Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Skin Rashes
0

4 posts in this topic

Oh my gosh! I was just diagnosed with Celiac this past Friday and as I'm reading more and more about it, more and more things are starting to make sense. A while back, I kept getting this rash all over my neck. I never did figure out what it was or why I got it. I hadn't changed anything about anything so I just couldn't figure it out. But now I realize that it's because of this!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yep. When I first was diagnosed it was like a lightbulb went off in my head and I could look back at the past 10 years and think "THIS is why! Now it all makes sense!". It's a relief isn't it? It's terrible to have something wrong with your body and not know what it is.

0

Share this post


Link to post
Share on other sites

It really is a huge relief. I mean, it stinks to have something like this, but at the same time, it's great to finally know all the why's and what's that have been going around all my life. When I was 12, one day I woke up and had all these watery-looking bumps all over my right knee. I went to doctor and after doctor and no one could figure out what it was and no one could cure it. Just as suddenly as it had appeared, a few years later it was gone. Last year I was suffering from really bad muscle cramps in my legs and went from doctor to doctor, again no one could figure it out. My hair has been falling out like crazy for a while now, to the point where I have all these little bald patches around my face. Now that I look back at these things, I've noticed that when these things were happening, I was also having really bad stomach problems at the same time. It's like all the pieces of the puzzle finally fit now.

0

Share this post


Link to post
Share on other sites

Hi shortstuff2309,

It's so cool when it all falls into place like that isn't it? :D I know what you mean. When I figured out that I had celiacs I balled my eyes out. Not because I was sad that I had the disease, but because I was so relieved to finally know what was wrong with me and that I could "cure" it (manage it, and make myself well) simply by being gluten-free.

Now that we have more knowledge and information than our doctors we can go back and tell them what we have, and get them educated. Yeahhh!!! :D Maybe we can help save someone the agony we went through by not knowing for so many years what was wrong with us.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,647
    • Total Posts
      918,462
  • Topics

  • Posts

    • Positive Biopsy, Negative Blood Tests
      BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
    • Positive Biopsy, Negative Blood Tests
      I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged.  I see you joined in 2009. Why? Is that when your brother was diagnosed? IMHO you need to do a lot of research & find out just exactly what you're risking. 
    • Positive Biopsy, Negative Blood Tests
      What?  Be sure that next endoscopy tests you for lymphoma (cancer) as well!   Seriously.  You need to do some research as your knowledge of celiac disease is lacking.  Did you fail the entire celiac panel?  Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA?  You have a family history, a positive biopsy, what more do you need?  You do realize that this is not about just giving up gluten, don't you?  We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)? Ugh!   Endoscopy in 10 years?  Who would even wait 10 years?  This isn't colon cancer and polyps!   Are you talking about a colonoscopy?  Are you even sure you had an endoscopy?   Be sure you have your bones checked too.....and forget the breath.  You might not have any teeth and implants will be out since your bones will be compromised. Sorry, if I come on strong, but when I was diagnosed I had no tummy issues.  A few months later, my bones began breaking.  I was undiagnosed for a long time because of mis-informed doctors.  At least it was not stupidity on my part.   So, I urge you to research this disease more!  Hopefully you'll ward on another autoimmune disorder by remaining gluten free.  Find what celiac blood tests were actually taken!  Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister! Good luck!  
    • Really, Really Foul Breath Post-glutening?
      In addition to eating gluten-free, I attribute the following to knocking out my bad breath once and for all: 1. SmartMouth Activated Mouthwash (this is what really did it for me!) 2. Flonase Nasal Spray 3. Dr. Tung's Tongue Scraper 4. The obviously brushing and flossing twice daily (goes without saying).    
    • Positive Biopsy, Negative Blood Tests
      I went in for an endoscopy to find out if something from my stomach/intestine was causing my bad breath.  A biopsy during that procedure revealed that I had Celiac.  I thought it was strange since I ate pizza, pasta, and other bread/gluten items almost every day without issue, so I decided to confirm the biopsy result with a blood test. I took the blood test twice (once on a high- and once on a low-gluten diet) and it came back negative both times.  I just assumed someone at the earlier biopsy lab must have messed up my analysis or accidently mistaken someone else's biopsy for mine, but after reading this thread it seems like my initial biopsy might have been correct all along. My doctor suggested doing another endoscopy, but I didn't want to foot the bill for that.  Also, my older brother has Celiac which was confirmed by both a biopsy and blood test. Eating less gluten did seem to help a little with my bad breath, but SmartMouth Activated Mouthwash along with Flonase nasal spray and a Dr. Tung's tongue scrapper really did the trick to solve the bad breath issue. I'm just assuming I have Celiac and eating "gluten conscious" until my next endoscopy in about 10 years. If that biopsy comes back positive again, then I'll be strictly gluten-free.  I'm just glad I don't have many symptoms.      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,741
    • Most Online
      1,763

    Newest Member
    Roemill
    Joined