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Doctors And Every One Else Who May Know This Answer, Please Help.
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I had my self tested for celiac disease two days ago, (Friday)through blood work. I think the test was called IgA and have not eaten wheat/gluten for almost a year.(I self diagnosed my self)However, I have recently found out I am allergic to corn, and the day I was to get tested I woke up with a hive on my mouth, a rash on my face, and was having a hard time breathing, my lungs were getting tight. So, my question to you all will my test results have a good chance of showing I have celiac disease now that corn was part of it?

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I have no idea if the corn will make any difference or not, but the fact that you have not eat gluten for a year certainly will. If you really have not eaten gluten your test will be negative.

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Yeah, afraid the test will be negative if you've been gluten free for a year. Since it's not an allergy, the allergic reaction to corn wouldn't affect the test, though.

Was your doctor aware of your gluten free status when the test was ordered?

If they were, and are still trying to diagnose you this way, they are simply very celiac ignorant. A survey study of GI doctors around the world found that over 50% of them would choose this (incorrect) way of trying to diagnose a celiac who has been gluten free for a long time, so your doc wouldn't be alone in this. <_<

Re: the corn allergy, if you haven't yet, i would really recommend checking out a corn allergy site, because that stuff is in an insane amount of things. Especially if you are having a severe reaction like this, I imagine you need to know.

Iodized salt always has corn, citric acid can be corn contaminated, many tomatoes have a corn based spray on them for ripening, even paper plates sometimes have corn starch between them to prevent sticking - it's all over the place, ya know?

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Yeah, afraid the test will be negative if you've been gluten free for a year. Since it's not an allergy, the allergic reaction to corn wouldn't affect the test, though.

Was your doctor aware of your gluten free status when the test was ordered?

If they were, and are still trying to diagnose you this way, they are simply very celiac ignorant. A survey study of GI doctors around the world found that over 50% of them would choose this (incorrect) way of trying to diagnose a celiac who has been gluten free for a long time, so your doc wouldn't be alone in this. <_<

Re: the corn allergy, if you haven't yet, i would really recommend checking out a corn allergy site, because that stuff is in an insane amount of things. Especially if you are having a severe reaction like this, I imagine you need to know.

Iodized salt always has corn, citric acid can be corn contaminated, many tomatoes have a corn based spray on them for ripening, even paper plates sometimes have corn starch between them to prevent sticking - it's all over the place, ya know?

But here's the thing. Even if I eat a crumb of wheat, my reaction is severe, even life threatening. This is why she still ordered for the test in hopes it may still show up. Even if I breath in flour my throat will start to close let alone eat any wheat for a test to prove it. I'm basically caught in a hard place. And am hopeful my test may turn out positive. Thanks for the help.

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I am aware that celiac reactions vary greatly from one person to another, and some celiacs have reactions similar to this, but I think it's important to mention that you should consider the possibility of having an wheat allergy rather than celiac, particularly since you were self-diagnosed so I'm assuming that means you never had an endoscopy or anything that would indicate intestinal damage. Since you have a severe corn allergy, consider that it may be a wheat allergy.

If you have been gluten free for a year already and feel better that way, by all means keep doing it. If you've been gluten-free for that long there's a high likelihood that your results will be negative for celiac even if that's what it is. You know gluten/wheat makes you extremely ill, so regardless of your results, don't eat it! And see about getting an Epipen if you haven't already. You don't want to go into anaphylactic shock without one of those nearby, and it seems that's where your reactions could be heading.

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The blood tests in the celiac panel will not detect an allergy, no matter how intense. They measure the antibodies produced by the autoimmune reaction to gluten. Those antibodies have a limited life span, and will only be found if you are eating gluten on a regular basis.

An allergic reaction to corn (or anything else) will not affect those antibodies.

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But here's the thing. Even if I eat a crumb of wheat, my reaction is severe, even life threatening. This is why she still ordered for the test in hopes it may still show up. Even if I breath in flour my throat will start to close let alone eat any wheat for a test to prove it. I'm basically caught in a hard place. And am hopeful my test may turn out positive. Thanks for the help.

This sounds more like a wheat allergy. Celiac disease or gluten intolerance is not an allergy, it is an autoimmune disease. Have you had IgE testing done for wheat alllergy?

I am currently going through this with milk. I started have anaphylactic reactions to anything with milk. I'm waiting on drs appointments to get offical allergy testing but I have heard it's unreliable. I have one on Monday in which I will ask to get an epipen even though I have not had allergy testing done yet. Other people with life-threatening allergies have told me it is fairly easy to get an epipen after a reaction. If your allergic reactions have been documanted by ER visits or even by your dr you should not have any problem getting some life saving meds. Don't ignore this even if you tests come back negative. You could test yourself with barley to see if your problem is with gluten or with wheat, but don't do that until you have an epipen given your past reactions to wheat. In the end you may have to settle with not knowing if you have celiac or a wheat allergy (some people even have both). The result of having to avoid wheat is pretty much the same no matter what yoru diagnosis is. Only difference is if you are allergic to just wheat you can have the other gluten grains.

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I am aware that celiac reactions vary greatly from one person to another, and some celiacs have reactions similar to this, but I think it's important to mention that you should consider the possibility of having an wheat allergy rather than celiac, particularly since you were self-diagnosed so I'm assuming that means you never had an endoscopy or anything that would indicate intestinal damage. Since you have a severe corn allergy, consider that it may be a wheat allergy.

If you have been gluten free for a year already and feel better that way, by all means keep doing it. If you've been gluten-free for that long there's a high likelihood that your results will be negative for celiac even if that's what it is. You know gluten/wheat makes you extremely ill, so regardless of your results, don't eat it! And see about getting an Epipen if you haven't already. You don't want to go into anaphylactic shock without one of those nearby, and it seems that's where your reactions could be heading.

I know it's celiac disease because my grandmother has it. Our reactions are the same. It is only genetic, and yes she did get tested..I meant to say I have had celiac for 2 years, but prior to that I have also been lactose intolerant. Thanks for your help I will look into an Epipen.

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The blood tests in the celiac panel will not detect an allergy, no matter how intense. They measure the antibodies produced by the autoimmune reaction to gluten. Those antibodies have a limited life span, and will only be found if you are eating gluten on a regular basis.

An allergic reaction to corn (or anything else) will not affect those antibodies.

Not something I defiantly did not want to hear, but thanks for being so frank.

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This sounds more like a wheat allergy. Celiac disease or gluten intolerance is not an allergy, it is an autoimmune disease. Have you had IgE testing done for wheat alllergy?

I am currently going through this with milk. I started have anaphylactic reactions to anything with milk. I'm waiting on drs appointments to get offical allergy testing but I have heard it's unreliable. I have one on Monday in which I will ask to get an epipen even though I have not had allergy testing done yet. Other people with life-threatening allergies have told me it is fairly easy to get an epipen after a reaction. If your allergic reactions have been documanted by ER visits or even by your dr you should not have any problem getting some life saving meds. Don't ignore this even if you tests come back negative. You could test yourself with barley to see if your problem is with gluten or with wheat, but don't do that until you have an epipen given your past reactions to wheat. In the end you may have to settle with not knowing if you have celiac or a wheat allergy (some people even have both). The result of having to avoid wheat is pretty much the same no matter what yoru diagnosis is. Only difference is if you are allergic to just wheat you can have the other gluten grains.

My doctor had two tests done one for wheat allergy the other for celiac disease. I can't have any wheat whether it be barley, rye etc. Thanks, even if/when it does come back negative I will find other ways to prove it. Good luck with your dairy testing.

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My doctor had two tests done one for wheat allergy the other for celiac disease. I can't have any wheat whether it be barley, rye etc. Thanks, even if/when it does come back negative I will find other ways to prove it. Good luck with your dairy testing.

Thanks. Just curious is there some reason you need to "prove" it? It sounds like your body has given you all the proof you need. You could look into Enterolab if you really need the piece of paper with a positive test result. They do not diagnose celiac, they only tell you if you are gluten intolerant based on stool samples and they do genetic testing too I think. It's expensive however and insurance usually doesn't cover it.

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Thanks. Just curious is there some reason you need to "prove" it? It sounds like your body has given you all the proof you need. You could look into Enterolab if you really need the piece of paper with a positive test result. They do not diagnose celiac, they only tell you if you are gluten intolerant based on stool samples and they do genetic testing too I think. It's expensive however and insurance usually doesn't cover it.

You're welcome. I am having to prove it for medical reasons that are personal.

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You're welcome. I am having to prove it for medical reasons that are personal.

actually, you may have been gluten free too long for enterolab....good luck
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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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