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Tidal Wave Of Intolerance The Aftermath?
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Hey thur lovely people, A quick question.

from what I gather, the healing process can be long and brutal for some.

alright, all good and fine, BUT I've been dealing with damn near every intolerance there is since this whole ordeal.

I'm basically being told I'm just healing, Anyone else with this kind of healing process? super sensitive digestion?

would love to know this is more common and it does hopefully..subside.. no biggy if not, y'know chickens..great =P

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I felt this way after I'd been glutened, early on in the healing process. It took me a while to realize I react to everything (just the mere act of eating) in the days after I've been glutened. Basically, I was irritating the digestive tract which was already pretty irritated from the accidental gluten.

It also happened if I was getting low levels of cross-contamination repeatedly--I felt like I reacted to everything, really it was just that my intestines were constantly, mildly irritated, and any substance crossing through them made them more irritated.

In the end, I was only ever intolerant to onions, but at times when healing, it felt like I was intolerant of everything. So my advice is go through your gluten-free diet and recheck everything, especially for cross-contamination. When you start feeling like you can't eat anything, retrace your steps for a few days and see if there was a triggering point when you might have gotten some gluten.

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I felt this way after I'd been glutened, early on in the healing process. It took me a while to realize I react to everything (just the mere act of eating) in the days after I've been glutened. Basically, I was irritating the digestive tract which was already pretty irritated from the accidental gluten.

It also happened if I was getting low levels of cross-contamination repeatedly--I felt like I reacted to everything, really it was just that my intestines were constantly, mildly irritated, and any substance crossing through them made them more irritated.

In the end, I was only ever intolerant to onions, but at times when healing, it felt like I was intolerant of everything. So my advice is go through your gluten-free diet and recheck everything, especially for cross-contamination. When you start feeling like you can't eat anything, retrace your steps for a few days and see if there was a triggering point when you might have gotten some gluten.

THANKS! this helps immensely...I have been 100% gluten-free, yet I believe I was glutened at my sister's house, then at the dentist's office 2X in the past month and so, I keep feeling as if I am reacting to EVERYTHING...it's ridiculous. I start to feel a bit better and then,I have heartburn or stomach pain or C or D or a huge increase in the chronic burning neuropathy I have or BRAIN FOG/Exhaustion or insomnia...so I KNOW it's been a gluten dose or CC because these are my "tells". :rolleyes:

I know the healing process is long, but geez, I'd like to have a few good days strung together....It's only been 10 weeks. So I'll be patient, but it's been so long and I was getting discouraged....until I read THIS!!

:)

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Hey thur lovely people, A quick question.

from what I gather, the healing process can be long and brutal for some.

alright, all good and fine, BUT I've been dealing with damn near every intolerance there is since this whole ordeal.

I'm basically being told I'm just healing, Anyone else with this kind of healing process? super sensitive digestion?

would love to know this is more common and it does hopefully..subside.. no biggy if not, y'know chickens..great =P

Brutal it can be some days,,give your body the time and care it needs to heal

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I felt this way after I'd been glutened, early on in the healing process. It took me a while to realize I react to everything (just the mere act of eating) in the days after I've been glutened. Basically, I was irritating the digestive tract which was already pretty irritated from the accidental gluten.

It also happened if I was getting low levels of cross-contamination repeatedly--I felt like I reacted to everything, really it was just that my intestines were constantly, mildly irritated, and any substance crossing through them made them more irritated.

In the end, I was only ever intolerant to onions, but at times when healing, it felt like I was intolerant of everything. So my advice is go through your gluten-free diet and recheck everything, especially for cross-contamination. When you start feeling like you can't eat anything, retrace your steps for a few days and see if there was a triggering point when you might have gotten some gluten.

This is exactly how I've been feeling, too...like everything is poison, I react to everything! Yesterday I was feeling like I wasn't sure how much more I could take :( This gives me hope...also, I think it's time to get rid of the gluteny shampoo..it's worth a shot.

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This is exactly how I've been feeling, too...like everything is poison, I react to everything! Yesterday I was feeling like I wasn't sure how much more I could take :( This gives me hope...also, I think it's time to get rid of the gluteny shampoo..it's worth a shot.

Out with the gluteny shampoo!! LOL

I did early on ....and my hair spray too (both had hydrolyzed wheat protein) and my scalp stopped breaking out....

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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