Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Staying Active/fit And Weight Loss After Going gluten-free?


JonnyD

Recommended Posts

JonnyD Rookie

Hi,

I recently learned that I have celiac and switched to a gluten-free diet two weeks ago. In the meantime, I'm continuing to work out (moderate running ~30min about 4 days per week [varies from 7-9 min/mile], stretching, and light lifting a couple days too). I've always been very active but have had more of a pudgy frame (thanks gluten). I'm in my late-30s/5'7" and began this journey at 165 lbs. Two weeks in, I'm already 8 lbs lighter and nowhere close to leveling out. A couple years ago, I actively watched my diet and was down to the low 150s. I'm not counting calories but am obviously well below my previous intake. I'm on track to drop below those numbers too. I'm not taking any supplements or anything like that.

Can anyone relate their experiences with continuing to exercise and weight loss after going gluten-free? How long until your weight leveled out? Any suggestions as my body goes through these changes? I'd appreciate your insights.

Thanks,

Jonny

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

I had to go strictly grain free when diagnosed and dropped weight very rapidly. Lost most of my body fat but was in bad shape due to the severity of gut damage. Tried to workout too soon relative to recovery and really couldn't tolerate it. Dropped forty pounds in a hurry and have been struggling for two plus years to gain muscle mass back. Slowly but surely have managed to gain about twenty pounds over that time after the initial loss. It's real easy to overwork and hinder my recovery. Still much damage but.. have never felt better in spite of that.

Link to comment
Share on other sites
jenthestrawberry Newbie

Can anyone relate their experiences with continuing to exercise and weight loss after going gluten-free? How long until your weight leveled out? Any suggestions as my body goes through these changes? I'd appreciate your insights.

I only found out I had Celiac a few months ago. Before that I had suspected some sort of wheat intolerance, but never went "entirely" gluten free. When someone with celiac disease eats gluten, it damages the intestinal villi. Fat absorption is compromised. When your body isn't absorbing fat through your food, it craves fat, and believes it's being starved. Your body shuts down its metabolism, and refuses to allow weight to leave your body.

For me, finally understanding this, made a huge difference in my life. Because I already had a calorie system, work-out, cardio, and weight training plan in place, once I *entirely* cut out the gluten, I started losing weight. I had a relatively high-muscle mass already, so once my body realized it wasn't being starved, my metabolism revved up higher than I ever thought it could be! It took me a few weeks to adjust to no-gluten without adding in other high-suger items or processed grains, but I finally found a balance.

From looking younger, to looking thinner, to seeming healthier, I get compliments all the time, and I'm down nearly 40 lbs. That's more weight than I've lost in the last 4 years of watching my calories and working-out!

It

Link to comment
Share on other sites
ciavyn Contributor

I'm gluten free for a year and a half, and have found it just as easy to put on weight as take it off! But standard exercise, watching what I eat, and being responsible about my health has ensured I stay the same size. I don't think you'll find any difficulties, outside of the possible inside damage that might slow you down, tough it doesn't appear to be doing that. So you might just be good to go!

Link to comment
Share on other sites
gibsonSG Newbie

I was lifting heavy and taking a ton of supplements when I got my diagnosis, and I ended up losing 20 pounds in the first two months as my doctor told me to eliminate diary and eggs in addition to grains while I started to heal. As my absorption started to increase however, I started to get my performance back and my weight leveled out about 1 year in once I dared to start playing with my diet again. Now I'm 2 years in, and though I'm still 10 pounds under where I started I'm pushing nearly the same weight as I was before and my endurance is way better than it has ever been. So hang in there, your body is working better than it ever has right now. Just be sure to listen to it and rest when you need to and push when you can. Worst case scenario to get fully dialed in I would guess at a year, but really six months should do it (mine only took so long because I made basically every single mistake possible along the way :D )

Link to comment
Share on other sites
NorthernElf Enthusiast

I'm a fitness instructor & avid exerciser - early 40's and gluten-free for 8 years. After going gluten-free I lost 5 pounds and my weight stays stable (I am at a good weight, losing weight at this point would be bad ! 5'5" and 122 and muscular...or so they tell me). I don't watch my weight BUT I eat pretty clean (unprocessed)....Ha ! I'm cheap, premade gluten-free food is expensive ! I teach mostly water stuff, lift, and run. This year I intend to run my first half in May. Celiac hasn't impacted my fitness long term - there was a time where I was a mess - bad virus changed my life, took the gluten out & recovered. But honestly, I had stomach issues all my life, just that wicked virus that knocked me down for a week (really knocked me down, ended up in the hospital)changed my life permanently...turned on the celiac gene I guess.

Anyway, fitness & celiac are not exclusive. I'm fitter now than ever...just watch out for the 'screw up days' and take those easy !

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    2. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    3. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

    4. - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

    5. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Random.user556
      Hello! I’m sorry in advance for the long post!   Over the past few months I’ve been having a lot of issues with my stomach and have recently been referred to a Gastroenterologist. I’ve had stomach pain and issues since I was a baby. I had bad constipation (still do) and couldn’t tolerate most formula as a baby. When I was around 8 I started experiencing a lot of lower abdominal cramping (just below the belly button) and ended up missing a fair amount of school because of this. It would start about 2 hours after eating breakfast and I’d have lower abdominal cramps and feel nauseous . After a visit to my family doctor it was brushed off as separation anxiety.. or as the doctor put it “I was just a kid who wanted to stay home from school”. This stomach pain persisted all through my elementary and high school years. In fact I still experience it to this day and I’m now 24. Along with this my doctor believes I have a form of disautonomia called POTS (Postural Orthostatic Tachycardia Syndrome). I frequently feel unwell and exhausted. I also experience Raynaud’s phenomena especially during the winter months or when I’m sick. I also can not tolerate heat for the life of me.. although I’m not entirely convinced my symptoms are from POTS. The last few years I’ve also started experiencing frequent chronic sinus infections up to 5 a year most of which I require antibiotics for… Up until two years ago I have never had allergies or sinus problems. Back to my stomach issues… The last year I have been experiencing lots of stomach bloating and discomfort especially at night.. this has led to a few nights of 3am vomiting.. my doctor tested me for H. Pylori which was negative as well as full work ups to test my kidneys, liver, pancreas, gallbladder.. all of which were normal. At this time he also started me on Rabeprazole 20mg twice daily which is a Proton pump inhibitor (PPI) … as he believes it could be GERD. The PPI has not helped at all and I have since been moved down to once daily which I wait for a referral to a Gastroenterologist for an endoscopy as well as an abdominal ultrasound to verify I have no gallstones.. The pain I feel in my abdomen feels very heavy right around my bellybutton and frequently is accompanied by nausea and occasionally I also experience sharp stabbing like pain left of my belly button. I began tracking my symptoms, what I’m eating and bowel habits on an app called “My IBS” which track’s symptoms and flags foods that could be potential triggers.. all of my flagged potential triggers seem to be gluten related foods like pasta and breads. I asked to be tested for Celiac as I have an uncle with it. My doctor only sent for TtG IGA.. no other tests. My results came back negative at “<0.5 U/ml” the reference range being “ <12 U/Ml”. I am aware that total IGA should of been ordered as well but my doctor is confident we have ruled out celiac so I guess I will have to wait for the Gastroenterologist for more testing.. The other red flag for me is I have a rash that shows on both my knees and recently I have developed a similar rash behind both of my ears, on my neck and into my scalp.. there is dozens of small red and skin coloured lesions that sort of? resemble pimples but have a “head” and don’t pop (yes, i know don’t pop your pimples!) they are also itchy and sore.. I have tried washing and scrubbing them with antibacterial soap and body wash to no avail as well as ensuring I rinse my neck thoroughly after a shower, keeping my neck dry, frequently changing pillowcases and even keeping my hair off my neck as much as possible … it doesn’t have any effect on it.  In your experience does this sound like I could be experiencing celiac? I’ve debated going gluten free to see if my symptoms persist or begin to clear up.. any suggestions or help is appreciated! 
×
×
  • Create New...