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What's With Doctors?
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Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

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Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

I once read on here that doctors get the equivalent of maybe one 30 minute lecture on celiac in med school if they get that at all. With all the other major illnesses (like heart disease, cancer, etc) they have to take entire courses. So the chance of getting a doctor that knows about celiac is slim. That's no excuse of course. I tend to think that if a doctor looks at your chart, sees celaic and doesn't have any clue what that is they should look it up for a refresher first. Is there any chance he was asking if you take vitamin supplements or something? I guess I would just be glad he was NOT my GI or primary doctor. :unsure:

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Reminds me of a joke. What do you call someone who finishes last in their class in medical school? Doctor :) In all seriousness sadly there are many out there who are uninformed about Celiac. I did actually have a pleasant experience the other day while eating out for my husband's b-day. Our waiter was wonderful and seemed to know so much about Celiac disease as I was thanking him for all of his help he said he is in nursing school and they just spent a week studying Celiac disease. Good to know someone is getting educated. :)

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Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

And this is exactly why it takes us so long to get a correct diagnosis.

I hope you took a few minutes to get him up to speed. Doctors are really busy and I doubt he'd take the time to look it up later.

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I just spent four days in a regional hospital here in Florida and the Dietary Department has NO CLUE what gluten is! They claimed to serve me a "gluten free diet", but the first breakfast offered 2 pieces of whole WHEAT toast, a box of Rice Crispies which lists the 4 ingredient as "malt flavoring", etc., etc. They just got angry with me and insisted that everything was gluten free. I asked to speak to the REGISTERED DIETICIAN and was told that she wasn't available on weekends! But she refused to talk with me on Monday, Tuesday, and Wednesday, too, while I continued to get gluten in most meals. The nurses were definitely on my side and the charge nurse raised hell with dietary, but that just made them mad at all of us. When I mentioned all this to my doctor, she said "The Dietary Department in this hospital is from another planet! Watch out!" So, I paid for the food they put in front of me and ate the gluten free food that my dear husband brought me. I will never go to that hospital again, and they will hear more from me!!!!

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I had to stay overnight in hospital a couple of months ago, when I told the nurses I couldn't eat gluten, they offered me All Bran or toast for breakfast. They genuinely had no idea and were tryig to help me.

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And while we're at it, what's with pharmacists? I wanted to find out if any of my Rx drugs had gluten and talked with the pharmacist at WalMart the other day. Told him I had Celiac and wanted it noted in his computer. He said "I've heard of Celiac, but what is it?" I gave him a 5 minute crash course.

Keep educatin' 'em, gang!

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I just spent four days in a regional hospital here in Florida and the Dietary Department has NO CLUE what gluten is! They claimed to serve me a "gluten free diet", but the first breakfast offered 2 pieces of whole WHEAT toast, a box of Rice Crispies which lists the 4 ingredient as "malt flavoring", etc., etc. They just got angry with me and insisted that everything was gluten free. I asked to speak to the REGISTERED DIETICIAN and was told that she wasn't available on weekends! But she refused to talk with me on Monday, Tuesday, and Wednesday, too, while I continued to get gluten in most meals. The nurses were definitely on my side and the charge nurse raised hell with dietary, but that just made them mad at all of us. When I mentioned all this to my doctor, she said "The Dietary Department in this hospital is from another planet! Watch out!" So, I paid for the food they put in front of me and ate the gluten free food that my dear husband brought me. I will never go to that hospital again, and they will hear more from me!!!!

You need to document this in a letter. Send them in separate envelopes addressed to: ( by title if you can't find a name). Chief Financial Officer, chief Executive Officer, Head of Nursing, legal Department, head of dietary, head of clinical dietician, chief of Staff, & your doctor. If you want, send them to every director of every hospital department - medical records, maintenance, housekeeping, radiology, lab, labor & delivery, etc. You will get the attention of at least one of these people. The others will send it to dietary or legal. You might send it to the head of Finance & the Billing Supervisor with a little note about wanting a $30 a day refund for the food you were medically unable to eat. Be sure to note right at the beginning of the letter the fact that serving you this food would make you very ill ( bold letters) If you know an attorney, even if they don't deal with malpractice, cc them in big print if they are willing ( this is what your BIL is finally good for).

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If you know an attorney, even if they don't deal with malpractice, cc them in big print if they are willing ( this is what your BIL is finally good for).

LOLOL LOLOLOLOL that made me choke on my tea! my *good* BIL is an electrician. the rest are not attorneys!!! thanx for a great laugh :D

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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