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Celiac Panel And Lbc Analysis


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#1 Alika Nash

 
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Posted 19 March 2011 - 07:34 PM

Can you be diagnosed with celiacs with merely a celiac panel test? I have had this done and also a LBC Analysis. From the LBC they tell me very scary things about my bloods toxicity, which I am not sure I completely understand all of. They named many vit and mineral deficiencies, anemia, yeast, parasites affecting connective tissue, my heart, my liver, my thyroid, and my entire digestive tract.
This was all done in 3 days at a Holistic doctor.
Prior to that I had seen 17 doctors and specialist in 6 different hospitals over the past 4 years. And not a one could tell me what was wrong, they just labeled me an enigma, and sent me off to another doctor.
I have had 8 surgeries and was told I needed more, from bone degeneration. Does anyone else have severe bone problems from celiacs. I also just recently had an Ingiunal hernia, that turned out to be saponified and necrotic tissue. This one has me worried, and the scariest picture in my mind that I am rotting from the inside out! Anyone else had this happen?
The specialist docs want to follow through with anesophageal motility study, and then an endoscopy and possibly a colonoscopy as i also have a hiatal hernia and GERDS, and they also found pollups in my gall bladder.
This has all been a bit of a relief in a sense to think I have my diagnosis with holistic doctors, but at the same I am not sure if I should just stick with them entirely or continue care with conventional doctors?
I was suppose to have another knee surgery, and ulnar nerve release. I'd like to think with diet changes I will be better, and maybe all these other things will settle down also. I don't know what to do with all these doctors, any suggestions?
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#2 psawyer

 
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Posted 19 March 2011 - 08:38 PM

Some doctors will diagnose celiac disease based on blood work alone. Others still insist on a positive biopsy before making a definitive diagnosis. But positive results on the blood work is highly indicative of celiac disease in any case.

I don't know about the other conditions you mention.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#3 ravenwoodglass

 
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Posted 20 March 2011 - 07:46 AM

I would concentrate on being gluten free for at least a couple of months. That may take care of a lot of your issues. Your digestive system is compromised right now detox diet may be irritiating it.
Be careful of how many 'treatments' you are doing as it seems they have diagnosed you with a lot of stuff. You want to give time for the celiac damage to heal and then if you are still having a lot of issues think about taking other remedies. Have your regular doctor check your vitamin and mineral levels and then supplement what you are low in with for sure gluten free vitamins and minerals that you can find in your local stores.
My first visit to a naturopath cost me over $400 with all the supplements and treatments they sent me home with. I became very ill after taking them and I was told my gluten reaction to them was a detox symptom but when I went home and did some research of the products on my own it turned out that quite a few were not safe. The doctor was of the opinion that the small amount of gluten present was not an issue but it was. Not saying that would be the case for you. I just want you to be through in your checking of anything that is given to you. Don't just take stuff blindly. Do searches for not just gluten but for reviews of the treatments and side effects.
Yes celiac can affect the bones leading to osteoporosis. Calcium, magnesium and D3 can be helpful in stopping the progression and weight bearing excercise will also help.
I do hope you are feeling better soon.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Alika Nash

 
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Posted 20 March 2011 - 11:11 AM

I would concentrate on being gluten free for at least a couple of months. That may take care of a lot of your issues. Your digestive system is compromised right now detox diet may be irritiating it.
Be careful of how many 'treatments' you are doing as it seems they have diagnosed you with a lot of stuff. You want to give time for the celiac damage to heal and then if you are still having a lot of issues think about taking other remedies. Have your regular doctor check your vitamin and mineral levels and then supplement what you are low in with for sure gluten free vitamins and minerals that you can find in your local stores.
My first visit to a naturopath cost me over $400 with all the supplements and treatments they sent me home with. I became very ill after taking them and I was told my gluten reaction to them was a detox symptom but when I went home and did some research of the products on my own it turned out that quite a few were not safe. The doctor was of the opinion that the small amount of gluten present was not an issue but it was. Not saying that would be the case for you. I just want you to be through in your checking of anything that is given to you. Don't just take stuff blindly. Do searches for not just gluten but for reviews of the treatments and side effects.
Yes celiac can affect the bones leading to osteoporosis. Calcium, magnesium and D3 can be helpful in stopping the progression and weight bearing excercise will also help.
I do hope you are feeling better soon.

Thank you sooo much for your input, it is all very helpful. I will definately have my doctor check my vitamin and mineral levels again. My sister was actually mentioning that some of there stuff can be harmful or be giving you overdoses of certain vitamins, so I will definalely keep my eyes open to this. The hardest part is just learning everything, whats right, whats wrong. So much to learn. Thank you for your time and advice, it is hugely appreciated.
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