awake after 3-4 hours, after a couple hours I'm able to go back to sleep so am getting about 6 hours sleep. Reading your posts on here, seems you're describing my sleep problems exactly. I'm looking forward to learning about celiac disease and perhap being able to sleep through the night.

0

Share this post


Link to post
Share on other sites

Hey, I have noticed that I am sleeping better now too. I am a newbie with Celiac. I tested positive about 2 weeks ago.

0

Share this post


Link to post
Share on other sites

Oh my...there is hope...there is hope!! :)B) B) :rolleyes:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,599
    • Total Posts
      918,313
  • Topics

  • Posts

    • Washing Dishes
      Gluten is a very sticky protein that cannot be removed easily. Non porous items can be washed safely and effectively, being very careful to throughly rinse, use a dedicated sponge/washcloth to wash. If washed by hand wash and rinse under hot running water not in a sink of water if you don't have a dedicated gluten free kitchen. My kitchen is totally gluten free and I still rinse under running water. I attempted to use the dishwasher for the first time yesterday and I feel like I've been glutened so I'm not sure if it's safe or not. There was no gluten containing dishes in it, but it's a rental house so God knows how the previous tenants used it and whether there may be any lingering gluten in it. I also have other issues that cause a lot of the same problems so I'm going to keep trying to use it for a few days and see if I continue to feel glutened or not. As far as counter tops, sinks etc, any non porous surfaces can be wiped clean, but it takes multiple wipe downs with multiple sponges. Thoroughly wipe down and rinse out the sink to rid it off any lose gluten particles. The same thing I did when first going gluten free. Only the kitchen I had then had laminated counter tops that were all scratched up. There is no getting gluten out of those kind of counter tops or cracks around the sink, etc. The ONLY way to possibly destroy/remove gluten from surfaces it's stuck in is to heat it above temperatures most things cannot tolerate and not all ovens can reach. You're looking at like 600°-700° F for a minimum of 30 min. So some stuff can be effectively cleaned in the self cleaning mode of an oven if it has one. Most cookware and utensils cannot tolerate those temperatures though and it's impossible to heat counters and other items to that temperature. Therefore being in a blended house is very risky if not done right. When I went gluten free everyone in my house went gluten free. Except the fish, you can't find gluten free fish food. My husband who shouldn't eat gluten anyway is gluten free and all our animals are on a grain free diet. Even my snake is gluten free since I breed my own feeder mice and feed them a gluten free organic diet. 
    • to biopsy or not?
      A small suggestion........for banana bread, try the King Arthur gluten free banana bread mix.  Yeah, I know......it's a mix but sometimes, time is short and a mix works well.  My husband and I were shocked at how good this is!  it rose up high and beautiful in the oven and has a really good banana flavor to it.  Really....give it a try.  It is so easy to make also! http://www.kingarthurflour.com/shop/items/gluten-free-banana-bread   The ATK cookbook is a keeper for every Celiac!
    • Oat Flour making me sick?
      Yup.....what she said!  In non-porous materials such as stainless steel or aluminum pans, a good washing is all you need to make the pan safe to use.
    • Hawaiian-style BBQ Shrimp (Gluten-Free)
      Mayonnaise is the key to this recipe, which delivers tasty, tangy, golden grilled shrimp. View the full article
    • Oat Flour making me sick?
      I wouldn't be afraid to use a stainless steel pot that other things had been cooked in AS LONG AS YOU WASH THEM VERY WELL before making her food.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,701
    • Most Online
      1,763

    Newest Member
    AbbieLee88
    Joined