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Please Help! Do I Have Celiac Disease?
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I am now 20. I was diagnosed with IGA nephropothy (auto-immune kidney disease) about 5 years ago after finding blood in my urine. The doctor never did a biopsy and diagnosed me with this because of the IGA found in my blood. I had eaten 3 wendy's burgers and fries that day, then ran intensely while playing two entire basketball games in a tournament. I have been tested positive for IGA in my blood every time i have visited since then. I have also slowly devoloped redness on my face. In the past two years i have devoloped extreme anxiety and social phobias and my heart periodically goes crazy. I have had chronic sinus infections, chronic fatigue and a light rash on my deltoids. I stumbled upon this site and have been gluten-free for about two weeks. All my anxiety has completely gone away, i dont even feel shy which has never happened to me since i can remember. My sinus infection and my chronic fatigue has been perfect as well which has plagued me for 2 years now. I used to also get periodic hot flashes and haven't had one in two weeks, maybe these were a reaction to eating gluten??? The hotflashes were very embarrasing and noticible because the redness on my face is blotchy and becomes very red in contrast to the rest of my face, it looks like a weird sunburn. It is not very noticible now unless i am exercising. Do I have Celiac disease? If so will the redness go away as well? I have not heard of others devoloping redness, only an acne-type rash which is what i have on my deltoids. I have an appointment with an allergist in two weeks, will they be able to diagnose me. Also, i have been gluten free and right now i have exams and am afraid to eat gluten because i can't afford the brain fog i had before, I thought i was going to fail, but now i am back on track to pass. Won't they just test for IGA, which i have already been tested positive for? Also, will the test be negative because i will have been gluten free for four weeks by then? Any help would be appreciated, thank you.

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ddempse2,

An allergist would be able to run the blood work (which may indeed be negative since you have been gluten-free for a significant time), but for a "conventional" diagnosis you would need to see a gastroenterologist. You might also want to check out Enterolab, which offers a smple, non-invasive stool panel for celiac disease. If money is a concern (as it is for me right now), the single test for celiac disease-related antibodies costs $99 (plus shipping and handling, I think). It might be worth saving the money for, since you DO NOT have to be eating gluten to get accurate results!

Many of your symptoms sound so familiar to me: anxiety, "shyness," chronic nasal stuffiness, chronic fatigue, acne on the shoulders, facial redness (rosacea) all the time, and generalized blotchiness under stress. These have all improved dramatically since I went gluten-free (and casein-free as well, since I also react to dairy products) last Halloween.

My opinion is that since you seem to have isolated the (or at least a) cause of your ongoing troubles, stay gluten-free. At the very least, put off any gluten challenge (which I personally consider barbaric) until after your exams are over!

Good luck, and take care!

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Thank you very much for your reply, it was helpful. I will make an appointment with an astroenterologist for further diagnose.

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    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • DaVinci's Pizza has several gluten-free items great gluten-free pizza (well done suggested) and they don't have anything with gluten that goes in the fryer, so wing and fries are great all salad dressing made in house and gluten-free.  Owners mom has Celiac so they're very empathetic. Cheers. And enjoy. I eat there all the time and have NEVER had an issue. And if someone just touches bread then prepares my food its all over for me 6-8 hrs of reaction for me. Also Jimmy Johns @ 17th and Peachtree Street also great just tellm'to change glove and ask for the paper to be placed on the sandwich board before they make it. Also never had an issue but I have only had the Italian style lettuce wrap. 
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