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Gluten Ataxia


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6 replies to this topic

#1 Marz

 
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Posted 15 March 2011 - 05:36 AM

So I stumbled on a website talking about ataxia, and the link to gluten-intolerance. The symptoms are listed as :

* Poor coordination in physical movements and poor control of muscle movement
* Inability to control the speed or the power of a physical movement
* Headaches
* Inability to speak or form words correctly; speech impediments

I just remembered a problem I was having last year before going gluten free, where I was having difficulty getting words out of my mouth. It was the strangest thing to experience. My sentences were also sometimes very slow and I had to really concentrate to form the words. It would happen in episodes - some days I was fine, other days I really struggled. It didn't help having brain fog at the same time, made me feel like I was getting dumber.

Just realised I haven't had this problem in a *long* time... like I had forgotten I even had this problem. Strike off yet another random issue that I didn't realise was gluten-related!

Other random ataxia symptoms I had - poor coordination yes, but not too bad. I would sometimes close my hand in a drawer because I didn't move it fast enough for my other hand's liking, or scuff my hand against a cupboard because I miscalculated where my hand was and should be :)

Lots of bruises from bumping against desks, and again I haven't noticed many bruises lately at all.

All this has cleared up quite quickly - gluten free 8 months and counting - but I only had these symptoms for a few months before I figured out the gluten culprit, so I probably didn't have much damage.
  • 1
Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

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#2 Fire Fairy

 
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Posted 15 March 2011 - 06:00 AM

Congratulations! I had similar issues and have not noticed any problems of this nature in the past couple months. :) (gluten-free since November 2nd 2010) So glad to be free of this and the brain fog!
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If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown

#3 Marz

 
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Posted 15 March 2011 - 06:16 AM

Here is an extensive write up about gluten ataxia, if anyone is looking for more info, and some success stories :

Gluten Attack : Ataxia
  • 0
Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#4 ravenwoodglass

 
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Posted 15 March 2011 - 08:58 AM

That's wonderful. So glad to hear your symptoms are resolving. Feels great doesn't it.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 hnybny91

 
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Posted 15 March 2011 - 10:20 AM

Add me to the list of having this symptom go away when I went gluten free. It really is amazing all the things that gluten causes!
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#6 kb23

 
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Posted 18 March 2011 - 06:37 AM

I began a gluten free diet about three weeks ago for ataxia. I've read so much on it that I am convinced that it has something to do with the symptoms that seem so random, but are connected. Hearing that others are finding relief gives me great hope. Thanks!
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#7 Marz

 
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Posted 20 December 2012 - 02:40 PM

Oh hey, I just another look at this article, and the lady on which it was based commented an update on her progress. She also left her email, if anyone would like to contact her.

Great news is she's slowly getting better!

http://www.livingwit...xia-2366-1.html

Sarah Bosse here. I just realized today that I could comment on the article above and give an update. I'm glad to see so many comments here.
If anyone would like to email me, n a t u r a l l y g u t s y at g m a i l dot com.
I have not been glutened since January 2010. My balance and coordination has continued to improve, as well as my visual problems. I don't think the peripheral neuropathy has improved; my legs still burn. The visual problems were the last to improve. I don't think I'll ever be 100%. I still fall over easily, cannot look up while standing/walking, and I cannot walk in the dark (I use vision to compensate for balance problems). I cannot kick a ball, even a large one. But my hand coordination is near-normal now. My speech still slurs at times.
I'm glad that those who have gluten ataxia do have a chance of getting better when gluten is 200% avoided. I take extreme precautions, but it's worth it. I feel that if I got glutened again, my symptoms may take me back to where I was several years ago within just a few weeks and I may or may not recover to where I am today.
I noticed several folks mentioned Paleo/Low Carb diets. I have been on the Specific Carbohydrate Diet for over a year now (also treating Small Intestine Bacterial Overgrowth, IBS, Celiac, etc). I've added Atkins restrictions and eat about 35 net grams of carbs per day. No starches, no grains of any kind, no grain products, specific fruits and veggies allowed, all uncured meats that are unprocessed are allowed as well, and most fats. The progress I've seen has been somewhat slow but quite remarkable. I feel like God has used this diet to save my life.
I'm glad to share my experiences and listen if you need an ear. Just email me (my address is above, no spaces).
Sarah Bosse (Gutsy Girl)


Edited by Marz, 20 December 2012 - 02:41 PM.

  • 0
Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant




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