Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten-Free And Irritable Bowel Syndrome
0

6 posts in this topic

I have been eating gluten-free for about six months, but continue to have stomach issues.I also have wheat, barley and oat allergies- in addition to a diagnosis of IBS. Now that I am gluten-free, what additional diet suggestions would you have for me in controlling my IBS symptoms. (I had thought my stomach pain, cramping was simply from my gluten-filled diet, but I'm still not better.) Anyone else with IBS?

Thanks!

Brittney

0

Share this post


Link to post
Share on other sites


Ads by Google:

My friend has had IBS for over 10 years. It was -really- bad. I suggested they go on a gluten-free diet which they did, but when they REALLY noticed an 80% improvement was when they stopped eating all corn and soy. Even traces of corn and soy affect them. They also cannot eat any legumes (including peanuts (peanuts are legumes, not nuts). This diet improved their overall health although they can tell there must be one another food that occasionally causes them digestive issues.

Keep a food diary. Eat VERY SIMPLE and try to find trends within your diet and your body's reaction.

0

Share this post


Link to post
Share on other sites

You may be having issues with lactose because gluten destroys the area of the small intestine where lactase (which digests it) is made. Most celiacs are intolerant of lactose until they heal. While I know you are not diagnosed celiac you may still have these problems.

0

Share this post


Link to post
Share on other sites

I have been eating gluten-free for about six months, but continue to have stomach issues.I also have wheat, barley and oat allergies- in addition to a diagnosis of IBS. Now that I am gluten-free, what additional diet suggestions would you have for me in controlling my IBS symptoms. (I had thought my stomach pain, cramping was simply from my gluten-filled diet, but I'm still not better.) Anyone else with IBS?

Thanks!

Brittney

I had a lot of ongoing gut problems after going gluten free (was 'diagnosed' with IBS), and the thing that has really helped me the is FODMAP diet. If you google it there are some good resources, but if you are thinking of giving the diet a go you should follow the guidelines from Monash University, as they scientifically test the levels in food.

Apart from some remaining problems with low appetite my system is working pretty much normally, which is such a relief after what I used to deal with.

0

Share this post


Link to post
Share on other sites

I had a lot of ongoing gut problems after going gluten free (was 'diagnosed' with IBS), and the thing that has really helped me the is FODMAP diet. If you google it there are some good resources, but if you are thinking of giving the diet a go you should follow the guidelines from Monash University, as they scientifically test the levels in food.

Apart from some remaining problems with low appetite my system is working pretty much normally, which is such a relief after what I used to deal with.

Is the FODMAP something that you would talk to a dietician or a physician about before starting?

0

Share this post


Link to post
Share on other sites




Is the FODMAP something that you would talk to a dietician or a physician about before starting?

A dietician is the best sources, but they don't all know about it. You are most likely to find one in Australia, as that's where the fodmap research team is based.

If you can't, I have heard that the dietician practice of Sue Shepard can do skype consultations, I have heard of several people finding this very useful.

There are a lot of different lists and sources of information about fodmaps, but always trust information from Monash university and Sue Shepard above other sources, and they are the ones actually testing the levels in foods. Also, the yahoo group 'fructose malabsorption australia' is a great resource, and has access to research papers and food lists that are pretty up to date.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined