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Severe Depression/ Thyroid Issues Linked To Celiac Disease?


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15 replies to this topic

#1 keithceliac2010

 
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Posted 13 March 2011 - 04:40 PM

I have been gluten free now for 3 weeks and I am feeling wonderful, better than I have felt in decades. Aches and pains have diminished. Brain fog has lifted and I feel like a different person. I was diagnosed with hyper thyroid about 8 months ago(before I found out that I suffered from celiac), and am on thyroid medication. Additionally, I have suffered from severe chronic depression since I was 15 years old(I am now 45 years old), and I remain on several anti-depressant drugs prescribed by my psychiatrist. Since I have been gluten free(and lactose free) for the last 3 weeks, my depression has lifted and I am happy and stress free. It is nothing short of a miracle. My question is this: Is it possible that in the future I will be able to stop taking my thyroid medication as well as my anti-depressant medications?? Does anyone have any success stories where they found they no longer need anti-depressants and/or thyroid medication?
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#2 trents

 
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Posted 13 March 2011 - 05:37 PM

My guess would be there is a reasonably good chance you might be able to go off your antidepressants but not so good a chance with regard to the thyroid medication as with thyroid disease I think there is actual destruction of the orgain itself. I would not try either without medical supervision. Keep in mind that you may be in the honeymoon phase of celiac recovery. Many people have a symptomatic rebound after the first few weeks or months, even though they remain gluten free. Celiac disease is turning out to be more complex than we thought at one time and complete recovery is much less common when the diagnosis is made after people have reached their mid 30s.
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#3 eatmeat4good

 
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Posted 13 March 2011 - 09:33 PM

I was on a two anti-depressants and an anti-anxiety medication for about 5 years.
Sometimes they seemed to help but it never lasted.

I have been gluten free for 5 months and the first thing I told the Dr. was that I wanted off the anti-depressants. We started tapering down and then off.

I feel great and don't feel that heavy dark despair at all since the gluten is gone.

However, I do keep the Xanax for anxiety episodes because if I get accidentally glutened it all comes right back.

Might not work for everyone, but it worked for me, and maybe your Dr. will let you try tapering down to see what your response is. You can always go back up if the depression isn't manageable.

The thyroid medication? There is a woman on here who has been able to greatly decrease the need for thyroid medication. The thyroid needs to be checked regularly for the doc to know what you need. I would be prepared to stay on that one, but the levels of medicine might be adjusted the longer you are gluten free.

I loved your story. The same thing happened to me. Nothing short of a miracle here too! I'm 47 and only 5 months into my new reality. So glad you are feeling better and I hope it continues!
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Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#4 ravenwoodglass

 
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Posted 14 March 2011 - 03:58 AM

Antideppressants never really helped me at all, in fact they made me worse so I wasn't on them when I was diagnosed. For me the depression was one of the first things to lift and it has never returned except when I am glutened. There is some research that is now telling psychiatrists that if someone does not respond to antidepressants that they should be checked for celiac. Do talk to your doctor and see if you can taper off them. Do not stop taking them suddenly unless your doctor says you can do so as some have a risk of seizure or other withdrawl symptoms when stopped suddenly.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 Dixiebell

 
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Posted 14 March 2011 - 04:18 AM

No more anti-depressants here either. I made sure to take a B-complex and fish oil and was able to taper off of the meds. Make sure to ask your Dr. the best way to do this. My depression went away and then fatigue started going away and then the aches and pains. It is a wonderful feeling.
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#6 keithceliac2010

 
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Posted 14 March 2011 - 06:07 AM

Thank you to everyone who responded to my questions about thyroid and depression issues and medications. I will definitely speak with my healthcare providers before making a decision to get off my meds. This is kinda a catch 22 though, because I do not have faith in these doctors who have seen me for my various ailments including thyroid and depression. I have told countless doctors of my symptoms, chronic fatigue, irratable bowels, depression, frequent urination(6-7 times per night--down to only 1-2 times a nite since i am gluten-free) The reason I have lost faith in the medical community is that for 30 years, no doctor ever mentioned that I could have celiac disease. In fact, my loving wife, spent many sleepless nights researching my symptoms and ailments via the internet. She is the one who brought this celiac/gluten intolerance issue to light. Don't get me wrong. I am VERY HAPPY to have been given a new lease on life and will not harp on the past. It is just that at this point, after my recent discoveries, that I have very little faith in the medical community. Don't you think that after 30 years visiting doctors that one of them would have suggested gluten intolerance?? Enough ranting. I will consult my doctors before I make a decision on my medications. I thank all of you who responded so quickly to my post. You have all made me feel very welcome into the worldwide family of celiac sufferers, and I was elated this morning to open my post and see that you all cared enough to share your success stories with me. I have a smile on my face that will last the whole day!!!!!!
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#7 scottyg354

 
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Posted 14 March 2011 - 06:54 AM

No more anti-depressants here either. I made sure to take a B-complex and fish oil and was able to taper off of the meds. Make sure to ask your Dr. the best way to do this. My depression went away and then fatigue started going away and then the aches and pains. It is a wonderful feeling.


Anti Depressants are a nightmare. I am currently on 10mg of Lexapro which is the minimal dose. It pretty much ruined my life for six weeks. Made my anxiety 100 times worse, they seem to be mellowing me out now a little, but my anger issues seems to be coming back. Anxiety seems to be somewhat better though.

I am hypothyroid, not sure if I am Celiac or not. Hopefully, I will no soon enough. I do know that the majority of people with thyroid issues are usually stuck on meds for life. It's really not that big of a deal as the meds a relatively cheap. I think for a months supply of levo for me is like 6 bucks. Now the lexapro thats a different story. 30 of those bad boys runs me 100 bucks.
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#8 ravenwoodglass

 
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Posted 14 March 2011 - 07:03 AM

Anti Depressants are a nightmare. I am currently on 10mg of Lexapro which is the minimal dose. It pretty much ruined my life for six weeks. Made my anxiety 100 times worse, they seem to be mellowing me out now a little, but my anger issues seems to be coming back. Anxiety seems to be somewhat better though.

Did you let your doctor know about the side effects you were having? You mention anxiety, do you have more symptoms of anxiety than depression? If you do you may need an antianxiety med rather than an antidepressant. Doctors were convinced I was depressed for years, I wasn't I was celiac. Even after diagnosis they wanted me to take antidepressants for my anxiety symptoms. Finally a doctor listened and put me on an antianxiety med instead and it has made a world of difference. There is also the possiblity that once you have been gluten free for a bit and healed you won't need either.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#9 scottyg354

 
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Posted 14 March 2011 - 07:34 AM

Did you let your doctor know about the side effects you were having? You mention anxiety, do you have more symptoms of anxiety than depression? If you do you may need an antianxiety med rather than an antidepressant. Doctors were convinced I was depressed for years, I wasn't I was celiac. Even after diagnosis they wanted me to take antidepressants for my anxiety symptoms. Finally a doctor listened and put me on an antianxiety med instead and it has made a world of difference. There is also the possiblity that once you have been gluten free for a bit and healed you won't need either.


I did my research LExapro works for both anxiety and depression. Its working good now. He did warn me there would be some side effects while adjusting, they were brutal, but for the most part they cleared up in a few weeks.
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#10 GFinDC

 
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Posted 14 March 2011 - 03:48 PM

Any thing you ingest will have a tendency to be better absorbed after going gluten-free and healing your gut. So thyroid meds may need to be decreased after gluten-free.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#11 gary'sgirl

 
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Posted 14 March 2011 - 04:49 PM

My mom and sister were both able to go off their thyroid meds after the doctor told them they would have to be on them for life.
They think it was largely due to changing their eating habits - taking out refined sugars and grains for the most part.

So, i think there is a possibility of the body being able to heal it's self if given the right circumstances.
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#12 plumbago

 
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Posted 20 March 2011 - 05:46 AM

Hi,

I haven't read all the replies, yet, but as far as getting off anti-depressants, I can recommend a couple of web sites. For tapering off, google crazy meds. Or "crazy meds US" - something like that. It has details about all the different kinds of drugs that psychiatrists dole out. And as far as getting off them, of course their chemistries are all different, so it will be not be a one size fits all formula for tapering. You probably know all this. Then, I'd like to recommend some sites that deal with what I call mental distress usually without drugs. One is alt mentalities I think, and the other one is Beyond Meds. Beyond Meds I look at regularly and it is very very good.

Good luck whatever you decide to do.

Plumbago
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#13 plumbago

 
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Posted 20 March 2011 - 05:50 AM

Antideppressants never really helped me at all, in fact they made me worse so I wasn't on them when I was diagnosed. For me the depression was one of the first things to lift and it has never returned except when I am glutened. There is some research that is now telling psychiatrists that if someone does not respond to antidepressants that they should be checked for celiac. Do talk to your doctor and see if you can taper off them. Do not stop taking them suddenly unless your doctor says you can do so as some have a risk of seizure or other withdrawl symptoms when stopped suddenly.


I accompanied a family member to their psychiatrist's appointment one time, and mentioned getting the family member tested for celiac disease. Word for word, the psychiatrist (very respected by the way) said it's the most over-diagnosed disease.
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#14 scottyg354

 
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Posted 21 March 2011 - 05:43 AM

I accompanied a family member to their psychiatrist's appointment one time, and mentioned getting the family member tested for celiac disease. Word for word, the psychiatrist (very respected by the way) said it's the most over-diagnosed disease.



Over Diagnosed? By my understand it is one of the most under-diagnoses, along with hypothyroid.
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#15 ravenwoodglass

 
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Posted 21 March 2011 - 06:13 AM

I accompanied a family member to their psychiatrist's appointment one time, and mentioned getting the family member tested for celiac disease. Word for word, the psychiatrist (very respected by the way) said it's the most over-diagnosed disease.


It isn't over-diagnosed it is just that it is finally being realized how common it is and how much it impacts not just the gut. Recent studies are even showing that folks on psychotropic drugs who don't get relief from them should be tested for celiac as it can have serious brain impact even if gut symptoms are not present.
  • 1
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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