Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Symptoms Went And Then Returned
0

6 posts in this topic

Hello all. I was diagnosed by biopsy in October 2010. I have been gluten free since then. After going gluten free I experienced significant vertigo and dizziness, that went too. Everything was going along marvellously and I developed a rather bad cold about a week ago. The cold seems to have gone, though I am now, again, extremely fatigued, feeling dizzy, headaches, slight vertigo, pretty much all the symptoms I had before diagnosis (and which continued for a couple of months).

Is it to be expected that these symptoms will return now and again until the gluten is entirely out of my system? I can't bear the thought of going back to where I was late last year; I couldn't even work then and I'm frightened that it's 'all come back'. I am pretty strict with my diet, but maybe some gluten accidentally got in. If it did and it was a small bit, would it make me feel this bad again?

Thank you for listening and I look forward to hearing from you.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello all. I was diagnosed by biopsy in October 2010. I have been gluten free since then. After going gluten free I experienced significant vertigo and dizziness, that went too. Everything was going along marvellously and I developed a rather bad cold about a week ago. The cold seems to have gone, though I am now, again, extremely fatigued, feeling dizzy, headaches, slight vertigo, pretty much all the symptoms I had before diagnosis (and which continued for a couple of months).

Is it to be expected that these symptoms will return now and again until the gluten is entirely out of my system? I can't bear the thought of going back to where I was late last year; I couldn't even work then and I'm frightened that it's 'all come back'. I am pretty strict with my diet, but maybe some gluten accidentally got in. If it did and it was a small bit, would it make me feel this bad again?

Thank you for listening and I look forward to hearing from you.

If some of your symptoms are coming back I think it could mean you might be getting a little gluten somewhere. Sounds like your body is trying to tell you something. We tend to get more sensitive to gluten when it's out of our diets for a while. You might be getting trace amounts and not know it. I would recheck all your vitamins (vitamins could have barley in them and still claim they are gluten free), medicines, and even processed gluten free foods can have trace amounts of gluten.

Also, if you haven't started one already, a food journal is really helpful. I would start documenting your reactions along with the foods your eating. What helped me is going on a wholefoods diet( completely natural gluten free foods -fresh meats, veggies and fruit and then when I felt better I would add an item to my diet once a week. I know it's a pain, but since sometimes we don't react right away and it's hard to tell where we are getting the gluten from. I now know I react the next day. You'll start to see a pattern.

Keep reading these forums. I don't think I would have got better if it wasn't for this forum. Everyone is so helpful and they know so much more then any of the doctors do. And just because something says it's gluten free doesn't always mean it's gluten free. I learned this the hard way. When calling companies always ask if they are made on the same lines that gluten products are made on. I can't eat any products that are made on shared lines. My reactions come right back. Hang in there!

I hope you are feeling better soon! :)

1

Share this post


Link to post
Share on other sites

Hi there, thanks so much for your reply. It's talked me off the ledge as it were! I think I got a bit 'cocky' and started feeling great and then buying loads of ready made meals that professed to be gluten free but were full of additives and preseratives. I felt my best when I was eating plain food.

Can you recommend vitamin companies that are completely trustworthy? I live in England, but I'm sure most people can ship overseas.

Thanks again, these links from the forum make me get a grip!

0

Share this post


Link to post
Share on other sites

Was there anything you took for the cold or ate or drank when you were sick that you weren't before? Also as the previous poster stated we can become more senstive to trace amounts after we have been gluten free for a while.

0

Share this post


Link to post
Share on other sites

Was there anything you took for the cold or ate or drank when you were sick that you weren't before? Also as the previous poster stated we can become more senstive to trace amounts after we have been gluten free for a while.

Hi there, no I just took paracetamol. Looking back, I was so excited about the ability to buy gluten free products, that I think I just stuffed myself with all the crisps, cakes, curries etc that said they were gluten free but were full of additives. I'm finding it a bit hard I guess to really adjust my eating lifestyle and I need to eat plain food. It's a huge learning curve, but I'm so determined to be well that I'll do it. Thank you for taking the time to reply.

0

Share this post


Link to post
Share on other sites




Hi there, thanks so much for your reply. It's talked me off the ledge as it were! I think I got a bit 'cocky' and started feeling great and then buying loads of ready made meals that professed to be gluten free but were full of additives and preseratives. I felt my best when I was eating plain food.

Can you recommend vitamin companies that are completely trustworthy? I live in England, but I'm sure most people can ship overseas.

Thanks again, these links from the forum make me get a grip!

Hi Katrina!

I used to be the biggest processing food queen before going gluten free, so it was a big adjustment for me to change my ways. ;) It really is a huge lifestyle change, but it's so worth it. :)

Here are a few vitamins that I'm taking. I'm doing really good on them.

GNC Ultra Women's Active Multi vitamin - I know you could buy these on line. I called the company a few months ago and asked about gluten, cross contamination and testing. They reassured me that they couldn't place a gluten free label on it if the product was made on shared lines and they do test for gluten. It made me feel better. :)

Vitafusion Gummy Vitamins - Vitamin C 250 (Target has this brand or you could buy them on-line) - This company has no gluten at all in their facility and that's a huge plus!

Vitafusion Gummy Vitamins - Calcium 500 with vitamin D 1,000

I also heard good things about Kirkman Labs. I haven't taken any yet, but I just ordered folic acid from them. They also don't have any gluten in their facility and they do test for gluten! Yay! :)

Good Luck and I hope you feel better soon! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined