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Skin Rashes
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Oh my gosh! I was just diagnosed with Celiac this past Friday and as I'm reading more and more about it, more and more things are starting to make sense. A while back, I kept getting this rash all over my neck. I never did figure out what it was or why I got it. I hadn't changed anything about anything so I just couldn't figure it out. But now I realize that it's because of this!

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Yep. When I first was diagnosed it was like a lightbulb went off in my head and I could look back at the past 10 years and think "THIS is why! Now it all makes sense!". It's a relief isn't it? It's terrible to have something wrong with your body and not know what it is.

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It really is a huge relief. I mean, it stinks to have something like this, but at the same time, it's great to finally know all the why's and what's that have been going around all my life. When I was 12, one day I woke up and had all these watery-looking bumps all over my right knee. I went to doctor and after doctor and no one could figure out what it was and no one could cure it. Just as suddenly as it had appeared, a few years later it was gone. Last year I was suffering from really bad muscle cramps in my legs and went from doctor to doctor, again no one could figure it out. My hair has been falling out like crazy for a while now, to the point where I have all these little bald patches around my face. Now that I look back at these things, I've noticed that when these things were happening, I was also having really bad stomach problems at the same time. It's like all the pieces of the puzzle finally fit now.

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Hi shortstuff2309,

It's so cool when it all falls into place like that isn't it? :D I know what you mean. When I figured out that I had celiacs I balled my eyes out. Not because I was sad that I had the disease, but because I was so relieved to finally know what was wrong with me and that I could "cure" it (manage it, and make myself well) simply by being gluten-free.

Now that we have more knowledge and information than our doctors we can go back and tell them what we have, and get them educated. Yeahhh!!! :D Maybe we can help save someone the agony we went through by not knowing for so many years what was wrong with us.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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