Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anxiety Attacks When Glutenend!


chili

Recommended Posts

chili Apprentice

I seem to get alot of anxiety attacks when I have been cross contaminated. I also get irritated with loud noises..my children playing and laughing seems intensified by 1000..I can't stop the nervous feeling and anxiety attacks that come. DOes anyone have any advice how to manage this panicky feeling, besides the obvious of not getting glutenend!! thank you!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I don't know if there is anything you can do to stop them. I got a prescription for Xanax for the episodes of contamination because the anxiety is so disconcerting. It does help. I take just .25 mg. only until the reaction is over. I feel much better now than when I was at the mercy of a glutening. I hope you get a better answer but that is the only thing that works for me.

Link to comment
Share on other sites
JCastro Newbie

I get exactly the same feelings (anxiety and irritation with loud noises) when I am cross contaminated. I also have Xanax which helps. It also helps me to just remind myself that I am fine and its just that evil gluten again! Hope you find something that helps you!

Link to comment
Share on other sites
Nads Rookie

I don't know if there is anything you can do to stop them. I got a prescription for Xanax for the episodes of contamination because the anxiety is so disconcerting. It does help. I take just .25 mg. only until the reaction is over. I feel much better now than when I was at the mercy of a glutening. I hope you get a better answer but that is the only thing that works for me.

Is Xanax habit forming? Do you feel even more anxious after taking it hen it wears off? Can you take it only as needed?

Thanks

Link to comment
Share on other sites
maryphyl Newbie

I had a panic attack night before last--I had eaten gluten somewhere sometime before this. I did not recognize the panic as being a product of having consumed gluten but since it was irrational I guess it was.

Link to comment
Share on other sites
eatmeat4good Enthusiast

Is Xanax habit forming? Do you feel even more anxious after taking it hen it wears off? Can you take it only as needed?

Thanks

Yes, you can use it only as needed. I was very concerned about it being habit forming. I read a lot before I took it. I had so much anxiety about taking Xanax that I had to take a Xanax just to calm down!

But seriously, yes, my first Dr. was very concerned about the addictive nature of the Benzodiazepines. However, it has been miraculous for me. Tiny dose calms me right down. I always have it in my purse. But I never have to take it more than a couple of days after a glutening. I do not ever have what they call "rebound anxiety" where you get withdrawal symptoms and all that.

My current Dr. assured me it was perfectly ok for me to take it even if I needed it every day. He said at .25 mg it is such a tiny dose that I shouldn't worry about taking it as needed. The people who may get the rebound anxiety are up to 1mg or above daily and if they stop abruptly they will get really bad anxiety. He told me not to worry about it unless I got to 4 pills a day AND found they weren't working. Then we would taper down slowly. Well, that has never happened. I have been using it as needed for 6 years and have never needed it for more than a few days nor have I felt any withdrawal or anything negative when I stopped taking it. I originally got it for the gluten anxiety that happened daily but I didn't know what it was that was causing my anxiety. Of course it works much better now that I have no gluten in me.

If I take more than 2 pills, I will get drowsy so you have to practice with what dose works for you, if you want to take it. Talk to your Dr. about it because really-I wouldn't be able to handle the anxiety of accidental gluten without it. Very helpful for me. I only get 20 pills at a time....so I am careful. Sometimes that lasts me for months. But I know it is there if I need it. Everybody is different though, and I have read about the rebound anxiety being terrible and yes, you are right to be concerned about addiction.

Yes, I use it only as needed. It is not a daily medication...

Link to comment
Share on other sites
eatmeat4good Enthusiast

I had a panic attack night before last--I had eaten gluten somewhere sometime before this. I did not recognize the panic as being a product of having consumed gluten but since it was irrational I guess it was.

Hi Welcome!

Yes, panic attacks and anxiety are very common with glutening if you are Celiac or Intolerant. It is the first symptom I have.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jenny (AZ via TX) Enthusiast

I take Alprazolam, the generic for Xanax. I still have some by Mylan, which they have told me they are not making anymore. I recently filled a prescription by Sandoz. I called and they told me it was gluten-free, however they cannot guarantee. My prescription is for .5 mg and I usually split the pill in half.

I don't have to take them often, but when I do have that anxious feeling, it works great. I have also let it melt under my tongue to get in my system even faster. Very bitter though.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,072
    • Most Online (within 30 mins)
      7,748

    SherryT
    Newest Member
    SherryT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...