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Celiac/gluten Intolerant And Salicylate Sensitivity


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18 replies to this topic

#1 Alison2

 
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Posted 08 March 2011 - 07:48 PM

Hi, I'm pretty new to the Forums, and something recently caught my eye -- the question of being celiac or gluten intolerant AND having a salicylate sensitivity. I've read some of the older posts, and I'd like to see if there are any current members who have these two issues.

I've been gluten-free for about two years, I think carefully, and although I felt better at first, I've been feeling pretty sick these past four months. I'm struggling with all foods causing reactions, except a small handful that are low sal. Both moderate and high sal foods cause problems (and maybe even some low sal?). I'm worried about getting the right nutrients on my limited diet, plus I'm completely bored by it.

My reactions include frequent migraine pain, constant fatigue, intermittent abdominal pain, bloating, brain sluggishness, joint pain, closed/sore/burning throat, itchy eyes and ears, swollen hands, ringing in my ears.

Do other people experience similar symptoms?
How do other people who have a sal sensitivity make sure that they are getting enough vitamins and minerals?
How do you get rid of symptoms when ALL fruits and vegetables have some level of salicylate in them?

Thanks in advance for sharing your experiences!

Alison
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#2 IrishHeart

 
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Posted 14 March 2011 - 08:53 AM

I have most of these symptoms too and am trying a no sal diet for 2 weeks.....I'll keep you posted.

It DOES limit the intake of a LOT of foods, so I am reluctant to do this for long.

I was using a TON of supplements, herbals, etc and I think that made it worse....

I am not sure if it is SA or just me--I am only gluten-free 2+ months, but since you have been gluten-free for so long, I am not sure....

YOLO was very helpful to me on here....perhaps she can help you?
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#3 a1956chill

 
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Posted 14 March 2011 - 01:52 PM

I am interested in finding out more about SA intolerance,

Obviously I am not going to be able to totally eliminate SA,, as you said it is in all fruits and veggies to some degree. I wonder if it a matter of finding what my daily limit / tolerance is??

The list of reactions you listed are very similar to mine,,, the "ringing in the ears " is what caught my attention most. I also have a white film on my tongue,,,I am still not sure wither that is due to Candidia or not (( seeing my doc this week))
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#4 IrishHeart

 
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Posted 14 March 2011 - 01:56 PM

I am interested in finding out more about SA intolerance,

Obviously I am not going to be able to totally eliminate SA,, as you said it is in all fruits and veggies to some degree. I wonder if it a matter of finding what my daily limit / tolerance is??


Hold on you guys, I'm going to find the link to the site that I found helpful....be right back...

Got it!

http://www.zipworld....lates_list.html
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#5 IrishHeart

 
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Posted 14 March 2011 - 02:07 PM

Chill,

I had a white film on my tongue too--and it BURNS...I do not have yeast (tested many times). the film is starting to disappear since I went gluten-free. I still have the burning mouth though.

Another member on here told me hers cleared up after a while being gluten-free and to hang in there. She did not mention having to eliminate SA foods.

I see you have been gluten-free for a while, though...hmm...it is puzzling.

I had awful head buzzing for a long time, but it is less now...

I cannot tolerate raw veggies. We tried juicing veggies and fruits for me--and it was like drinking battery acid.. and now, I am thinking I know why....SA content too high?? At the time, I was also taking a number of supplements--and they are HIGH in SA.

Aloe vera juice, peppermint tea, even pepto bismal?...which is supposed to calm the GI tract--??burned me like mad..so go figure.

Hope this helps. There are other such lists--just google away! :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#6 a1956chill

 
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Posted 14 March 2011 - 02:21 PM

Chill,

I had a white film on my tongue too--and it BURNS...I do not have yeast (tested many times). the film is starting to disappear since I went gluten-free. I still have the burning mouth though.

Another member on here told me hers cleared up after a while being gluten-free and to hang in there. She did not mention having to eliminate SA foods.

I see you have been gluten-free for a while, though...hmm...it is puzzling.

I had awful head buzzing for a long time, but it is less now...

I cannot tolerate raw veggies. We tried juicing veggies and fruits for me--and it was like drinking battery acid.. and now, I am thinking I know why....SA content too high?? At the time, I was also taking a number of supplements--and they are HIGH in SA.

Aloe vera juice, peppermint tea, even pepto bismal?...which is supposed to calm the GI tract--??burned me like mad..so go figure.

Hope this helps. There are other such lists--just google away! :)

I just recently developed the white film on my tongue, which is why I assumed it was Candidia ,,but now that I am reading more about SA and looking back over my food journals I am starting to wonder ,,, I will get tested for Candidia and in the meantime I will research SA intolerance


** I Did not eat very many fruits and I NEVER ate veggies before going gluten free,,, makes me wonder**
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#7 IrishHeart

 
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Posted 14 March 2011 - 02:22 PM

here's another one...
http://www.scdiet.or...cd1/scd055.html
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#8 IrishHeart

 
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Posted 14 March 2011 - 02:23 PM

This whole bizarreness makes me wonder...I have so many symptoms, I just cannot believe it sometimes...sigh
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 IrishHeart

 
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Posted 14 March 2011 - 02:29 PM

Geesh, chill...I just looked at your sig....you have eliminated a LOT of food groups...what the heck is left for you, hon???
You must be down to meats/fish/vegs/fruits?.

(I see you are nut free--those are high in SA)

gosh, I thought I had a limited food selection!
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#10 a1956chill

 
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Posted 14 March 2011 - 02:49 PM

Geesh, chill...I just looked at your sig....you have eliminated a LOT of food groups...what the heck is left for you, hon???
You must be down to meats/fish/vegs/fruits?.

(I see you are nut free--those are high in SA)

gosh, I thought I had a limited food selection!

pretty much meats,fruits and veggies and a little rice now and then,, I am hoping to be able to add some / most of them back after my gut has healed .
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#11 IrishHeart

 
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Posted 14 March 2011 - 03:15 PM

pretty much meats,fruits and veggies and a little rice now and then,, I am hoping to be able to add some / most of them back after my gut has healed .



Sounds like you're doing the "paleo diet" minus nuts plus rice, basically... :) good for you!

I wonder if I should be more strict. I tried that and felt extremely hungry and deprived. I do eat alternative grains and nuts, but then this possible SA thing arose...I have a "histamine" response going on and I am not sure what the heck is causing it.... I hope you figure out what's still giving you grief.

I am still playing detective, despite my food diary and an elimination diet last year....ah well, we press on!!
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#12 a1956chill

 
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Posted 14 March 2011 - 03:22 PM

Sounds like you're doing the "paleo diet" minus nuts plus rice, basically... :) good for you!

I wonder if I should be more strict. I tried that and felt extremely hungry and deprived. I do eat alternative grains and nuts, but then this possible SA thing arose...I have a "histamine" response going on and I am not sure what the heck is causing it.... I hope you figure out what's still giving you grief.

I am still playing detective, despite my food diary and an elimination diet last year....ah well, we press on!!

I also am still playing detective,, we do press on, at least we are not alone in this any more, we have people who understand. For me that makes all the difference in the world :)
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#13 IrishHeart

 
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Posted 14 March 2011 - 03:24 PM

I also am still playing detective,, we do press on, at least we are not alone in this any more, we have people who understand. For me that makes all the difference in the world :)



Amen to that , chill! :D :D :D I would be lost without this forum. I have been googling my symptoms for two years and it always landed right here!!
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#14 Looking for answers

 
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Posted 15 March 2011 - 02:49 PM

Recently I went to a GI who said if you are reacting to a lot of food you should be tested for SIBO (small intestinal bacteria overgrowth)...just another thing to read about and see if it may apply. Hope you find relief soon.
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2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)
2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life
2009 Low T3 thyroid hormone, muscle twitching and adrenal fatigue
2006- Elevated Speckled ANA. GI suggested Celiac. Started gluten-free diet, but sloppily
2005 - Thought I had wheat "allergy." Stopped eating bread, oats problem too
College years - Still vegan -sickest point in life. Every classic celiac symptom
Teenage years - Stomach pain prompted veganism -> BIG mistake!
Child - Awful gas, D, C. Chronic infections, appendix and tonsils removed

#15 Tyson Holly MD

 
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Posted 17 March 2011 - 07:53 AM

I had two small bowel aspirated while in the hospital. Both fine. It's an uneducated GI doctors go to diagnosis for celiac symptoms. The burning and white tongue are glossitis, which is well known in celiac. Make sure NOTHING is getting thru the diet. Maybe try allergy testing. It seems like you're still reacting. My tongue cleared up almost immediately and is one of my first clues when something slips through.
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