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Glutening Myself Tonight


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12 replies to this topic

#1 NancyL

 
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Posted 10 March 2011 - 03:02 PM

I went to the OB today about my stomach pains, she was the last step in Dr's interested in if their specialty could be the cause. She's scheduling me for a hysterectomy in 3 weeks. Last time I had a laporoscopy done (for endometriosis), she'd noted that I had a lot of scar tissue adhering my uterus to my abdominal wall. This "may" account for the stomach pains that haven't yet been helped with gluten-free.

I'm definitely keeping gluten-free forever more as it has helped TREMENDOUSLY with the Big "D" which is almost now non-existent. BUT, a hysterectomy is a big step. A HUGE step and I want to be SURE that food isn't what is causing my stomach pain. I just recently have recovered from my latest stomach pain and I never get them continuous or back to back.

So tonight is the night. I figure I'm going to do it right and will be having GLUTEN, GREASY, Yummy Dominoes Pizza. If I get the stomach pain (appendix like pain) then I know it's food. If I don't get it (I know I'll get the Big D), then I know something else must be causing this and I'll go ahead with my hysterectomy. Not like I need those parts anymore anyway but I also don't want to have unnecessary major surgery.

So I'm going to bite the bullet (or in this case the pizza) and go for it. It's perfect timing, I don't need to go anywhere tomorrow (so Big D won't be that Big of a Deal), I've just recently had my stomach pain and I NEED to KNOW before I agree to the hysterectomy.. Either way, this will be my ONLY purposeful gluten meal. We've been trying to think all day of what the worst food I could have is and decided pizza was it.
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Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done
Gluten Free began 02/11/2011

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#2 eatmeat4good

 
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Posted 10 March 2011 - 03:35 PM

And then have some delicous cake for dessert!

And a buttery croissant before bed!

Hey! Ya gotta test it right?

Good luck, I hope you don't get too sick, but I hope you enjoy your pizza!
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Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#3 NancyL

 
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Posted 10 March 2011 - 03:37 PM

And then have some delicous cake for dessert!

And a buttery croissant before bed!

Hey! Ya gotta test it right?

Good luck, I hope you don't get too sick, but I hope you enjoy your pizza!



OOOOHhhhhhh CAKE!! COOOKIES!! I hadn't thought of THAT! LOL Yes!

I know I'll be sick tomorrow.... and I know I'll have MAJOR Big D but if I don't have stomach pain, then I have my answer. I am only doing this ONCE. I never want to put gluten anything in my mouth ever again! :P
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Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done
Gluten Free began 02/11/2011

#4 ravenwoodglass

 
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Posted 10 March 2011 - 03:46 PM

You haven't been gluten free for very long. If you are reluctant to have this surgery and it isn't a life or death matter like uterine cancer you could hold off for at least a couple of months and see if it resolves on the diet. If it doesn't then you could go ahead with the surgery. You could also ask her about doing another freeup of the adhesions. They do often grow back after a few years but it would give you some relief and allow you to keep your uterus.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 MsCurious

 
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Posted 10 March 2011 - 09:42 PM

Well, NancyL... I joined you in glutening myself tonight.... with PIZZA! It was soooo good going down, after 3 days of totally gluten-free. After talking with my regular doctor yet again, I may do the biopsy, and didn't want to get too far into the gluten-free thing. I read your post and laughed! What are the odds we'd do that on the same night. Its been about 4 hours and tummy hurts, heartburn started, and I now have a headache which I didn't have for 3 days.... that a rare thing for me... not to have a headache. Every little "mini test" is like this. I'm totally convinced its either celiac disease or NCGS. So once the biopsy is done.... there's no looking back! I hope you enjoyed your gluten party tonight! You'll be paying the piper tomorrow... right along with me! LOL :P
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~ MsCurious ~
"If you keep doing what you're doing... You'll keep getting what you're getting!"

tTg IgA IgG borderline 1/25/11 Posted Image
HLA DQ2.5 Positive 2/11/11
Biopsy 4/11/11
100% Lactose/Dairy Free 4/11/11
Gluten Free 4/14/11
Life is SO MUCH better gluten-free!

#6 NancyL

 
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Posted 11 March 2011 - 07:43 AM

Well, I ate the pizza and NO stomach pain (and yes, it was very tasty but I liked the gluten-free pizza from our local chain just as much) :P. Of course my other issue has returned this morning but I expected that. The most important aspect is that I have no "appendix" pain. I knew I'd had the pain on empty stomach's before and the pain didn't go away with a bm so somewhere inside me, I knew that part couldn't be intestinal but I had to try. Gastro it ain't.... Ba-bye to the female plumbing!


You haven't been gluten free for very long. If you are reluctant to have this surgery and it isn't a life or death matter like uterine cancer you could hold off for at least a couple of months and see if it resolves on the diet. If it doesn't then you could go ahead with the surgery. You could also ask her about doing another freeup of the adhesions. They do often grow back after a few years but it would give you some relief and allow you to keep your uterus.


Well Ravenwoodglass, that was darn wise advice and I should've followed it (and probably would have if I'd seen it before eating)! If I'm to have the surgery, I'd like to have it while school is still in though so I only have 1 child at home during the day while I recover. Waiting too long would incur more E.R. visits and they cost me about $200.00 out of pocket each. My ob didn't recommend going back in again to just repair it, she said we'd just have to keep doing this and since I'm done having kids (and no way to change my mind), I might as well do the hysterectomy. I just wanted to be as sure as I could be.
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Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done
Gluten Free began 02/11/2011

#7 NancyL

 
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Posted 11 March 2011 - 07:44 AM

And then have some delicous cake for dessert!

And a buttery croissant before bed!

Hey! Ya gotta test it right?

Good luck, I hope you don't get too sick, but I hope you enjoy your pizza!


I resisted the cookies.. lol I ended up snacking on some of my gluten-free cookies last night. It made me laugh to remember this post. :P
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Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done
Gluten Free began 02/11/2011

#8 NancyL

 
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Posted 11 March 2011 - 07:45 AM

Well, NancyL... I joined you in glutening myself tonight.... with PIZZA! It was soooo good going down, after 3 days of totally gluten-free. After talking with my regular doctor yet again, I may do the biopsy, and didn't want to get too far into the gluten-free thing. I read your post and laughed! What are the odds we'd do that on the same night. Its been about 4 hours and tummy hurts, heartburn started, and I now have a headache which I didn't have for 3 days.... that a rare thing for me... not to have a headache. Every little "mini test" is like this. I'm totally convinced its either celiac disease or NCGS. So once the biopsy is done.... there's no looking back! I hope you enjoyed your gluten party tonight! You'll be paying the piper tomorrow... right along with me! LOL :P


LOL, we're in synch. I hope you enjoyed your pizza and that you're not feeling too bad today. I have a headache myself today and of course the cramping and the Big D. :D I just hope it only lasts for a day or two this time.
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Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done
Gluten Free began 02/11/2011

#9 Jestgar

 
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Posted 11 March 2011 - 08:36 AM

Ba-bye to the female plumbing!

You'll be delighted when it's over. :)
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"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#10 jerseyangel

 
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Posted 11 March 2011 - 08:37 AM

You'll be delighted when it's over. :)

I agree :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#11 eatmeat4good

 
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Posted 11 March 2011 - 03:24 PM

NancyL-

I can NOT believe you ate gluten free cookies last night! :blink: :o

I think you like gluten free food more than anyone I know!

I woulda had a big fat piece of chocolate cake topped with a buttery croissant! :D

Glad I made you laugh though. ;)
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Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#12 MsCurious

 
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Posted 12 March 2011 - 06:06 PM

Hey NancyL, How did you do with your gluten party? :P I'm fairly miserable today... just as anticipated. :blink:
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~ MsCurious ~
"If you keep doing what you're doing... You'll keep getting what you're getting!"

tTg IgA IgG borderline 1/25/11 Posted Image
HLA DQ2.5 Positive 2/11/11
Biopsy 4/11/11
100% Lactose/Dairy Free 4/11/11
Gluten Free 4/14/11
Life is SO MUCH better gluten-free!

#13 love2travel

 
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Posted 12 March 2011 - 06:53 PM

When I went on my three-month gluten-free challenge I made a list of over 60 things to eat for one last time (which I did!), including:

pain du chocolat
English muffin
doughnut
tons of homemade fresh pasta
cannoli
Steak and Ale Pie
Chicken and Leek Pie
phyllo
puff pastry
bagel
pizza
tons of ciabatta bread, homemade sourdough croutons, crostini, etc.
sauces including kecap manis
miso
beef wellington
cream scones
all kinds of biscuits
blue cheese and so on...

What a pig! :P

I cannot imagine wanting a gluten-free snack when on gluten! But then I am asymptomatic. I had a blast enjoying all this delicious stuff and was so sad when I had to stop... :( But now that I've been into it for a month things are ok.
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.




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