Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ana Test And Gluten Intolerance
0

10 posts in this topic

Hello everyone,

Hi,My name is Annie, in April I had a colonoscopy done. I had a polyp at 45, so 3 yrs. later I'm back for another test. During my visit I explained to the Dr. that I was having trouble with everything I was eating, after meals my stomach sounded like there was an Alka Seltzer dropped in there. I was consipated all the time and having many, many small bowel movements all day. Fatigue was terrible and joint pain. He ordered 3 test. One came back only slightly positive and told me I should go on a gluten free diet anyway.

I can't believe the difference, my stomach has quieted down even a rash that I have had for years on my chest and back are gone etc. Improvement on fatigue and joint pain. How can someone who only tested slightly sensitive see such a difference so quickly?

Another question, Dr. also ran a test for an ANA, that came back positive at 516. So I was wondering can gluten sensitivity cause a pos. ANA ????

I'm a new so any help would be greatly appreciated!!

Annie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Do you know the name of the test that came back positive? Did the doctor give you a dignosis of celiac? If you got positive bloodwork even slightly positive, you can still have celiac disease. My grandmother had a very slight positive blood test and they went and did a biopsy and found that she had intestinal damage. She was diagnosed with celaic based on those results. If you are noticing improvements on the diet, then that in itself is a positive test result. Hope this helps :D

0

Share this post


Link to post
Share on other sites

Hi Annie,

I also have a high ANA and was sent to a rheumatologist. He tested for Lupus and rheumatoid arthritis as these diseases cause your ANA antibodies to be high....but he also told me that a positive ANA could mean nothing. I was found to have antibodies indicating Sjogrens syndrome so this may be the cause for my high ANA. All other tests came back normal.

My GI doc doesn't think celiac is the cause for a high ANA, but as stated before a high ANA does not mean anything is going on.Lots of healthy people have an increases ANA. I would see a rheumatologist if I were you and get their panel of tests done but don't worry in the meantime.

Sue

0

Share this post


Link to post
Share on other sites

Hello

Thank you for your quick responses. The Dr. did ask if I wanted to do a biopsy but I said no. I had difficult pregnancies,(the last one 12yrs. ago put me in the hos[ital untill I was 5 months pregnant) than 2 yrs. ago I had to have a hysterectomy. No more under the knife unless it's an emergency!

He said go home, there is a lot of info available on the "net" and see how the diet goes. I am just amazed at how soon I saw a difference. There were days I didn't think I could make it to work I was soooooo tired. :o I am also anemic.and take iron.

Well as far as the ANA goes I did have a bone density test done today and am seeing a rhuemy tommorow(My mom has polymialgia rhuematica) but I wasn't sure if the damage to my bones was done due to gluten or a rhuematic factor? And if gluten could cause a positive ANA, mine is quite high.

So many questions??? I'm sorry I didn't pursue this earlier I was suffering for years and didn't know why. I always mention symptoms to my Dr.(who is also my gyn) on unrelated visits but never really pushed for an answer. He always just said well your anemic because of heavy periods,well your joints hurt because your 40, it was only by chance during the colonoscopy visit that I finally spoke up and said hey, what is going on here!

Sorry this seems so looooong winded , but a lot has been put on my plate in such a short time and I don't want to be stupid about it anymore.

Reguards to all,

Annie

0

Share this post


Link to post
Share on other sites
but I wasn't sure if the damage to my bones was done due to gluten or a rhuematic factor?
gluten ingestion can result in bone damage since gluten damages the villi in the intestine that absorb calcium and vitamin D and all the other nutrients involed with bone health.

He always just said well your anemic because of heavy periods,well your joints hurt because your 40, it was only by chance during the colonoscopy visit that I finally spoke up and said hey, what is going on here!
<_< I dislike it when they do that and don't investigate, well at least you know what is causing your problems now. I'm glad that you are feeling better now :D
0

Share this post


Link to post
Share on other sites




If your mom has an autoimmune disease this alone may cause your ANA to be high. Alot of times it is high in family members who have a family history of autoimmune diseases.

Your bone density test will show if your bones are thin and if they are this is definately caused by celiac disease.

Sue

0

Share this post


Link to post
Share on other sites

Ditto what Sue said - if a family member has an autoimmune disease, you can have a high ANA just because of that. I just went to a rheumatologist today (my ANA was 1:320) and I have some joint pain, lately my ankles. Anyway, I was surprised how much he knew about gluten intolerance and Celiac. I am not Celiac and told him that much but as we went down the symptom list I filled out for him, he pointed out which symptoms probably had to do with gluten intolerance.

My ANA had the pattern of nucleolar, which when you look on the web indicates scleroderma. But when I asked him how much I should put on that info, he said that the ANA test is best used when the results are negative. When positive, it can mean disease or nothing at all. Patterns can help indicate something but don't necessairly mean anything. It's the follow up testing that means something.

I wondered, too, if it was due to gluten in me, but I have been gluten-free for 8 months - seems like I wouldn't have raised antibodies if there was a connection, but I don't know if there is a direct correlation. Mystery.

I do have arthritis symptoms, IBS, fatigue so it could be I have something else going on. Just had a ton of tests (8 vials of blood!) taken today... plus x-rays.

Stephanie

0

Share this post


Link to post
Share on other sites

Hi Annie,

my stomach sounded like there was an Alka Seltzer dropped in there.
Ironically this is how I found out about lupus, I did a search because of my audible bowel sounds. I went to my GI doc, he ran and ANA and the rest is history.

I too have a positive ANA 1:640 along with some other positive tests and I have been dx with Lupus. I do not believe an ANA has anything to do with Celiac. Take a look at this link:

Info on ANA test

I too suffer with joint pain, fatigue, etc and additional GI problems not related to Celiac. In my case the Lupus effects my GI tract and is finally some what under control with the help of meds.

I am not familiar with the new ANA testing but if it high then it usually means something. However Lupus can mimic alot of other things and is very hard to dx. The doctor goes by a criteria and you would need to meet atleast 4 out of the 11 along with other positive blood test other than the ANA, such as Anti-DNA, SED rate, to name a few. See: Criteria List

Healthy people can have a positive ANA but it's usually a very low number (i.e 1:80) and they usually do not have any symptoms. In order for your doctor to figure thigns out he/she would need to run a full Lupus Panel test. HEre is a link that shows all the Lab tests used in dx lupus: http://www.hss.edu/Conditions/Lupus/Labora...-Tests-In-Lupus

Here another link that may help you shed some light on all this:

http://www.uklupus.co.uk/symplist.html

Take care :)

0

Share this post


Link to post
Share on other sites

Thanks everyone!!!

What great info. you all provide in a friendly atmosphere. Sometimes it can be very intimidating in the Doctors office. You want to ask a lot of questions, but you don't want to appear stupid or have him sense that you are actually looking for something to be wrong. It is not that I want something to be wrong I simply want to feel better without going back and forth 10 times before I get a dx.

I never even suspected gluten to be a problem I was expexting it to be sugar related. My Dr. said I probably also have a lactose intolerant problem as well but didn't offer any extra advice for that.

What has me concerned now is this. I felt great the first few weeks, now my stomach feels very bloated and hurts again sometimes. I have not tried a lot of new foods because I'm trying to be careful. The fatigue and joint pain is still improved .I am seeing the rhuemy in two weeks for a follow-up maybe some answers are forth coming at that visit.

As for my son I guess I'm moving over to the "parents section" for him.

Thanks Again

Annie

0

Share this post


Link to post
Share on other sites

Hi Annie,

I just wanted to share that my Rheumy said that some viruses can cause a positive ANA. I had lots of joint pain and back pain last summer and I tested positive for a Rheumatoid Factor and a moderate, speckled ANA. I had the tested repeated and it came back the same. I felt so bad I started on a total body detoxificating and candida program. After six months my ANA titer and Rheumatoid Factor and both negative. I've worried a great deal but have had so many prayers. I really think I had so many health factors that my system was overloaded. I hope you find the answers and peace you need. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,418
    • Total Posts
      917,668
  • Topics

  • Posts

    • Italian pasta
      Get some celiac travel cards to print off and keep in your wallet.  Present them to your waiter.   http://www.celiactravel.com/cards/ Tell the airline that you need a gluten free meal, BUT take food with you because odds are the airlines will make a mistake.   As far as the wheat pasta.....some folks say the wheat is different.  I personally think they are kidding themselves.  There is no scientific proof that I have found to support this theory.  (Anyone want to present such data?)  Italy, from what I heard is great for celiacs.  I'll know for sure this summer!  I'll be there!   As usual, we plan on bringing some packable food, but we are good at shopping at grocery stores for food and picnicking when traveling.  I expect foods at grocery stores to be clearly marked as they were in Great Britain since they are part of the EU.  
    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
    • Gluten and panic attacks
      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,550
    • Most Online
      1,763

    Newest Member
    Tam Tam
    Joined