Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Why Can't She Have It In Moderation?


JustForJen

Recommended Posts

mushroom Proficient

But, truthfully, it is NOT a life sentence.

Actually, in a way, it is - it is a GIVING BACK YOUR LIFE sentence :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 68
  • Created
  • Last Reply
IrishHeart Veteran

My wife may disagree with you about me being amazing. At least sometimes :). Thank you for taking the time to respond, I will ask her read it.

Trust me, I have read posts from many women & men on here who say their significant others left them when they needed them the most. I thank my man every single day for staying by my side. Your support is crucial to her, especially right now. This means, of course, no more buying those Kit Kats!! ;) no matter how much she wants them.

It takes courage to make major changes in your life, but dropping gluten from your life is not as big a deal as it first seems. We'll help!

This diagnosis, however, is not to be taken lightly.

Please, do have her read the whole post, if only to see that we care and that she is not alone and that we can help make this transition easier.

geesh, six months ago I barely spoke, I was so out of it and my family was worried I was dying... and now, I can't stop talking.... :D ....back to "chatty me" again.

Think of this as SAVING YOUR LIFE, not life being over. There are many on here who will tell you similar horror stories to mine...but I think you are getting the message loud and clear.

Life without gluten..is LIFE. Healthy and happy and LONG!!

Be well!! ;)

Link to comment
Share on other sites
JustForJen Newbie

Just thought you guys should know that my wife left me on Saturday on moved in with her Mother in Virginia. 4 days before the whole family was suppose to move to kentucky for my job that we have know about for months. I got home from work and she told me that her and my daughter would not be accompanying me to Kentucky. Really blindsided me and screwed me. I have a 26 foot moving trucked ready to packed, a new lease ready to be signed, and no place to live here after next week. I don't know if it has anything to do with Celiacs disease but I'm just really hurting right now and in shock!! I had to file immediate paperwork with the court and now that she has been served she has stopped speaking to me. OUCH

Link to comment
Share on other sites
Roda Rising Star

I'm so sorry for you. Maybe there are other issues going on with her besides gluten. Try and stay strong. I know it hurts. You can always come here for support if you want.

Link to comment
Share on other sites
ravenwoodglass Mentor

Just thought you guys should know that my wife left me on Saturday on moved in with her Mother in Virginia. 4 days before the whole family was suppose to move to kentucky for my job that we have know about for months. I got home from work and she told me that her and my daughter would not be accompanying me to Kentucky. Really blindsided me and screwed me. I have a 26 foot moving trucked ready to packed, a new lease ready to be signed, and no place to live here after next week. I don't know if it has anything to do with Celiacs disease but I'm just really hurting right now and in shock!! I had to file immediate paperwork with the court and now that she has been served she has stopped speaking to me. OUCH

I am so sorry that has happened. Did you talk to her before you filed the paperwork? Celiac can make us a bit nutty at times and effect moods very strongly in some of us. Maybe she needed some time to absorb everything. I don't know if something else may have been going on for a while but you might want to withdraw the paperwork and do some talking even if over the phone for a bit before making the split permanent.

((((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

Link to comment
Share on other sites
zus888 Contributor

I'm assuming the paperwork has more to do with child visitation than divorce proceedings.

I'm so so sorry!! I really don't know what else to say. I can't imagine losing my mate and my kids.

Link to comment
Share on other sites
lynnelise Apprentice

I am so sorry about what you are going through! I can't imagine what a shock this must be! Hopefully she is just emotional over her diagnoses and perhaps even gluten withdrawl and will reconsider! It sounds like if she doesn't she is losing out on a great and caring husband! I have a wonderful husband but trust me, he'd never join this forum just to help me cope or make a special trip to try to replace a beloved candy bar. He'd probably tell me to suck it up and to be thankful I wasn't worse off! Hope she appreciates what she has in time!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

OMG!

I am very sorry to hear this as I felt you had done so much to try and help your wife with her celiac diagnosis.

I don't know what else is going on, but I can tell you that celiac DEFINITELY affects people's BRAIN function enormously. I have to wonder if her behavior and judgment right now isn't seriously compromised because of her malnutrition from the disease.

I know how much it affected me. I was anxious, depressed, full of rage, anger, frightened, jittery and unable to make decisions. I felt overwhelmed by simple tasks and big decisions were impossible for me. My husband and I could not figure out why in hell I was behaving that way. I assure you, I went from being mentally stable and happy and calm to that lunacy because malnutrition can do that. I wish I had myself on video cam to show to others how bad it was.

I fear she is making errors in judgment out of fear and insecurity and illness. If she continues to ingest gluten, it is only going to get worse.

Perhaps her doctor can help you by talking with her? What about her MOM?

I am so sorry this has happened.

I pray for you all.

Link to comment
Share on other sites
jerseyangel Proficient

I am so sorry to hear this. I hope when things settle down a bit, you two can sit down and talk.

Take care.

Link to comment
Share on other sites
mushroom Proficient

You have my heartfelt sympathy.

Link to comment
Share on other sites
notme Experienced

i am so sorry. i hope things get better for you soon.

Link to comment
Share on other sites
bunche73 Newbie

Just thought you guys should know that my wife left me on Saturday on moved in with her Mother in Virginia. 4 days before the whole family was suppose to move to kentucky for my job that we have know about for months. I got home from work and she told me that her and my daughter would not be accompanying me to Kentucky. Really blindsided me and screwed me. I have a 26 foot moving trucked ready to packed, a new lease ready to be signed, and no place to live here after next week. I don't know if it has anything to do with Celiacs disease but I'm just really hurting right now and in shock!! I had to file immediate paperwork with the court and now that she has been served she has stopped speaking to me. OUCH

I got a feeling there are other issues going on here and maybe spend time understanding what she feels like 'cause until you have walked a mile in someones shoes you just don't know what its like saying good bye to gluten forever. But we Celiac's have to - there is no choice.

Link to comment
Share on other sites
GlutenFreeManna Rising Star

Just thought you guys should know that my wife left me on Saturday on moved in with her Mother in Virginia. 4 days before the whole family was suppose to move to kentucky for my job that we have know about for months. I got home from work and she told me that her and my daughter would not be accompanying me to Kentucky. Really blindsided me and screwed me. I have a 26 foot moving trucked ready to packed, a new lease ready to be signed, and no place to live here after next week. I don't know if it has anything to do with Celiacs disease but I'm just really hurting right now and in shock!! I had to file immediate paperwork with the court and now that she has been served she has stopped speaking to me. OUCH

I am sorry to hear this! I want to encourage you however to not give up on your marriage if you really still love your wife. Give her time to come around if possible. I must tell you a personal story because this scenario well could have happened in my own marriage all due to celiac. When I was still very sick and undiagnosed my husband lost his job. I was unable to work due to being so sick and my husband was applying to everything in sight but couldn't find a job. We had to give notice on our apartment before we had another job lined up--we had NO money left in savings for rent and piles of medical bills from tests that yielded no diagnosis. I was stressed out of my mind and not thinking clearly about things at all. I was very sick and very depressed about everying. My husband and I had a fight about something petty--I don't even remember what the argument was about now. He went out for a job interview or something else--it might have been grocery shopping I don't know now. For some reason I had reached my breaking point of frustration. I emptied out my closet, packed up my car and started to just drive. I had very little gas. I very little money. And worst of all I had been ordered to NOT drive anymore by my doctor! I only got about an hour away when I ran out of strength and couldn't drive anymore. I was that sick and weak that I couldn't drive an hour. My husband noticed I left with my clothes and had started calling me on my cell phone and calling anyone that could have taken me with the car (because he knew I was too weak to drive far and he was worried about me). He left me a few tearful messages saying he loved me, he was sorry for whatever he may have done to make me leave and to please come back because he was worried about me. I called him back and said I needed some time to rest and think. In the end I ended up having to find a safe place to park the car and rest for two or three hours and then drove BACK home to my husband. The reason I tell you this story is that had my parents been local (they lived five states away at the time) or had I been in good shape still physically enoguh to drive I WOULD HAVE GONE TO LIVE WITH MY PARENTS. As I say all this I need you to understand my husband is a saint of a man. He has been there for me through all this illness--taking care of me when I could barely stand up and could not keep food down. He never complained about me being sick all the time. He prayed for me, took me to the doctors appointments and tests and loved me more than I deserved. The reason I was trying to leave had NOTHING to do with him. It had EVERYTHING to do with this illness. Celiac affects the mind. It causes depression, anxiety, paranoia, etc in some people. Since being gluten free my husband and I don't argue as much. Our marriage has never been stronger or happier than it is now. Yet, if someone saw our marriage at the point in time when I was sick and trying to drive away they would have said surely our relationship is over. Surely we had some irreconcible (sp?) differences. I don't know you and you two may have something else serious going, BUT if you don't know why she left and you have no serious problems like infidelity happening, I really, really encourage you to give her time and seek reconciliation later on. She may very well change her mind once she has been gluten free for a while and realizes what a great man she threw away when she was "crazy" from the gluten.

Link to comment
Share on other sites
IrishHeart Veteran

I am sorry to hear this! I want to encourage you however to not give up on your marriage if you really still love your wife. Give her time to come around if possible. I must tell you a personal story because this scenario well could have happened in my own marriage all due to celiac. When I was still very sick and undiagnosed my husband lost his job. I was unable to work due to being so sick and my husband was applying to everything in sight but couldn't find a job. We had to give notice on our apartment before we had another job lined up--we had NO money left in savings for rent and piles of medical bills from tests that yielded no diagnosis. I was stressed out of my mind and not thinking clearly about things at all. I was very sick and very depressed about everying. My husband and I had a fight about something petty--I don't even remember what the argument was about now. He went out for a job interview or something else--it might have been grocery shopping I don't know now. For some reason I had reached my breaking point of frustration. I emptied out my closet, packed up my car and started to just drive. I had very little gas. I very little money. And worst of all I had been ordered to NOT drive anymore by my doctor! I only got about an hour away when I ran out of strength and couldn't drive anymore. I was that sick and weak that I couldn't drive an hour. My husband noticed I left with my clothes and had started calling me on my cell phone and calling anyone that could have taken me with the car (because he knew I was too weak to drive far and he was worried about me). He left me a few tearful messages saying he loved me, he was sorry for whatever he may have done to make me leave and to please come back because he was worried about me. I called him back and said I needed some time to rest and think. In the end I ended up having to find a safe place to park the car and rest for two or three hours and then drove BACK home to my husband. The reason I tell you this story is that had my parents been local (they lived five states away at the time) or had I been in good shape still physically enoguh to drive I WOULD HAVE GONE TO LIVE WITH MY PARENTS. As I say all this I need you to understand my husband is a saint of a man. He has been there for me through all this illness--taking care of me when I could barely stand up and could not keep food down. He never complained about me being sick all the time. He prayed for me, took me to the doctors appointments and tests and loved me more than I deserved. The reason I was trying to leave had NOTHING to do with him. It had EVERYTHING to do with this illness. Celiac affects the mind. It causes depression, anxiety, paranoia, etc in some people. Since being gluten free my husband and I don't argue as much. Our marriage has never been stronger or happier than it is now. Yet, if someone saw our marriage at the point in time when I was sick and trying to drive away they would have said surely our relationship is over. Surely we had some irreconcible (sp?) differences. I don't know you and you two may have something else serious going, BUT if you don't know why she left and you have no serious problems like infidelity happening, I really, really encourage you to give her time and seek reconciliation later on. She may very well change her mind once she has been gluten free for a while and realizes what a great man she threw away when she was "crazy" from the gluten.

This is what I was trying to say before, but GFMANNA said it best. I was "not myself" at all while ingesting gluten. I overreacted to things that normally would not have been a big deal at all. My husband had to deal with me being physically ill and listening to me cry and rant and tremble--not at him, but at my chronic pain and illness. I really felt like I would lose my mind. I was so sick, crippled with musculoskeletal pain and feeling like a madwoman, I told my sweet hubby I wouldn't blame him if he wanted a divorce because I did not wnat him saddled with an invalid. He told me gently "Don't ever say that again, babe. We'll figure this out together."

After I told my story to a really gluten-savvy psychiatrist (yes, I went to one because I was desperate), telling her I had no idea why I was behaving this way-- that I am usually a happy, balanced person-- SHE was the one who told me "you are not mentally ill--do you have food intolerances?? They can impact your brain!"

Malnutrition from celiac affects neurotransmitters in your brain, resulting in depression and anxiety. Once the villi heal, malnutrition stops and she will feel better--physically and emotionally.

I think between your wife's illness and the diagnosis that requires a major lifestyle and diet change and the move to a new state, she just cannot handle it. Understand it is THE DISEASE doing this and IF she follows the diet and gets well, this behavior will subside. I hope things work out for you guys; I really do.

Link to comment
Share on other sites
Gfreeatx Apprentice

I don't know if there are other circumstances involved in your relationship, but I can tell you from my experience I was a wreck after my diagnosis and I even told my husband I wanted him to leave me. We have always had a great marriage, but mentally I was not in a good frame of mind. I had been diagnosed with a condition that effected my heart back in 2005 (which they now believe was related to the undiagnosed Celiac Disease) so after the Celiac diagnosis I thought he would be better off without me. I was crying all the time and lashing out at him for no reason. I couldn't understand what had happened to me. I had always been a very positive, happy person, but I found myself in a really dark place. I am fairly young still and I felt like my body was giving out on me. My husband has always been supportive through everything I've gone through, but even he knew that I needed to talk to someone about what I was feeling. I ended up seeing a therapist and she really helped me. I was against it at first since I'd never talked to a professional before, but I finally realized I needed to feel better in order to cope with the celiac disease diagnosis and move on with my life. I am now about 8 months after my diagnosis and I am doing amazingly better both physically and mentally. For me the therapy worked as well as I think the longer I was away from gluten it was like the black cloud that was over me lifted. My husband has noticed that I am my old self again and we are doing great. So don't give up...in my fragile state of mind I was willing to dump the love of my life. Looking back, I cannot believe some of the things that came out of my mouth. Hope all works out for you too!

Link to comment
Share on other sites
hockeymomofceliacchild Rookie

Once again thanks for the responses. I have no Gluten Allergies, however for many years I have not eaten many wheat based products regularly. I have always believed carbohydrates are the leading cause of many health problems so I have abstained. So please stop bashing me about wanting to keep eating Gluten. I could care less, I barely eat it right now anyway. My wife however loves bread and loves kit kat's, etc. Just last night when she found out she would never be able to have a kit kat again, I dealt with a very upset young lady and promptly drove to the nearest gas station to buy as many different candies that I could that were gluten free, to console my crying wife. THIS ISN"T ABOUT ME!!!!!

I agree with your earlier post you do need to have her go for the scope to make sure it is celiac. It is a lifelong diet and very strict and hard to follow. But it will be necessary. However I do have a friend who has celiac and still chooses to eat gluten. Why? I have no idea but then I choose not to smoke at all or be near anyone who does (I get massive headaches) or drink- in excess for fear of what it does to my body now and in the future. It is a personal choice to follow this diet. My son (6) is newly diagnosed and like you I am madly searching for all the answers to my questions, it is a lot to soak in. My older brother has had celiac for over 10 years and gets a huge rash if he eats gluten. He was shocked to hear that my son at 6 and had just developed a rash had damage done to his small intestines (which they discovered after doing the scope, which then told us he for sure had celiac)He didn't know that even with out gastral symptoms damage could still be done to his body.

This site is fabulous and people have copious amounts of information to share (and varying opinons-which you can take or leave. lol) I found out that iodine and gluten cause my sons rash. We have choosen to limit his salt intake, buy non-iodized salt but really trying to eliminate all iodine seems imposible to me. So when my son says "Can I eat these" I say "Yes, they are gluten free, they do have salt on them. If you eat them you it will react with the gluten that is still in your system. Do you care if you get itchy?" He then replies...umm...I don't care, mmmm...these are good" LOL

Before I end this lengthy note I have to say it is wonderful the support you are giving your wife and learning all you can, she is very lucky to have you ;)

Link to comment
Share on other sites
hockeymomofceliacchild Rookie

I just realized there were pages of responses here and missed all the others til now. Sorry to hear things are not going good with you and your wife :( I have read that celiac causes so many issues and this could be part of it. Just let her know you are there for her and focus on your child and what is best for her (him?)If I have learned anything from a divorce it is that both parents have to focus on the child and what is best for them. Good luck and take care

Link to comment
Share on other sites
WhenDee Rookie

I just wanted to say you are a TERRIFIC husband to be so concerned that you are on this site and doing your own research - and mourning with her as well. Because you sound as sad as a newbie celiac yourself, LOL.

Look for Bob's Red Mill chocolate cake mix. It tastes just like real cake. His flour mixes are the best I've tried (though admittedly my options are very limited).

Something else to consider? Take a cooking class together. Life is going to be much easier if you cook at home (I don't know if you did before or not) and cook more from scratch. Every other time I pick up a box of something packaged, I end up regretting it. If you embrace cooking as a new hobby, this will be a lot easier - and more fun.

Link to comment
Share on other sites
Marz Enthusiast

Woah, was that out of the blue? So sorry to hear you've split. You've got the whole forum's sympathy :(

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
×
×
  • Create New...