Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

gluten-free Oat Reaction Possible? Also, Random Product ?'s.

alissar

Recommended Posts

alissar Contributor
alissar
Posted

I was wondering if any of you react to oats, even if they are certified gluten-free? I am still pretty new at this diet, but I feel great and then if I eat gluten-free oats (normally in cookies I get from a gluten-free bakery) I get my typical glutened symptoms, however, less severe than if I have wheat, rye, or barley. Maybe I am crazy or its something else I am eating. This diet has me so confused sometimes.

Also, does anyone know if any of these products contain gluten? I contacted all the companies and am waiting for responses but I thought I would ask here also.

1. Bert's Bees Aloe and Sheabutter lotion

2. Full Circle Free and Clear dish soap

3. Cascade dishwasher detergent

4. Softsoap hand soaps

4. Hershey's Bliss Chocolates

5. Dove Promises (milk chocolate, dark chocolate, caramel, almond)

6. Corned beef

7. Are all sodas gluten-free?

Also, is it possible to react to foods that claim they are gluten-free but then state they are tested to make sure they have below 20PPM of gluten (products like nut thins)?

Thanks everyone. I appreciate your input and help so much.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I'm not sure about your list.

About 10% of celiacs react to gluten free oats. I react to them worse than I react to wheat.

You are generally recommended to stay gluten free for six months or so to heal before trying oats.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

I also react to oats. Most corned beef that I have seen is safe. I have only found one soda that wasn't safe and that was a very pricey one years ago. Sorry I don't remember the name. I drink Pepsi products only and have never had an issue with those.

Link to comment
Share on other sites
cassP Contributor
cassP
Posted

I was wondering if any of you react to oats, even if they are certified gluten-free? I am still pretty new at this diet, but I feel great and then if I eat gluten-free oats (normally in cookies I get from a gluten-free bakery) I get my typical glutened symptoms, however, less severe than if I have wheat, rye, or barley. Maybe I am crazy or its something else I am eating. This diet has me so confused sometimes.

Also, does anyone know if any of these products contain gluten? I contacted all the companies and am waiting for responses but I thought I would ask here also.

1. Bert's Bees Aloe and Sheabutter lotion

2. Full Circle Free and Clear dish soap

3. Cascade dishwasher detergent

4. Softsoap hand soaps

4. Hershey's Bliss Chocolates

5. Dove Promises (milk chocolate, dark chocolate, caramel, almond)

6. Corned beef

7. Are all sodas gluten-free?

Also, is it possible to react to foods that claim they are gluten-free but then state they are tested to make sure they have below 20PPM of gluten (products like nut thins)?

Thanks everyone. I appreciate your input and help so much.

i dont react to certified gluten free oats. as far as dove- i think ive only had milk & dark- and i think ive been fine. i THINK most or all sodas are gluten-free...idk.. ive only had Diet coke with splenda, Publix brand diet cola with splenda, publix brand diet lemon lime soda- all fine

and YES- i HAVE reacted to SOME products at <20ppm- particularly the Blue Diamond Nut thins.. i didnt get any stomach pain- but the DH on my forearm started itching.

Link to comment
Share on other sites
alissar Contributor
alissar
  • Author
Posted

Thank you all for your posts. I appreciate your help so much. This diet is definitely tricky and its hard to get answers from my doctor (he doesn't know much about Celiac). Its so nice to get help from this forum. I think I will stop eating nut thins and gluten-free oats for awhile and see if my symptoms go away completely.

If a product says gluten-free on it, but then the label says "made on the same equipment as wheat" or "Processed in the same factory as wheat" do you stay away from it in general?

Thanks again everyone!

Link to comment
Share on other sites
cassP Contributor
cassP
Posted

Thank you all for your posts. I appreciate your help so much. This diet is definitely tricky and its hard to get answers from my doctor (he doesn't know much about Celiac). Its so nice to get help from this forum. I think I will stop eating nut thins and gluten-free oats for awhile and see if my symptoms go away completely.

If a product says gluten-free on it, but then the label says "made on the same equipment as wheat" or "Processed in the same factory as wheat" do you stay away from it in general?

Thanks again everyone!

generally, i avoid products that share the same equipment. and i usually do eat products made in the same facility.

that being said- there are times im sure- where i just have to experiment-> maybe it's on the same equipment- or maybe there's no gluten ingredients but there's also no special "gluten free" label... and i just have to try sometimes- because i cant be so afraid and limited.

and with "gluten free" products that say <20ppm like cereals & crackers etc-> again i have to have some variety- so it's trial and error for me. some products im totally fine with, and others like the nut thins didnt work out. ALSO- even if some of these products are fine for me- i know i should also keep them to a limit.. if i overdo it i could be in a little pain. i dont think it's all cross contamination though- i think some of us have additional thresholds with grains

sorry to blab so much :huh:

Link to comment
Share on other sites
T.H. Community Regular
T.H.
Posted

And just for a little more information on the oat front:

Open Original Shared Link

Yeah, it's wikipedia, but it still has some information that might be of use to you/your doctor. :)

If you DO have trouble with oats, even gluten free ones, then unfortunately you'll want to be more careful, now. Lots of calling involved. :-( Because the oats can also cause you issues with other gluten free products, since most of them don't consider gluten-free oats a gluten cc risk. Products certified gluten free by the CSA will not contain any oats and have anti-cc practices in place re: them. GFCO certified gluten free products only have to avoid regular oats. Most gluten free labeled products are also only avoiding regular oats

Some gluten free facilities also process gluten-free oats in them, such as Bob's Red Mill. I found out recently that Lundberg rice, for example, uses oats as their cover crop for their rice, so that's a cc hazard, too.

And meds have to be checked differently as well, because gluten free to them doesn't involve regular oats. Not that I expect to find a lot of oats in my meds, but I'm learning not to be surprised by anything these days, eh?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Count me in the 10% that react to gluten free oats. I also react to BRM products since they have oat cc. I don't know if my 6 year old does or not. I haven't given him any yet. When he was a baby though he would get a terrible rash from baby oatmeal and rice cereal even organic cereal without anything else added. We ended up feeding him barley cereal (way before I started having celiac symptoms) and he seemed to do alright on it. Ironic that he is gluten free now. We also do fine with nut thins.

Link to comment
Share on other sites
Emport Newbie
Emport
Posted

There was an article published in Gut last month that sheds some extra light onto the oats question -- as it turns out, different strains of oat have different levels of gluten in them. The full article is here: Open Original Shared Link.

And a quick note on corned beef: be careful! Lots of corned beef comes with a packet of pickling spices, and you'll want to check the label there. Also, many recipes call for some beer to be included in the pot while the meat cooks.

Link to comment
Share on other sites
Happyw5 Explorer
Happyw5
Posted

I thought root beer was glutened...Maybe it isn't,but I would check on it before you drink it...I am sure someone here would know for sure.

Link to comment
Share on other sites
Looking for answers Contributor
Looking for answers
Posted

I am definitely intolerant to Oat, even the gluten free oats. They cause the same reaction as gluten.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...