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Severe Depression/ Thyroid Issues Linked To Celiac Disease?
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I have been gluten free now for 3 weeks and I am feeling wonderful, better than I have felt in decades. Aches and pains have diminished. Brain fog has lifted and I feel like a different person. I was diagnosed with hyper thyroid about 8 months ago(before I found out that I suffered from celiac), and am on thyroid medication. Additionally, I have suffered from severe chronic depression since I was 15 years old(I am now 45 years old), and I remain on several anti-depressant drugs prescribed by my psychiatrist. Since I have been gluten free(and lactose free) for the last 3 weeks, my depression has lifted and I am happy and stress free. It is nothing short of a miracle. My question is this: Is it possible that in the future I will be able to stop taking my thyroid medication as well as my anti-depressant medications?? Does anyone have any success stories where they found they no longer need anti-depressants and/or thyroid medication?

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My guess would be there is a reasonably good chance you might be able to go off your antidepressants but not so good a chance with regard to the thyroid medication as with thyroid disease I think there is actual destruction of the orgain itself. I would not try either without medical supervision. Keep in mind that you may be in the honeymoon phase of celiac recovery. Many people have a symptomatic rebound after the first few weeks or months, even though they remain gluten free. Celiac disease is turning out to be more complex than we thought at one time and complete recovery is much less common when the diagnosis is made after people have reached their mid 30s.

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I was on a two anti-depressants and an anti-anxiety medication for about 5 years.

Sometimes they seemed to help but it never lasted.

I have been gluten free for 5 months and the first thing I told the Dr. was that I wanted off the anti-depressants. We started tapering down and then off.

I feel great and don't feel that heavy dark despair at all since the gluten is gone.

However, I do keep the Xanax for anxiety episodes because if I get accidentally glutened it all comes right back.

Might not work for everyone, but it worked for me, and maybe your Dr. will let you try tapering down to see what your response is. You can always go back up if the depression isn't manageable.

The thyroid medication? There is a woman on here who has been able to greatly decrease the need for thyroid medication. The thyroid needs to be checked regularly for the doc to know what you need. I would be prepared to stay on that one, but the levels of medicine might be adjusted the longer you are gluten free.

I loved your story. The same thing happened to me. Nothing short of a miracle here too! I'm 47 and only 5 months into my new reality. So glad you are feeling better and I hope it continues!

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Antideppressants never really helped me at all, in fact they made me worse so I wasn't on them when I was diagnosed. For me the depression was one of the first things to lift and it has never returned except when I am glutened. There is some research that is now telling psychiatrists that if someone does not respond to antidepressants that they should be checked for celiac. Do talk to your doctor and see if you can taper off them. Do not stop taking them suddenly unless your doctor says you can do so as some have a risk of seizure or other withdrawl symptoms when stopped suddenly.

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No more anti-depressants here either. I made sure to take a B-complex and fish oil and was able to taper off of the meds. Make sure to ask your Dr. the best way to do this. My depression went away and then fatigue started going away and then the aches and pains. It is a wonderful feeling.

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Thank you to everyone who responded to my questions about thyroid and depression issues and medications. I will definitely speak with my healthcare providers before making a decision to get off my meds. This is kinda a catch 22 though, because I do not have faith in these doctors who have seen me for my various ailments including thyroid and depression. I have told countless doctors of my symptoms, chronic fatigue, irratable bowels, depression, frequent urination(6-7 times per night--down to only 1-2 times a nite since i am gluten-free) The reason I have lost faith in the medical community is that for 30 years, no doctor ever mentioned that I could have celiac disease. In fact, my loving wife, spent many sleepless nights researching my symptoms and ailments via the internet. She is the one who brought this celiac/gluten intolerance issue to light. Don't get me wrong. I am VERY HAPPY to have been given a new lease on life and will not harp on the past. It is just that at this point, after my recent discoveries, that I have very little faith in the medical community. Don't you think that after 30 years visiting doctors that one of them would have suggested gluten intolerance?? Enough ranting. I will consult my doctors before I make a decision on my medications. I thank all of you who responded so quickly to my post. You have all made me feel very welcome into the worldwide family of celiac sufferers, and I was elated this morning to open my post and see that you all cared enough to share your success stories with me. I have a smile on my face that will last the whole day!!!!!!

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No more anti-depressants here either. I made sure to take a B-complex and fish oil and was able to taper off of the meds. Make sure to ask your Dr. the best way to do this. My depression went away and then fatigue started going away and then the aches and pains. It is a wonderful feeling.

Anti Depressants are a nightmare. I am currently on 10mg of Lexapro which is the minimal dose. It pretty much ruined my life for six weeks. Made my anxiety 100 times worse, they seem to be mellowing me out now a little, but my anger issues seems to be coming back. Anxiety seems to be somewhat better though.

I am hypothyroid, not sure if I am Celiac or not. Hopefully, I will no soon enough. I do know that the majority of people with thyroid issues are usually stuck on meds for life. It's really not that big of a deal as the meds a relatively cheap. I think for a months supply of levo for me is like 6 bucks. Now the lexapro thats a different story. 30 of those bad boys runs me 100 bucks.

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Anti Depressants are a nightmare. I am currently on 10mg of Lexapro which is the minimal dose. It pretty much ruined my life for six weeks. Made my anxiety 100 times worse, they seem to be mellowing me out now a little, but my anger issues seems to be coming back. Anxiety seems to be somewhat better though.

Did you let your doctor know about the side effects you were having? You mention anxiety, do you have more symptoms of anxiety than depression? If you do you may need an antianxiety med rather than an antidepressant. Doctors were convinced I was depressed for years, I wasn't I was celiac. Even after diagnosis they wanted me to take antidepressants for my anxiety symptoms. Finally a doctor listened and put me on an antianxiety med instead and it has made a world of difference. There is also the possiblity that once you have been gluten free for a bit and healed you won't need either.

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Did you let your doctor know about the side effects you were having? You mention anxiety, do you have more symptoms of anxiety than depression? If you do you may need an antianxiety med rather than an antidepressant. Doctors were convinced I was depressed for years, I wasn't I was celiac. Even after diagnosis they wanted me to take antidepressants for my anxiety symptoms. Finally a doctor listened and put me on an antianxiety med instead and it has made a world of difference. There is also the possiblity that once you have been gluten free for a bit and healed you won't need either.

I did my research LExapro works for both anxiety and depression. Its working good now. He did warn me there would be some side effects while adjusting, they were brutal, but for the most part they cleared up in a few weeks.

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Any thing you ingest will have a tendency to be better absorbed after going gluten-free and healing your gut. So thyroid meds may need to be decreased after gluten-free.

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My mom and sister were both able to go off their thyroid meds after the doctor told them they would have to be on them for life.

They think it was largely due to changing their eating habits - taking out refined sugars and grains for the most part.

So, i think there is a possibility of the body being able to heal it's self if given the right circumstances.

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Hi,

I haven't read all the replies, yet, but as far as getting off anti-depressants, I can recommend a couple of web sites. For tapering off, google crazy meds. Or "crazy meds US" - something like that. It has details about all the different kinds of drugs that psychiatrists dole out. And as far as getting off them, of course their chemistries are all different, so it will be not be a one size fits all formula for tapering. You probably know all this. Then, I'd like to recommend some sites that deal with what I call mental distress usually without drugs. One is alt mentalities I think, and the other one is Beyond Meds. Beyond Meds I look at regularly and it is very very good.

Good luck whatever you decide to do.

Plumbago

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Antideppressants never really helped me at all, in fact they made me worse so I wasn't on them when I was diagnosed. For me the depression was one of the first things to lift and it has never returned except when I am glutened. There is some research that is now telling psychiatrists that if someone does not respond to antidepressants that they should be checked for celiac. Do talk to your doctor and see if you can taper off them. Do not stop taking them suddenly unless your doctor says you can do so as some have a risk of seizure or other withdrawl symptoms when stopped suddenly.

I accompanied a family member to their psychiatrist's appointment one time, and mentioned getting the family member tested for celiac disease. Word for word, the psychiatrist (very respected by the way) said it's the most over-diagnosed disease.

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I accompanied a family member to their psychiatrist's appointment one time, and mentioned getting the family member tested for celiac disease. Word for word, the psychiatrist (very respected by the way) said it's the most over-diagnosed disease.

Over Diagnosed? By my understand it is one of the most under-diagnoses, along with hypothyroid.

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I accompanied a family member to their psychiatrist's appointment one time, and mentioned getting the family member tested for celiac disease. Word for word, the psychiatrist (very respected by the way) said it's the most over-diagnosed disease.

It isn't over-diagnosed it is just that it is finally being realized how common it is and how much it impacts not just the gut. Recent studies are even showing that folks on psychotropic drugs who don't get relief from them should be tested for celiac as it can have serious brain impact even if gut symptoms are not present.

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Be aware that SOY and SOY LECITHIN commonly cause Celiacs to become depressed. Any trace of it can cause depression within hours. I know 6 Celiacs with this problem. S

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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