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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Considering Getting A Copper IUD
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I'm considering getting a Copper IUD put in. I've heard great things about them but I'd like to hear more stories from people before making my decision. Especially people that have had horrible cramping that may have gotten better after going gluten-free. Did you have problems with cramping return or?

At the 10 month mark being gluten-free and my cramps are nonexistent. I'd like to get off my Ortho but don't want to get pregnant.

Any insight is appreciated! :)

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I had the Mirena (not the copper IUD but the one that has hormones) for a year. I got a bunch of abdominal cramping with it, but only with orgasms. My periods were nonexistent and I didn't have menstrual cramping. The orgasm-related pain, however, was the reason I had it taken out. At that time, I didn't have any problems with gluten and my Celiac symptoms had yet to begin.

One of my friends has had Celiac since we were kids and she has also had the copper IUD for years and loves it. She has no problems from it.

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I have a copper IUD, and I love it! I've had it for 3 months, and my cramps did return again at the beginning, but they've disappeared. It's possible that it'll make your cramping worse, but a lot of people find that after the first few months it levels off to where you were at before. It affects everyone differently, so the only way to know for sure is to try it... if the cramps are awful, you can easily get it removed, which was a great reassurance for me! As someone who doesn't tolerate hormones, the copper IUD is so so so fabulous, and I highly recommend it :)

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Thanks for the feedback guys. Very helpful! :)

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I have had a copper iud for 2.5years and I love it. My period pains never changed, they have never been bad though, and they did't get heavier which is what all the doctors told me would happen. It is good to never have to remember a pill or suffer side-effects from hormones. If it doesn't work out for you, you can just have it removed.

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I have had my copper IUD for 3 years, and I love it as well! It was a bit uncomfortable at first, but have had no problems or cramping at all since then. I got it before my Gluten Intolerance reared its ugly head, so Im not sure the difference it made, if any. I highly recommend it as it doesn't have hormones, and you don't have to think about birth control at all. Good luck!

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I also had a mirena IUD and also had horrible cramping after orgasms. I also had severe cramping once when the IUD shifted inside my body randomly. I got it taken out the next day. It scared me to think that this tiny thing could puncture my internal organs or uterine wall. I will never do anything like that again. Or use synthetic hormones. It makes me sick to think that a doctor was willing to put that thing inside me.

I was told that the copper IUD can significantly increase cramping, which was why I opted for the mirena.

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I have had both the mirena and the copper coil. I had to have the copper coil removed because I just bled constantly on it, it really didn't agree with me at all.

The nurse said that was really uncommon, although it can cause heavier periods.

I had no pain after initial cramping with both types of coil. That cramping was gone within a couple of weeks of having them fitted.

Good luck, and i hope it works for you. Take a couple of painkillers before you go to have it fitted, it helps although it's not as scary as you think it will be if that makes sense. It takes seconds :)

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Thank you everyone. I have decided to risk it. I don't see any other option at this point as I don't want hormones and will not use condoms etc. I don't like the thought of it but I like it better than being pregnant at this point. ;)

My Doc (who is also gluten competent btw!) showed me the whole thing and how it is done the other day. Helped to put me at ease a bit too.

Thanks again! :D

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Just had it put in yesterday. Cramping is about half as bad as my worst period cramps. It wasn't pleasant by any means but it wasn't the end of the world either. Over in 5 minutes.

I generally don't take my PAPs well and want to climb the ceiling when they are done. This is my first OB Gyn visit since going gluten free 11 months ago. My body is significantly less inflamed and on edge so that could contribute to the ease of the exam. It was a night and day difference there.

Also I took 800 mg of ibruprofen 30 minutes prior and my doc gave me a prescription for misoprostol 200 mcg. Double the normal dose (ask your doc for it if you are having a PAP and can't stand them. It made a big difference. :) ) so be sure to recommend that to your doc too.

I get better each passing hour with the cramping. I'll keep this thread updated for any who are interested as I go along.

Thanks again!

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      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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