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Dairy


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5 replies to this topic

#1 kate1

 
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Posted 04 March 2011 - 04:31 PM

Since going gluten free 4 months ago I cut out dairy too as I felt it was bothering me.
I have tried reintroducing it several times but seem to feel ill after a couple of days of eating any.
I am at the moment not eating any.
When I saw the dietitian in January she seemed surprised that i was having problems and said it may be the lactose.....but I have tried dairy with the lactaid enzymes and its makes no difference.
I asked about casein and whey and she said that was mainly a childhood thing and couldn't see it happening now.
The thing is I don't really get the stomach or bowel issues with the dairy but awful aching in my body and feeling really unwell.It sometimes makes me feel out of breath too with a runny nose and congested.
maybe these are not normal symptoms of an intolerance to dairy.
maybe someone else can tell me what symptoms they have to dairy.
because she has said this to me I have held back from going to the docs to ask if there is a test for me to see if its the casein in dairy.
I had read that it can cause antibodies like gluten does .
can anyone give me any info on it or experiences.
I also have underactive thyroid and osteoporosis.
Obviously with the osteo it would benefit me to have some Dairy but I get calcium from other sources so not too worried about that but I do miss it really more than the wheat gluten thing really.
In England we get bread and pasta etc on prescription but have had to pick the bread that is gluten free wheat free and dairy free as I also seem to react to the codex wheat starch that is used in some foods even though it is the accepted level.
Any experiences on the dairy symptoms or tests for dairy you have had in later life would really help me.Thank you.

Diagnosed coeliac dec 2010 from bloodtests and biopsy.
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#2 mushroom

 
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Posted 04 March 2011 - 05:10 PM

I have not had any testing for lactose or casein except what my body tells me. I waited two years before trying lactose, and I was fine. Initially when I was lactose intolerant the Lactaid used to work for me, but later (I guess when I had done more damage to my gut) it no longer helped, and I had to eliminate the lactose altogether and wait until my gut healed. Now I can eat ice cream with the best of them :D I don't think that just over three months is a long enough time for you to have healed.
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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 hnybny91

 
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Posted 05 March 2011 - 02:58 AM

I too have read that in some celiacs that they react the same way to casein as they do to wheat / barley / rye.
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#4 Simona19

 
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Posted 05 March 2011 - 06:28 AM

HI!
I was intolerant to lactose for about 5 years prior my celiac diagnosis. The lactose free milk didn't do me any good. I reacted to it also. When my upper endoscopy came back with only Marsh1- beginning of the celiac disease, I imediately went gluten free. I didn't knew that I should eat gluten until all my test were done. I had my incomplete blood work for celiac done when I was gluten free. It came back "negative". After that I saw allergologist. I asked her to check for wheat and milk. She injected me with them. She didn't give me the pric test.
The wheat was negative, and milk reacted. I developed allergy to milk in the ADULTHOOD. Your nutritionist is wrong! It is possible. I'm the living proof of it.
I checked symptoms for the milk allergy. It incluted sinus problems and also water build up behind ears - I had both and always wondered why my medicine for dust mites allergy didn't work. I'm 8 months casein free and finaly I don't have to blow my nose every minute.
The spot where I had wheat injected became red after hour, and the irritation lasted for more than 24 hours. The result from that: 100% wheat intolerant, celiac disease?.
Month later I had the pric test for wheat. It was negative. I don't have wheat allergy. :)

With the pric test you can check any allergy. My allergologist had samples from things that I didn't even knew that people can have allergy to.

There are these tests to check for lactose intolerance that I know of:
1. the breathing test. You would have to drink 1 cup of some liquid and then you would bread to a small device every 20 minutes for about 2-3 hours. It will messure the concentration of gas comming from your mouth.
2. the blood test. You would have to drink milk, or something else (i don't know what) and the technitian would take your blood every hour. I think it's 4 times.
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#5 GlutenFreeManna

 
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Posted 05 March 2011 - 07:58 AM

Since going gluten free 4 months ago I cut out dairy too as I felt it was bothering me.
I have tried reintroducing it several times but seem to feel ill after a couple of days of eating any.
I am at the moment not eating any.
When I saw the dietitian in January she seemed surprised that i was having problems and said it may be the lactose.....but I have tried dairy with the lactaid enzymes and its makes no difference.
I asked about casein and whey and she said that was mainly a childhood thing and couldn't see it happening now.
The thing is I don't really get the stomach or bowel issues with the dairy but awful aching in my body and feeling really unwell.It sometimes makes me feel out of breath too with a runny nose and congested.
maybe these are not normal symptoms of an intolerance to dairy.
maybe someone else can tell me what symptoms they have to dairy.
because she has said this to me I have held back from going to the docs to ask if there is a test for me to see if its the casein in dairy.
I had read that it can cause antibodies like gluten does .
can anyone give me any info on it or experiences.
I also have underactive thyroid and osteoporosis.
Obviously with the osteo it would benefit me to have some Dairy but I get calcium from other sources so not too worried about that but I do miss it really more than the wheat gluten thing really.
In England we get bread and pasta etc on prescription but have had to pick the bread that is gluten free wheat free and dairy free as I also seem to react to the codex wheat starch that is used in some foods even though it is the accepted level.
Any experiences on the dairy symptoms or tests for dairy you have had in later life would really help me.Thank you.

Diagnosed coeliac dec 2010 from bloodtests and biopsy.


Hi, I had the same symptoms of runny nose/congestion/out of breath, etc when I reintroduced dairy after 6 months gluten free/dairy free. At first it was not very bothersome and I would take an allergy med sometimes so I could have some cheese. Then all of the sudden in Feb of this year I started having severe allergic reactions to dairy. My lips tingle and my tonuge swells up now if I eat it. I have had to cut it out completely again. I am waiting for an appointment to get tested for milk allergy and also get an epipen to carry for emergencies. When I posted about this in another thread many people here confirmed that allergies can get worse over time and can show up at anytime in life. My mom told me I had trouble with runny nose and congestion as a toddler when she gave me dairy. She cut it out of my diet for a while but gave it to me again when she thought I outgrew the allergy. They used to think that kids outgrew allergies but I think they are now finding that many people get the allergy back later in life or that it manifests itself in another way while "dormant". For me I had asthma all throughout my childhood and early adulthood while eating dairy. My asthma attacks had gotten more frequent and more severe up until i went gltuen free and dairy free. The asthma, runny nose and brethign problems came back with dairy. Your dietician is not up on the latest on food allergies if she/he thinks you can't develop them later on. IMO you need to find a new dietician, but I know that may not be possible with your health system in England. Not sure if you can get testing for milk allergies there, but if not you may just want to treat this as a milk allergy, know that it can get worse at anytime and stay dairy free.
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#6 kate1

 
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Posted 05 March 2011 - 02:34 PM

Thanks so much for all the replies.
I think maybe like mushroom says I need to give it longer and then maybe try again.
I do believe the dietician is maybe wrong as some of you say and I will find out more.
I know its something to do with the proteins in Dairy (as in cows milk) that we react to same as the protein in gluten.
I have reacted to egg white for years but not always since childhood again, it was after my second pregnancy and think it is the protein in the egg white that does it but with that I just throw up continually.That was an allergy that came on later in life.Funny how we seem to crave and eat all the stuff we react to till we cant eat it anymore lol.
Thanks again for all your answers....what a great site, done all my learning on here, not had any from the medical profession
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