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I Can't Stop Weeping...


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38 replies to this topic

#16 Wenmin

 
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Posted 05 March 2011 - 05:41 PM

When I found out that I had Celiac Disease in July 2008, I was SO relieved because of the horrible pains and problems gluten was causing me. I don't miss much that I can no longer have. I have found substitutes for most items. Yes, it is a problem to plan ahead, but my well being and mental attitude towards life is worth it. I know this is hard to comprehend at the momentm but hang in there it does get easier....

Anyoone know a good substitute for beignets, let me know.....

Wenmin
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#17 angelwingsmama

 
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Posted 05 March 2011 - 07:04 PM

<_< I am glad that I have found this forum. I have been so confused since I was told that I have Celiac DIsease. My Mom just passed away from Pancreatic Cancer in October and she had Celiac Disease for ten years. She was diagnosed in July of 2010 and was told she only had 4 months. That was the worst time of my life. I miss my Mom sooooo much. I wish she was here so we could go through this together.
My thing is that she lost lots of weight due to the Celiac Disease and I am the opposite. I have been told for years that I have Irritable Bowel Syndrom. I need to pay attention to what I eat. That was all I was told. Well it never went away then they did the Celiac Disease test and ah hah guess what. But I don't loose any weight at all I just keep gaining and loose a couple of pounds then gain right back. I was also told that I have swollen Lynph Nodes in my chest area just above my stomache. If I follow a Gluten Free Diet it controls the swelling.
Has anyone else had these symtems. I need some help trying to figure it all out. I am having alot of trouble sticking to this diet because I travel all the time for work so alot of the times I eat while I drive.
Thank you and sorry if it sounds like I am whinning.

Thank you that is a real good way to look at it. Poison it is.
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#18 cassP

 
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Posted 05 March 2011 - 07:42 PM

I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?

you hit it on the nail with "low maintenance"- THAT, and the inconvenience- is what i find difficult.. and the ADDITIONAL food intolerance i have- now has made me cry. taking the gluten out- and STILL having food put me in agonizing pain...

i feel for you- and what made all of this much easier for me (than for others including you)- is that ive been dieting my whole life- and specifically been "rehearsing" for this since about 1998/1999. off and on since then ive been about 95% wheat free... sometimes not eating a complex carb or anything with sugar for months.. so, it wasnt a huge life change for me.. but it's still difficult and tedious... making sure you dont get a speck of gluten-

it IS upsetting just how much you have to abstain from- all the sauces and gravies too, etc. etc.. soup, diner food... it just gets ridiculous... and even tho, it make come across as "old hat" for me- i sometimes get very sad missing the days when i was ONLY following Atkins/Bloodtype... it was much easier and CONVENIENT.

you're gonna be ok... you'll get more and more used to it- and you can always come here to let it all out
  • 2
1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#19 healinginprogress

 
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Posted 05 March 2011 - 09:38 PM

I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?


Ohmygoodness, YES!!! I honestly think there is a grieving process involved in giving up gluten, and/or whatever other food group you find out you're sensitive to, as well! There are times where I'm totally fine, but there are definitely a lot of times and moments where I'm horribly sad, overwhelmed, and/or incredibly jealous. The first week was definitely the most overwhelming, and it IS getting easier as far as knowing WHAT I can or can't eat, but the emotions are still up and down.

When you think about it, your world has really been turned upside down...I know that I never imagined that this was how things were gonna go for me. We have to let go of the way of life we used to lead. It's a big change, and big changes are scary.

Sometimes I curse gluten, shaking my fist in the air! HAHA, ok, now I'm just having some fun.

But seriously...give in to it. Take it one day at a time, you'll get it in no time. And coming here helps a lot!
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#20 Loey

 
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Posted 08 March 2011 - 05:34 AM

<_< I am glad that I have found this forum. I have been so confused since I was told that I have Celiac DIsease. My Mom just passed away from Pancreatic Cancer in October and she had Celiac Disease for ten years. She was diagnosed in July of 2010 and was told she only had 4 months. That was the worst time of my life. I miss my Mom sooooo much. I wish she was here so we could go through this together.
My thing is that she lost lots of weight due to the Celiac Disease and I am the opposite. I have been told for years that I have Irritable Bowel Syndrom. I need to pay attention to what I eat. That was all I was told. Well it never went away then they did the Celiac Disease test and ah hah guess what. But I don't loose any weight at all I just keep gaining and loose a couple of pounds then gain right back. I was also told that I have swollen Lynph Nodes in my chest area just above my stomache. If I follow a Gluten Free Diet it controls the swelling.
Has anyone else had these symtems. I need some help trying to figure it all out. I am having alot of trouble sticking to this diet because I travel all the time for work so alot of the times I eat while I drive.
Thank you and sorry if it sounds like I am whinning.



Don't ever apologize for whining. We're here to help each other in any way that we can. Feel free to PM me if you want to vent one-on-one.

Loey



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#21 Marie1976

 
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Posted 08 March 2011 - 07:52 AM

I am the worst dieter in the world. I am absolutely crushed by having to admit that I have to change my life and my habits. I LOVE being low maintenance. I know that I will feel better by receiving this diagnosis (it started with Dermatitis Herpetiformis (horrible skin rash) and has led to me needing to lead a gluten-free life, so I know that I will get some relief... but I just can't imagine how this is going to work. You all seem so matter-of-fact, and I am just downright annoyed and sad. Did anyone else just feel mad and sad and exhausted by this whole thing?


I'm right there with you. Gives me a headache just thinking about how inconvenient this is going to be.

I'm still eating gluten because I'm getting an endoscopy next month to get the "official" diagnosis; I REALLY don't want to restrict my diet unless I have to. (I am a vegan which already requires a lot of label reading, and avoiding most restaurants and being a general nuisance to my relatives, ha ha.)

I keep telling myself I should feel lucky that the treatment is "just" going gluten free and that it's not cancer or some equally horrible thing, but I can't help feeling bitter and sorry for myself. I feel like I've had enough bad stuff in my life (haven't we all), and I don't want to deal with this.

BUT -- I think I'll be glad for an official diagnosis so I'll at least know what's wrong with me and I can actually DO something about it.

Hang in there!
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#22 healinginprogress

 
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Posted 08 March 2011 - 09:23 AM

I keep telling myself I should feel lucky that the treatment is "just" going gluten free and that it's not cancer or some equally horrible thing, but I can't help feeling bitter and sorry for myself. I feel like I've had enough bad stuff in my life (haven't we all), and I don't want to deal with this.


AGREED!!!!
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#23 catsmeow

 
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Posted 08 March 2011 - 11:59 AM

I know just how you feel. I've been at this for a year in April and I am still angry. My family is tired of me calling them "tribe Wheaterites" in an joking/antagonistic manner. I thought it was time for me to particicipate in the support forum because I need it really bad. Your post and the replies made me cry cry cry.....I feel like I found my tribe, "the Gluten-free-darites" I'm so tired of being high maintenance!!!

This is part of an email I wrote to my sister on Sunday. Sunday, I was at my lowest point so far in this journey. She has Reumatoid Arthritis, so she understands, and we vent to each other.

By the way, I have a wheat allergy. It's hard to find other wheat allergy peeps, am I welcome here?

To my sister on Sunday:

I am very depressed today about my wheat allergy. I got glutened all week by Splenda. It use to be a safe food, but I think they must have changed their maltodextrin supplier to one that is not in the U.S, because the bag I opened last week has been breaking me out in hives and migraines all week. I thought it was the coffee, but I eliminated splenda first, just this morning and did not break out. So, raw sugar it is for me. Maltodextrin made outside the U.S. is not safe.

Then I had to be a pain in the butt at church with communion. They have you dip the bread into a large goblet of grape juice. It did not occur to them that the rice cracker dipped in the grape juice full of wheat crumbs was a problem. But they were so nice and rinsed out the cup and put fresh juice in it for me......while 20 people waiting in line.....once again, I was a pain in the butt.

Then I went to my weight loss meeting, where they were all sampling this wheat bread. but, Jessica's fiance' made them take the bread into the kitchen to try. He's a chef and somehow knew that I would get sick from it in the air. I didn't have to say anything. That was nice...however, I was a pain in the butt.

Then we went to a neighbor's BBQ. I had to ask about every single ingredient in every dish before I found something to eat.....The host had to ask people things like "what brand of mayo did you use in the potato salad?" Did you make the Spanish rice from scratch or did you use a box mix?"

Again....I was a pain in the butt.

And I still got sick. It happened at the BBQ with all the cakes, wheat products, beer and wine in the room. I get sick from wheat in the air. I have a migraine.

I need a support group. My family is soooo sick of hearing about the wheat allergy, and I'm tired of being a pain in the butt.

I'm angry about this wheat allergy. I'm so sensitive now that I can't even be in a room with wheat without breaking out in hives.

I learned that the reason I cannot handle fragrances is because they have wheat in them. The manufacturers do not have to declare it. I saw that on "The doctors", believe it or not. They said if you have a wheat allergy and can handle certain scents (me) chances are that they are wheat free, but most have wheat ingredients and therefore make me sick!!!!


Sigh........

I hope I can be a part of your group as I am still working on coping...........
  • 2
You've cat to be kitten me right meow

Wheat Allergy-April 2010
Gluten Intolerant-April 2010
Dairy/casien intolerant-Aug 2012
Lactose intolerant- Aug 2012
Soy Intolerant-November 2012
October 2012- I learned that I am 1/2 Irish with a strong family history of Gluten Intolerance/Celiacs. I will never know If I am Celiac because I will never eat gluten again in order to test postive, it's poison and I do not ever want to feel the way I felt before implementing the gluten free diet EVER again!!!

#24 love2travel

 
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Posted 08 March 2011 - 12:13 PM

I know just how you feel. I've been at this for a year in April and I am still angry. My family is tired of me calling them "tribe Wheaterites" in an joking/antagonistic manner. I thought it was time for me to particicipate in the support forum because I need it really bad. Your post and the replies made me cry cry cry.....I feel like I found my tribe, "the Gluten-free-darites"

This is part of an email I wrote to my sister on Sunday. Sunday, I was at my lowest point so far in this journey. She has Reumatoid Arthritis, so she understands, and we vent to each other.

By the way, I have a wheat allergy. It's hard to find other wheat allergy peeps, am I welcome here?

To my sister on Sunday:

I am very depressed today about my wheat allergy. I got glutened all week by Splenda. It use to be a safe food, but I think they must have changed their maltodextrin supplier to one that is not in the U.S, because the bag I opened last week has been breaking me out in hives and migraines all week. I thought it was the coffee, but I eliminated splenda first, just this morning and did not break out. So, raw sugar it is for me. Maltodextrin made outside the U.S. is not safe.

Then I had to be a pain in the ass at church with communion. They have you dip the bread into a large goblet of grape juice. It did not occur to them that the rice cracker dipped in the grape juice full of wheat crumbs was a problem. But they were so nice and rinsed out the cup and put fresh juice in it for me......while 20 people waiting in line.....once again, I was a pain in the ass.

Then I went to my weight loss meeting, where they were all sampling this wheat bread. but, Jessica's fiance' made them take the bread into the kitchen to try. He's a chef and somehow knew that I would get sick from it in the air. I didn't have to say anything. That was nice...however, I was a pain in the ass.

Then we went to a neighbor's BBQ. I had to ask about every single ingredient in every dish before I found something to eat.....The host had to ask people things like "what brand of mayo did you use in the potato salad?" Did you make the Spanish rice from scratch or did you use a box mix?"

Again....I was a pain in the ass.

And I still got sick. It happened at the BBQ with all the cakes, wheat products, beer and wine in the room. I get sick from wheat in the air. I have a migraine.

I need a support group. My family is soooo sick of hearing about the wheat allergy, and I'm tired of being a pain in the ass.

I'm angry about this wheat allergy. I'm so sensitive now that I can't even be in a room with wheat without breaking out in hives.

I learned that the reason I cannot handle fragrances is because they have wheat in them. The manufacturers do not have to declare it. I saw that on "The doctors", believe it or not. They said if you have a wheat allergy and can handle certain scents (me) chances are that they are wheat free, but most have wheat ingredients and therefor make me sick!!!!


Sigh........

I hope I can be a part of your group as I am still working on coping...........



Oh, I am SO sorry for all you are going through. At first it seems impossible and overwhelming and you definitely do go through a grieving phase. Emotions run high (speaking from experience). We understand what you are going through - we really do. Last week I had some corn tortilla chips after checking the ingredients and website. However, today I received an email from them in response to my email last week telling me that they apologize but the product DOES now contain gluten. I was being SO stringent! Thank God I do not get GI issues when glutened. However, as a silent celiac I have no clue when it happens which is very scary.

Unfortunately it can be far easier to just stay home and avoid potlucks, BBQs, restaurants and so on. But then you also have to have to live in order to have normalcy. At our church there are three of us with Celiac who go to the front to get our rice crackers for communion before the bread is passed around in the congregation so I am happy they are aware. BUT there are no gluten-free friendly restaurants in town at all.

I can relate to grilling people on ingredients they put into their food before I feel safe to eat it. I feel like a dork for having to do it but I have become more assertive! ;) It seems as though more people "get" other diseases such as diabetes.

So, I have been doing things that I enjoy, such as continuing to cook and eat very well at home. I'm actually having fun experimenting with all sorts of flour blends for yummy coconut cakes, cookies, pies, brownies, breads, English muffins, tortillas... Sure, some things SUCK but some actually taste remarkably good. Sometimes you need a treat. Unfortunately when I hear "treat" I think FOOD.

Keep hanging in there. Be kind to yourself! :) And WELCOME! You will find a lot of wisdom here. :D And don't forget - we UNDERSTAND.
  • 2
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#25 ciavyn

 
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Posted 08 March 2011 - 12:28 PM

It's interesting -- I saw your title, and I thought, oh, come on! It's not that bad. But then I reviewed the last year and a half that I've been gluten free, and I remember the days when I cried because I didn't know what to order at the restaurant I was driving to in order to meet some friends. And when I wasn't sure what to make for dinner because I'd tired of my tiny repertoire of food choices. And when I got (get) sick and feel like crap for three weeks in a row, with a few days of torturing relief, all because I wasn't careful -- or maybe I was, and it still screwed me up. All this to say: I promise, it gets better. It seems impossible now. Grief is a normal process of giving something up. It's easy for me to sound blase about it, because...well, I feel great most of the time, so it's worth it. But when you are still new, and aren't always feeling fabulous (I felt like crap my first six months and wondered what the point of all of this was), it's hard to see the light at the end of the proverbial tunnel. You have a great support group here, and look to those around you who struggle with similar issues -- perhaps not food issues, but others in your life struggle with illness. My BF has clinical depression. Another friend has ongoing mental and physical issues. I have several gluten-free folks I know now. And you'll find your recipes that rock your world, the restaurants who will be thrilled to be careful just for you, and the people in your life who will want to cook for you (carefully...very carefully) because they love you. Don't give up hope -- it's so worth it on the backside. :)
  • 2
Gluten free: Nov. 2009
Peanut and dairy free: Dec. 2009
Rediscovered dairy: March 2010 (in small quantities)
Peanuts added back: June 2010 (in small quantities)

#26 catsmeow

 
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Posted 08 March 2011 - 12:32 PM

I was laughing with tears rolling down my face when I read this line "sure, some things SUCK but some actually taste remarkably good" (I've been there)

Thank you for that! Thank you for the understanding and the welcome.

I feel like I've found my support group!!!

Yes, it sure is easier to stay home. I usually have a migraine well into Monday after being out in about on the weekend.

I'm going to ask my church if I can go first next communion before the wheat is dipped into the goblets. That's a very good idea!!

You have no Gluten free restaurants....(((hugs)))) I wish they were everywhere. We have one, and they also sell baked goods. It's delicious but high priced. However, can you put a price on not having to draw attention to yourself at a restaurant? It's nice to be invisible for a change.

I broke out in hives at Chili's because of the residual wheat on the table that wasn't cleaned well. Yep, they had to fuss and clean it good for me (I left that one out of the email to sister)

I went back and edited my post and changed all my asses to butts...LOL, because I realized I had "ass" in the same sentence as "church.....not cool....LOL....but you captured the original, which was raw emotion, so I'm OK with it....Ha Ha

It's funny, I was so happy to finally know what was wrong with me and to finally get well. i suffered for 10 years, with the last 3 being dibilitating. I love being well, and sometimes I forget that I use to be in bed sick all the time, and now I am a productive person again. I guess I could call this phase 2, the honeymoon of wellness is over, and the sad reality of this lifetime change has kicked in. I'm glad I found this forum. This is going to help so much....my peeps!
  • 1
You've cat to be kitten me right meow

Wheat Allergy-April 2010
Gluten Intolerant-April 2010
Dairy/casien intolerant-Aug 2012
Lactose intolerant- Aug 2012
Soy Intolerant-November 2012
October 2012- I learned that I am 1/2 Irish with a strong family history of Gluten Intolerance/Celiacs. I will never know If I am Celiac because I will never eat gluten again in order to test postive, it's poison and I do not ever want to feel the way I felt before implementing the gluten free diet EVER again!!!

#27 Loey

 
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Posted 08 March 2011 - 12:48 PM

I know just how you feel. I've been at this for a year in April and I am still angry. My family is tired of me calling them "tribe Wheaterites" in an joking/antagonistic manner. I thought it was time for me to particicipate in the support forum because I need it really bad. Your post and the replies made me cry cry cry.....I feel like I found my tribe, "the Gluten-free-darites" I'm so tired of being high maintenance!!!

This is part of an email I wrote to my sister on Sunday. Sunday, I was at my lowest point so far in this journey. She has Reumatoid Arthritis, so she understands, and we vent to each other.

By the way, I have a wheat allergy. It's hard to find other wheat allergy peeps, am I welcome here?

To my sister on Sunday:

I am very depressed today about my wheat allergy. I got glutened all week by Splenda. It use to be a safe food, but I think they must have changed their maltodextrin supplier to one that is not in the U.S, because the bag I opened last week has been breaking me out in hives and migraines all week. I thought it was the coffee, but I eliminated splenda first, just this morning and did not break out. So, raw sugar it is for me. Maltodextrin made outside the U.S. is not safe.

Then I had to be a pain in the butt at church with communion. They have you dip the bread into a large goblet of grape juice. It did not occur to them that the rice cracker dipped in the grape juice full of wheat crumbs was a problem. But they were so nice and rinsed out the cup and put fresh juice in it for me......while 20 people waiting in line.....once again, I was a pain in the butt.

Then I went to my weight loss meeting, where they were all sampling this wheat bread. but, Jessica's fiance' made them take the bread into the kitchen to try. He's a chef and somehow knew that I would get sick from it in the air. I didn't have to say anything. That was nice...however, I was a pain in the butt.

Then we went to a neighbor's BBQ. I had to ask about every single ingredient in every dish before I found something to eat.....The host had to ask people things like "what brand of mayo did you use in the potato salad?" Did you make the Spanish rice from scratch or did you use a box mix?"

Again....I was a pain in the butt.

And I still got sick. It happened at the BBQ with all the cakes, wheat products, beer and wine in the room. I get sick from wheat in the air. I have a migraine.

I need a support group. My family is soooo sick of hearing about the wheat allergy, and I'm tired of being a pain in the butt.

I'm angry about this wheat allergy. I'm so sensitive now that I can't even be in a room with wheat without breaking out in hives.

I learned that the reason I cannot handle fragrances is because they have wheat in them. The manufacturers do not have to declare it. I saw that on "The doctors", believe it or not. They said if you have a wheat allergy and can handle certain scents (me) chances are that they are wheat free, but most have wheat ingredients and therefore make me sick!!!!


Sigh........

I hope I can be a part of your group as I am still working on coping...........


You already ARE a part f our group and we'll be here for you!!!!

Loey Posted Image



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#28 c12

 
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Posted 08 March 2011 - 04:41 PM

I know that some people are really gung-ho into the gluten-free lifestyle. They get really into it and inspire their whole families to join in...

Unfortunately, that's NOT me. I honestly find the diet to be the most restrictive and annoying thing ever. I hate not being able to go into a restaurant and order whatever I want. I hate having to pay twice as much for snacks and breads when grocery shopping. And I hate having to be the difficult one that people have to make special meals for.

Surprisingly, I don't even miss normal food. I just hate the inconvenient, expensive, pain in the ass lifestyle. I hate having to be "special."

I do it because I have to, but I don't think I'll ever like it. I hope and pray that my future children won't have the disease. Nothing about it is fun. At least not to me.
  • 1

#29 love2travel

 
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Posted 08 March 2011 - 05:17 PM

I know that some people are really gung-ho into the gluten-free lifestyle. They get really into it and inspire their whole families to join in...

Unfortunately, that's NOT me. I honestly find the diet to be the most restrictive and annoying thing ever. I hate not being able to go into a restaurant and order whatever I want. I hate having to pay twice as much for snacks and breads when grocery shopping. And I hate having to be the difficult one that people have to make special meals for.

Surprisingly, I don't even miss normal food. I just hate the inconvenient, expensive, pain in the ass lifestyle. I hate having to be "special."

I do it because I have to, but I don't think I'll ever like it. I hope and pray that my future children won't have the disease. Nothing about it is fun. At least not to me.



I'm definitely not in the gung-ho category, either. Like you I miss the convenience. Food is my life in many ways as I teach cooking classes, test recipes for various magazines, and cater (or USED to cater). It SUCKS!!! I also hate being in the spotlight in a bad way. It is expensive and it seems unfair. If I had a choice I certainly would not be doing this, either, especially as I don't have the glutened symptoms. I do it because I have no choice. Stupid dumb positive biopsies! :angry:

Going to Paris this year will be interesting (my husband's AGM and spouses are invited). I want to go but this time will be so different as my first time there gluten-free. We'll be on a few bus tours (packed lunches) and going to the top restaurants in the city (will have to plan ahead for that, too). I was so looking forward to trying such and such but now never, ever can. :huh: We're also going to Italy and Croatia in 8 weeks which is tough. We used to travel for food but now that, too, is restricted. :( Going out and worrying about every morsel that goes into my mouth is my focus and I wish it weren't.

BUT I try not to allow myself think of anything beyond tomorrow as forever seems well, forever! Can't fathom living like this for the next 40 or 50 (whatever) years but am also hopeful things will improve drastically. And as I've mentioned elsewhere, I am making some really good gluten-free baking but it is not the same!

So, I honestly understand. It is a terrible, horrible, daunting, and frustrating stupid dumb disease. :angry:
  • 2
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#30 jo_marnes

 
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Posted 09 March 2011 - 03:23 AM

I'm so glad I've seen this thread - I too am just diagnosed... still eating gluten, endoscopy on 13th April. I think I spent 4 days depressed, tearful and down right bloody angry that this has happened to me. I've moved past that this week but only because I'm choosing not to deal with it and think about it too much - after all, I have a few more weeks of 'normal' eating before me... may as well make the most of it! I nearly burst in to tears when I took my kids to Subway the other day and realised I won't be able to eat it soon!

So far, it's not so much the diet that affects me, it's the thought of the social impact - not being able to eat out easily, having others struggle to cook for me etc.... I know I'll get used to it and one day everyone will understand. Just at the moment, I don't want to be different, I don't want to be a pain in the ass and I don't want to have people look at me like I'm a freak when I'm trying to explain. I don't want to have to take my own snacks to parties, take an 'emergency bag' to functions or struggle on my upcoming holiday. In fact, this whole celiac thing can just f*** right off to be honest!! ((Stamps foot like toddler having a tantrum))

Ok, back to my tub of ice cream that 'contains wheat' while I can.....
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