Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does Celiac Cause Lack Of Sleep?
0

20 posts in this topic

My blood test said that I have celiac, but my biopsy said I did not. I was tested because I have Hashimotos and I guess a lot of time you get both if you have one of the diseases? But I have kept eating gluten for like 2 years since that test. I have never been able to sleep through the night..never. If I sleep 3 hrs in a row I am amazed and so I was just wondering if gluten could be a factor

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes! I used to feel totally wired, like my head was plugged into an electrical outlet :o

0

Share this post


Link to post
Share on other sites

I've been gluten free for 10 days now, and I've not slept a full 7 hours since about day two of the diet. When my husband realizes I'm awake, normally around 2 or 3pm that I start tossing and turning, he puts his arm around me and says; "come let me help you". He thinks it'll calm me to be held, but I can't lie still for longer than a few moments. It's the weirdest thing. I've never had a problem with sleeping. I love it, and normally would try get around 8 hours minimum.

Good luck to you though, hope you get it sorted out!

0

Share this post


Link to post
Share on other sites

I could never sleep - NEVER! I had no problem falling asleep but I would always be up three to four hours later. I was on the highest possible dose of Lunesta for almost a year it got so bad but that really only put me to about six hours a night. I have been gluten free since Jan 2nd and I have not taken a Lunesta since about a wweek later. I have very few problems sleeping now. There have even been nights I slept for 11 - 12 hours!

0

Share this post


Link to post
Share on other sites

I've been gluten free for 10 days now, and I've not slept a full 7 hours since about day two of the diet. When my husband realizes I'm awake, normally around 2 or 3pm that I start tossing and turning, he puts his arm around me and says; "come let me help you". He thinks it'll calm me to be held, but I can't lie still for longer than a few moments. It's the weirdest thing. I've never had a problem with sleeping. I love it, and normally would try get around 8 hours minimum.

Good luck to you though, hope you get it sorted out!

Have you tried sublingual Vit-B supplements (especially B6) and magnesium supplements? If not, give them a try.

0

Share this post


Link to post
Share on other sites




I was a raging insomniac for years. Always felt like I was "wired for sound" tossing and turning. Since going gluten-free, I sleep a few hours and wake up still, but now, I can almost always get a few hours more. At one point, I could barely sleep 1 or 2 hours. It was horrible.Now, I manage 5-6.

I was always surprised by people who said gluten made them sleepy.... :huh:

I notice you said in your post "I tested positive for celiac, but have kept eating gluten for two years since the test"....may I ask.... WHY ON EARTH ARE YOU EATING GLUTEN IF YOU ARE A CELIAC?? :blink: !!!!!!!

0

Share this post


Link to post
Share on other sites

I notice you said in your post "I tested positive for celiac, but have kept eating gluten for two years since the test"....may I ask.... WHY ON EARTH ARE YOU EATING GLUTEN IF YOU ARE A CELIAC?? :blink: !!!!!!!

Uh, second this? A false positive on a Celiac blood test is astronomically rare to the point where I've yet to actually find documentation on it. But a negative biopsy isn't uncommon at all. Celiac damage can be patchy in the intestine.

It really sounds like you should have stopped eating gluten two years ago. Either get yourself retested or drop the gluten, pronto.

(And, yes, I was an insomniac before diagnosis too. I would wake up multiple times and just couldn't go back to sleep. I usually sleep fine now.)

0

Share this post


Link to post
Share on other sites

I find I have trouble sleeping whenever I've been glutened. Not when I'm gluten free. Though since being gluten-free, I believe my fitness levels are much lower than they once were. I used to do really well in athletics when I was young however that seemed to change as soon as I went gluten free :(

Strange... :rolleyes:

0

Share this post


Link to post
Share on other sites

My blood test said that I have celiac, but my biopsy said I did not. I was tested because I have Hashimotos and I guess a lot of time you get both if you have one of the diseases? But I have kept eating gluten for like 2 years since that test. I have never been able to sleep through the night..never. If I sleep 3 hrs in a row I am amazed and so I was just wondering if gluten could be a factor

When I was diagnosed with Hashimotos my Natropaths wife who also has Hashimotos, told me it was a good idea to stop eating gluten. Some of the research I have done shows that it can increase the thyroid antibodies. It makes my normally more hypothyroid change to hyperthyroid. When I stopped eating gluten about a year ago, I started sleeping much better, I could focus better and my hot flashed became much less frequent.

About 3 months into my gluten free diet, I intentionally glutened myself to see what would happen. Sure enough I woke up that night covered in sweat, had a couple pretty restless nights, and my thyroid was swollen for over a weak. From my personal experience it really made a huge difference to stop eating gluten. Getting a good nights sleep is so important for your bodies healing.

Best of luck to you.

0

Share this post


Link to post
Share on other sites

One of my first symptoms of being glutened is insomnia. Then I get a visit from depression. And apathy says hello.

I'm strictly gluten-free, and my sleep is so much better now. So are a number of other symptoms. I appreciate good sleep most of all. :D

0

Share this post


Link to post
Share on other sites

One of my first symptoms of being glutened is insomnia. Then I get a visit from depression. And apathy says hello.

I'm strictly gluten-free, and my sleep is so much better now. So are a number of other symptoms. I appreciate good sleep most of all. :D

Ha ha. I read your post outloud to my husband, we had good laugh, as that was my pattern to. Although along with the apathy I've had a bit of denial as well. Am sleeping loads better thankfully and have found some great resources: reading Wheat-Free, Worry Free, a book about living a gluten free life, and its been super helpful and have also found a health shop that is run by a woman with Celiac Disease. Yay for these wonderful small mercies!

0

Share this post


Link to post
Share on other sites

It's good to hear that so many other people have had problems with this. Before being diagnosed I'd have problems falling asleep, often waking up several times in the middle of the night. I tried melatonin, but it didn't work. I've always been the type of person to wake up early naturally, but I'm hoping that once I'm gluten-free for a while longer, I'll be able to at least sleep more deeply. Today is day #10, and I'm feeling so much better!

0

Share this post


Link to post
Share on other sites

I find when my iron levels are low, even though I am tired, I can't sleep - and since iron deficiency is common with having Celiac, it could be a part of the puzzle..?

0

Share this post


Link to post
Share on other sites

I haven't slept well in many years - I notice no difference since being diagnosed with celiac.

0

Share this post


Link to post
Share on other sites

I developed terrible insomnia (ie not sleeping for days) and now that I am gluten-free I have little trouble sleeping...

0

Share this post


Link to post
Share on other sites

This is fascinating! The first effect we noticed when we put our youngest daughter on a gluten free diet was that for the first time in her life she slept right through the night. She's nearly 9, and I'd more or less given up hope of ever having an unbroken night again. Right from the start the slightest noise would wake her up - now she sleeps like a log! Her restlessness seemed to be a combination of constant low level stomach pain and cramps in her legs - enough to give anyone nightmares! Interestingly, my mother (not diagnosed coeliac yet) also has similar problems and "restless legs" which she finds resolve when she goes gluten free.

0

Share this post


Link to post
Share on other sites

I'm so glad your daughter is sleeping well now, and I'm happy you found out while she's still young...you've saved her from a multitude of problems!

Yay mom!

0

Share this post


Link to post
Share on other sites

I am so glad to have found this forum. I've had chronic insomnia for years. Never connected it to celiac disease. But was having terrible digestive problems -- read that could be helped by going low carb. So...in going low carb, I quit eating grains. The indigestion has pretty much cleared up and some other pesky symptoms. I was having nights and days when my brain was so wired I could not sleep. Now while I still come wide awake after 3-4 hours, after a couple hours I'm able to go back to sleep so am getting about 6 hours sleep. Reading your posts on here, seems you're describing my sleep problems exactly. I'm looking forward to learning about celiac disease and perhap being able to sleep through the night.

0

Share this post


Link to post
Share on other sites

Hey, I have noticed that I am sleeping better now too. I am a newbie with Celiac. I tested positive about 2 weeks ago.

0

Share this post


Link to post
Share on other sites

Oh my...there is hope...there is hope!! :)B) B) :rolleyes:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined