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Help Me, Please


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13 replies to this topic

#1 Googles

 
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Posted 15 March 2011 - 01:21 PM

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.
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#2 jerseyangel

 
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Posted 15 March 2011 - 01:26 PM

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm so sorry :(

I don't typically throw up as a result of a glutening, but the diarrhea sometimes will persist. I take Immodium and that stops it completely for a day or so and acts to "reset" everything (for lack of a better word).

Maybe the Pepto or something else for the vomiting would work similarly?
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#3 Jestgar

 
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Posted 15 March 2011 - 01:35 PM

Maybe you're actually sick?
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#4 Googles

 
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Posted 15 March 2011 - 02:16 PM

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.
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#5 ravenwoodglass

 
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Posted 15 March 2011 - 02:42 PM

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.


I would make an appointment with your doctor. Unless you are being reglutened somehow the D should IMHO be relieved by now. You may instead have food poisoning which can cause just D without you having any 'sick' feelings. You want to rule that out. If you have to take a test take some immodium or call your school or professor and see if the test can be taken another day. If you still have D after taking the immodium then you really should get stool testing done ASAP. I had salmonella once and the immodium would only relieve the D for about an hour or two and then it would return. If you do have a case of food poisoning you may need an antibiotic to clear it up.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 Googles

 
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Posted 15 March 2011 - 07:43 PM

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.
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#7 ravenwoodglass

 
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Posted 16 March 2011 - 01:45 AM

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.


If you wake up today and the D has resolved then things should be okay but if you still have D call the doctor and tell them on the phone that you have had D for an extensive period of time and want to rule out food poisoning. They should be able to let you pick up what you need to have for stool testing today and drop it off at the lab. Then if you have to wait a week or so for your appointment the results will be there when you go. If the results are positive they will usually call you and have you go right in for an antibiotic script.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 Marz

 
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Posted 16 March 2011 - 04:53 AM

Shame man, that's terrible :(

It could be illness/food poisoning, if it's been a week please get to the doctor ASAP!

Throwing up in the morning - first thing I thought of was morning sickness, but I'm sure you'd know if that was a possibility :) Don't get offended - my doctor tested me twice when I was suffering from nausea before going gluten-free, even though I told him I was pretty safe ;)

Other possibility is you're taking a medication for the illness, that's not gluten-free. Double check all your medication.

Anything new you're eating? Or something you've started eating/drinking because of the d/vomiting?

Symptoms in addition to vomiting/d? Extreme pain/tenderness/burning feeling in lower right area of abdomen (if you're looking down at your stomach), with fever would indicate possible appendicitis, get you to the doctor very quickly. Stiff neck and bad headache? Also an indication to go to the doc quickly.

Hope you feel better soon!!
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Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#9 Googles

 
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Posted 17 March 2011 - 03:00 PM

Thanks everyone.

I went in to the doctor and they said that it is a stomach virus that is going around and should last 7-10 days. They said since I've had it for a while I should likely be close to the end. I'm slowly starting to feel better. They did tell me that because it was a stomach virus the imodium was the worst thing I could have taken.

I knew they were going to ask me if there was a possibility I am pregnant, but no, not any. No offense taken.

I hate going to the doctor so thanks for convincing me to go.
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#10 catsmeow

 
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Posted 17 March 2011 - 06:32 PM

Thanks for posting this. It helped me tonight.

I'm so glad your starting to get better. All this crud going around is so miserable!

When I get glutened, I get sinus congestion, migraines and hives (wheat allergy).


Right now, I have had sinus/cold symptoms and a migraine going on for several days.....so for several days I've been looking for what glutened me, but since I read this, I'm thinking I have a darn cold!!! My daughter has one, and her symptoms match mine, I just asked her. I am sure I have not eaten gluten.....so, I think I need to relax and start treating it like a cold. I also have body aches and no joint pain. Being glutened usually gives me joint pain for days.

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....
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You've cat to be kitten me right meow

Wheat Allergy-April 2010
Gluten Intolerant-April 2010
Dairy/casien intolerant-Aug 2012
Lactose intolerant- Aug 2012
Soy Intolerant-November 2012
October 2012- I learned that I am 1/2 Irish with a strong family history of Gluten Intolerance/Celiacs. I will never know If I am Celiac because I will never eat gluten again in order to test postive, it's poison and I do not ever want to feel the way I felt before implementing the gluten free diet EVER again!!!

#11 annegirl

 
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Posted 17 March 2011 - 08:36 PM

Thanks for posting this. It helped me tonight.
......

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....


Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!
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#12 catsmeow

 
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Posted 18 March 2011 - 07:42 AM

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!





Psycho! Thats EXACTLY how I've been feeling! I would have gone to the restaurant and done the same thing! LOL!

Your so right when you say that it's hard not to think every little twinge is gluten/wheat.


It feels good to relax.
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You've cat to be kitten me right meow

Wheat Allergy-April 2010
Gluten Intolerant-April 2010
Dairy/casien intolerant-Aug 2012
Lactose intolerant- Aug 2012
Soy Intolerant-November 2012
October 2012- I learned that I am 1/2 Irish with a strong family history of Gluten Intolerance/Celiacs. I will never know If I am Celiac because I will never eat gluten again in order to test postive, it's poison and I do not ever want to feel the way I felt before implementing the gluten free diet EVER again!!!

#13 WitchyWoman

 
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Posted 18 March 2011 - 07:58 PM

Hi~~~~~
I am so sorry you are not feeling well...me too :( My Dr put me on Lomotil which is a stronger prescription dose of Imodium for the D and Phenergran pills for the nausea. They really help. You may want to request RX for these meds.
Hope you feel better soon!!
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Emergency abdominal surgery in 1997 due to ovaries cystizing and rupturing
MRSA set in at hospital which led to intestines being eaten from the outside in causing severe diverticulitis
1997 Sigmoid colon removed
1998 Transverse colon removed
1999 Transcending colon and appendix removed
2000 diagnosed with severe IBS
2005 diagnosed with ulcerated illium
2/28/11 diagnosed with Celiac Disease and Colitis
‎"Life is not weathering the storm; it is learning to dance in the rain"

#14 sallyb

 
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Posted 18 March 2011 - 09:20 PM

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.


I'm new to gluten free diet, and by that i mean this week i was diagnosed with celiac disease. There is a medication called Lomotil. I take the generic version which is called diphenoxylate-atropine. You might want to ask your Dr. about it. It stops diarrhea and i would not have been able to leave the house without it. I am no expert, but it has helped me with my digestive issues thus far. I have not thrown up becuase of the Celiac Disease, but I am just starting to be able to not wear diapers when i leave the house. Trust me as far as the bathroom issues go I know exactly what you're feeling. I hope this helps.
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Finally diagnosed with celiac disease march 14th 2011 after 16 years.

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