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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Digestive Enzyme Supplement - Stomach Pain
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13 posts in this topic

Hi all. I'm new to the forums here. My wife was recently confirmed with gluten intolerance (based on results from Enterolab) and I have been researching what vitamins and supplements are beneficial for healing the gut / intestines (in addition to a gluten-free/CF diet).

As a result, my wife began taking a digestive eznyme supplement (Digest Gold from Enzymedica - defintiely gluten-free) and about 2 days after starting the enzymes she began having severe abdominal pain. She temporarily stopped taking the enzyme as the pain was too extreme. Has anyone encountered this side effect when initially taking enzymes? I did some research and read that this may be short term and could be due to the body getting acclimated to the enzymes. Also read that the body may be going through a form of detox as toxins are being flushed out.

Any experiences / information that anyone has related to this would be really helpful.

Thanks.

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Well, the product you mentioned has maltase, an enzyme which is often derived from barley. The company's website doesn't specify the source. I did try an enzyme product or two before I knew that just because it says gluten-free, doesn't mean it really is, and I had horrible experience with them. In my research, I read that the enzymes derived from microbes are more effective, as they can withstand the acidity of the stomach. So I've been using a product formulated with enzymes from microbial sources, and haven't had any trouble with them.

I even tried some products specifically designed for individuals having trouble with gluten, also with bad results. Turns out, even those products had barley enzymes. So you really need to know the sources of the enzymes.

Two products I'm aware of which are derived entirely from microbes are NOW Foods Digest Platinum, and one from Doctor's Best.

I don't know of any reason why the body would need to acclimate to digestive enzymes. That may be a myth, just as the idea of "breaking in" a new pair of shoes.

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Well, the product you mentioned has maltase, an enzyme which is often derived from barley. The company's website doesn't specify the source. I did try an enzyme product or two before I knew that just because it says gluten-free, doesn't mean it really is, and I had horrible experience with them. In my research, I read that the enzymes derived from microbes are more effective, as they can withstand the acidity of the stomach. So I've been using a product formulated with enzymes from microbial sources, and haven't had any trouble with them.

I even tried some products specifically designed for individuals having trouble with gluten, also with bad results. Turns out, even those products had barley enzymes. So you really need to know the sources of the enzymes.

Two products I'm aware of which are derived entirely from microbes are NOW Foods Digest Platinum, and one from Doctor's Best.

I don't know of any reason why the body would need to acclimate to digestive enzymes. That may be a myth, just as the idea of "breaking in" a new pair of shoes.

ARE YOU FREAKIN KIDDING ME?? :blink: I have been using DIGEST GOLD for 5 weeks because someone on here said it was gluten-free. I read their website completely. Their label specifically says NO GLUTEN...so, what are we supposed to believe?? SONUVA.... :blink::angry::o

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If pineapple is something that she likes that has a natural digestive enzyme in it. Perhaps a few pieces with each meal might help.

Pepto Bismal liquid, name brand might help with the stomach pain if it is still present.

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If pineapple is something that she likes that has a natural digestive enzyme in it. Perhaps a few pieces with each meal might help.

Pepto Bismal liquid, name brand might help with the stomach pain if it is still present.

Thanks for info. Her stomach is slowly improving but still in pain. We'll try the Pepto and pineapple (after she forgives me for getting her to take the enzyme).

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I suggest she stop the Digest Gold for a while and see if that clears up the problem. The thing is, we can be sensitive (food wise) to any ingredient/chemical. So the simplest thing is to eliminate any items with multiple ingredients and see what happens.

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ARE YOU FREAKIN KIDDING ME?? :blink: I have been using DIGEST GOLD for 5 weeks because someone on here said it was gluten-free. I read their website completely. Their label specifically says NO GLUTEN...so, what are we supposed to believe?? SONUVA.... :blink::angry::o

Yeah, labeling laws don't really fully cover it. As long as a product contains less than 20ppm, they can say it's gluten-free. But in this case, the company doesn't specify the source of the maltase. At least not that I could find. You'd have to contact them, and get a specific answer.

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Yeah, labeling laws don't really fully cover it. As long as a product contains less than 20ppm, they can say it's gluten-free. But in this case, the company doesn't specify the source of the maltase. At least not that I could find. You'd have to contact them, and get a specific answer.

I understand....Thanks for your thoughts! as I said in my other post, I just keep learning. One woman said she called the company and they said it's not from barley. Whom do you trust? my own gut (pun intended) :)

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Thanks for info. Her stomach is slowly improving but still in pain. We'll try the Pepto and pineapple (after she forgives me for getting her to take the enzyme).

May have been the enzymes or not. Maybe she is just still pretty raw and sensitive to anything. My gut is up and down (2 months gluten-free)...tell her to hang in there. Baby the tummy for now. Hope she feels better soon!

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Yeah, labeling laws don't really fully cover it. As long as a product contains less than 20ppm, they can say it's gluten-free. But in this case, the company doesn't specify the source of the maltase. At least not that I could find. You'd have to contact them, and get a specific answer.

And we have to keep in mind that the labeling laws only apply to food not to supplements or either OTC or script drugs. For those the allergens do not have to be listed.

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funny thing I've had this issue with strong stomach aches when I take digestive enzymes, I kinda thought it was a cleansing process as well, but the stomach pain was at

times unbearable. I've found that different products have different effects. I'm currently taking digestmore by Renew Life and 1 capsule literally is enough to have me in

in pain for several hours. FYI about 6 years ago when I was on a D.E regimen it was very effective in helping me reduce my weight by over 30lbs. Currently I'm 40-50

pounds overweight and as I said the pain seems a bit unbearable at times. I was hoping for some suggestions or solutions as well. I've tried others that don't effect me as dramatically,

and I wasn't sure if they were just not working or just not that strong. Would love to continue on a regimen but I don't think I have the time or tolerance for the pain associated.

Very interested in any additional knowledge or effect brands without the pain. thanks

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Well, the product you mentioned has maltase, an enzyme which is often derived from barley. The company's website doesn't specify the source. I did try an enzyme product or two before I knew that just because it says gluten-free, doesn't mean it really is, and I had horrible experience with them. In my research, I read that the enzymes derived from microbes are more effective, as they can withstand the acidity of the stomach. So I've been using a product formulated with enzymes from microbial sources, and haven't had any trouble with them.

I even tried some products specifically designed for individuals having trouble with gluten, also with bad results. Turns out, even those products had barley enzymes. So you really need to know the sources of the enzymes.

Two products I'm aware of which are derived entirely from microbes are NOW Foods Digest Platinum, and one from Doctor's Best.

I don't know of any reason why the body would need to acclimate to digestive enzymes. That may be a myth, just as the idea of "breaking in" a new pair of shoes.

Thanks for the information! I have been trying a "gluten free" enzyme and having trouble with it. Do you have suggestions on Vitamins?

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Thanks for info. Her stomach is slowly improving but still in pain. We'll try the Pepto and pineapple (after she forgives me for getting her to take the enzyme).

I agree with ravenwoodglass pineapple really helps me. Digestive enzymes also really bother my stomach. She can also try Bromelain which is a natural supplement that's derived from pineapples and is also supposed to help the body with inflammation as well, which is very common for people with Celiacs Disease and gluten intolerance. Hope she is feeling better.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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