Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What's With Doctors?
0

9 posts in this topic

Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

I once read on here that doctors get the equivalent of maybe one 30 minute lecture on celiac in med school if they get that at all. With all the other major illnesses (like heart disease, cancer, etc) they have to take entire courses. So the chance of getting a doctor that knows about celiac is slim. That's no excuse of course. I tend to think that if a doctor looks at your chart, sees celaic and doesn't have any clue what that is they should look it up for a refresher first. Is there any chance he was asking if you take vitamin supplements or something? I guess I would just be glad he was NOT my GI or primary doctor. :unsure:

0

Share this post


Link to post
Share on other sites

Reminds me of a joke. What do you call someone who finishes last in their class in medical school? Doctor :) In all seriousness sadly there are many out there who are uninformed about Celiac. I did actually have a pleasant experience the other day while eating out for my husband's b-day. Our waiter was wonderful and seemed to know so much about Celiac disease as I was thanking him for all of his help he said he is in nursing school and they just spent a week studying Celiac disease. Good to know someone is getting educated. :)

2

Share this post


Link to post
Share on other sites

Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

And this is exactly why it takes us so long to get a correct diagnosis.

I hope you took a few minutes to get him up to speed. Doctors are really busy and I doubt he'd take the time to look it up later.

0

Share this post


Link to post
Share on other sites

I just spent four days in a regional hospital here in Florida and the Dietary Department has NO CLUE what gluten is! They claimed to serve me a "gluten free diet", but the first breakfast offered 2 pieces of whole WHEAT toast, a box of Rice Crispies which lists the 4 ingredient as "malt flavoring", etc., etc. They just got angry with me and insisted that everything was gluten free. I asked to speak to the REGISTERED DIETICIAN and was told that she wasn't available on weekends! But she refused to talk with me on Monday, Tuesday, and Wednesday, too, while I continued to get gluten in most meals. The nurses were definitely on my side and the charge nurse raised hell with dietary, but that just made them mad at all of us. When I mentioned all this to my doctor, she said "The Dietary Department in this hospital is from another planet! Watch out!" So, I paid for the food they put in front of me and ate the gluten free food that my dear husband brought me. I will never go to that hospital again, and they will hear more from me!!!!

0

Share this post


Link to post
Share on other sites




I had to stay overnight in hospital a couple of months ago, when I told the nurses I couldn't eat gluten, they offered me All Bran or toast for breakfast. They genuinely had no idea and were tryig to help me.

0

Share this post


Link to post
Share on other sites

And while we're at it, what's with pharmacists? I wanted to find out if any of my Rx drugs had gluten and talked with the pharmacist at WalMart the other day. Told him I had Celiac and wanted it noted in his computer. He said "I've heard of Celiac, but what is it?" I gave him a 5 minute crash course.

Keep educatin' 'em, gang!

0

Share this post


Link to post
Share on other sites

I just spent four days in a regional hospital here in Florida and the Dietary Department has NO CLUE what gluten is! They claimed to serve me a "gluten free diet", but the first breakfast offered 2 pieces of whole WHEAT toast, a box of Rice Crispies which lists the 4 ingredient as "malt flavoring", etc., etc. They just got angry with me and insisted that everything was gluten free. I asked to speak to the REGISTERED DIETICIAN and was told that she wasn't available on weekends! But she refused to talk with me on Monday, Tuesday, and Wednesday, too, while I continued to get gluten in most meals. The nurses were definitely on my side and the charge nurse raised hell with dietary, but that just made them mad at all of us. When I mentioned all this to my doctor, she said "The Dietary Department in this hospital is from another planet! Watch out!" So, I paid for the food they put in front of me and ate the gluten free food that my dear husband brought me. I will never go to that hospital again, and they will hear more from me!!!!

You need to document this in a letter. Send them in separate envelopes addressed to: ( by title if you can't find a name). Chief Financial Officer, chief Executive Officer, Head of Nursing, legal Department, head of dietary, head of clinical dietician, chief of Staff, & your doctor. If you want, send them to every director of every hospital department - medical records, maintenance, housekeeping, radiology, lab, labor & delivery, etc. You will get the attention of at least one of these people. The others will send it to dietary or legal. You might send it to the head of Finance & the Billing Supervisor with a little note about wanting a $30 a day refund for the food you were medically unable to eat. Be sure to note right at the beginning of the letter the fact that serving you this food would make you very ill ( bold letters) If you know an attorney, even if they don't deal with malpractice, cc them in big print if they are willing ( this is what your BIL is finally good for).

0

Share this post


Link to post
Share on other sites

If you know an attorney, even if they don't deal with malpractice, cc them in big print if they are willing ( this is what your BIL is finally good for).

LOLOL LOLOLOLOL that made me choke on my tea! my *good* BIL is an electrician. the rest are not attorneys!!! thanx for a great laugh :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,532
  • Topics

  • Posts

    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
    • So ok, I get the pain/bloating thing, but it still feels so crazy. But my god, I look 6 months preggers after dinner and 4 months the rest of the time. How long will this last?! I have not gained any weight but have to hide me belly now. I can hardly breath! Omg, that does take me back to pregnancy.  I had "acute marked focal duodenditis" a few weeks ago and an elevated DGP. the pain sometimes makes me seriously think I must be bleeding somewhere. It is actually worse then 3 weeks ago. Although many of the other glutening symptoms are finally vanishing. Even my mid and lower back is tender to touch. Sometimes it burns, aches or like someone is stabbing me in my side. My ribs hurt and everything is tender.  I am on protonix and fish oil. I have a prn for xanax which helps the pain (off market use for muscle relaxant).    I am fair skinned and notice a red under-the-skin discolored rash that comes and goes on my upper stomach. Sometimes it travels down one side. Not itchy. Almost like I can actually see the inflammation under my skin.  1) when will I stop looking knocked up?  2) Any other fair-skinned folks notice a purpleish-red rash on your bellies? It mostly goes away and comes back, which I tske to be a good sign. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined