Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Another Newbie W/lots Of Questions
0

9 posts in this topic

I was just diagnosed with this a week ago. I couldn't get an appt with the dietary specialist until the end of the month, so in what little spare time I've had (I'm taking 10 credit hours in 2 months - can you say stressed out?!?!), I've been researching as much as I can. I've found a lot of things that are extremely confusing, though. Like on the list my doctor sent me about what I can and can't have - on the things I can have it says salad dressings, soups, pure instant or ground coffee, , cold cuts, yogurt, etc. But then on the list of things I can't have, it says commercial salad dressings, prepared soups, flavored instant coffee, cold cuts, flavored yogurt, etc. So I'm not sure what the differences are between those things. Also it says I shouldn't have buckwheat but then it says I can. Same thing with rice - it says I can't have packaged rice but then it suggests to have rice. It also says I shouldn't have anything that's seasoned but then it says it's ok. And oatmeal. I'm just very confused by all of this. Any help would be greatly appreciated!

~STARVING!!~

0

Share this post


Link to post
Share on other sites


Ads by Google:

You just have to check absolutely everything. Some salad dressings will be ok and others are not. Pretty much for everything that contains gluten, there is a gluten free version.

You can find info on so many great products on here and there are some brands that will clearly list wheat,rye,barley,oats on the label or will be safe. Those brands definitely help us out and they are listed on this site in numerous places(if you can't find it let me know)

Make sure products like makeup/shampoos/soaps and things that can get into your mouth in any way are checked for gluten.

I would stay away from oatmeal...Oats in the US are highly contaminated plus about 10% of people actually react to the protein called avenin in the oats even if they are uncontaminated....too risky for me.

If you need any help let me know and I would be glad to help you out. Hang in there though, it gets alot easier...you'll learn it very quick.

0

Share this post


Link to post
Share on other sites

Hi! Welcome to the board! Any questions you might have, fire away. Our motto is "No question is too stupid to ask", since navigating the gluten free world can be somewhat overwhelming at first. There's a bunch of really great people here who are always willing to help.

It sounds like you got a lot of confusing information! Basically, you have to live by one rule: READ EVERYTHING!!! There are some companies like Kraft who are really good at listing their ingredients and will clearly list if it has any wheat, rye, barley or oats in it. All of the salad dressings, bbq sauces etc. I use are Kraft, and their selection of things that are okay for us is really quite extensive!

Also, if you e-mail celiac3270 (our resident expert here.....), he has a list he can send you that is an extensive list from delphiforums of things that are okay for us. It's really useful and is broken down into convenient categories to make it easier.....

Make sure you read up on cross contamination also. There is a really good list on this site of ways to make your gluten free world safer (especially the kitchen.....).

Again, welcome to the board and I know the community here will be a wonderful resource for you.......

Karen

0

Share this post


Link to post
Share on other sites
So I'm not sure what the differences are between those things. Also it says I shouldn't have buckwheat but then it says I can.
I know that can be confusing at first. The safe list says you can have it and the forbidden list says you can't have it ;) When you see stuff like that, then you know that you have to double check the ingredients. For example you can find salad dressings, soups, pure instant or ground coffee, cold cuts, and yogurt that are gluten free and not gluten free. There are many companies that clearly indicate gluten in their ingredient lists like Kraft, McCormick, Hunt's-Wesson, Dove, ect. Some people on the board have the full list

Also it says I shouldn't have buckwheat but then it says I can.
Buckwheat by itself is gluten-free; however, it can be contaminated or mixed with wheat. I eat gluten free waffles made with buckwheat and have never reacted to them.

Also, I noticed that you had starving at the end of your post. I know at first it seems like you can't have anything at all and it seems like you are eating the same thing over and over. Trust me I've been there done that :D If you would like recipe ideas or meal ideas feel free to ask and I can give examples with all the safe products.

0

Share this post


Link to post
Share on other sites

You should try just eating fruits, vegetables, and plain meats to start with. That way you don't have to worry about eating gluten in processed foods while you are learning what you can and cannot have.

0

Share this post


Link to post
Share on other sites




Here is a link to a "A Gluten Free Diet Guide for Families" from the Childrens Digestive Health and Nutrition Foundation.

http://www.naspghan.org/assets/diseaseInfo...eeDietGuide.pdf

This will will help you get started with the gluten free diet and answer some of your questions.

I'll try to post some other helpful links later. Good Luck!

0

Share this post


Link to post
Share on other sites

Thank you so much, everyone. This is all a huge help. I haven't had time to get to the grocery store yet so pretty much all we have around here that I can eat is fruit (which I've been living on for a week!), rice and salad - none of which really fill you up so I've felt so hungry lately! I went through the fridge, freezer and pantry with my dad and showed him everything that he could have that I can't have anymore, plus I wanted to see what we had in there that I could have. Which isn't a whole lot! It's really amazing how many things have gluten in it. And it's no wonder now why I was so sick! All I lived on was gluten. I'd have cereal every morning, sandwiches every afternoon, and pizza or something like that for dinner, plus snacks like baked goods. Gluten gluten gluten!

I do have another question - I've seen whiskey on both the good and bad lists at various places online. Is that safe or not?

0

Share this post


Link to post
Share on other sites

I wouldn't be able to answer that as I am not a whiskey drinker (bad experience, drunker than a skunk in my teenage years from Canadian Club Whiskey - still can't stand the smell of whiskey...... anyway, enough of that!!!! :P ) Anyway, here is a list of alcoholic beverages that are gluten free:

http://forums.delphiforums.com/n/mb/messag...iac&msg=42463.1

It seems some are gluten-free, and some are not. e.g. Bushmills and Crown Royale are on there as okay.......

Cheers! ;)

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,778
  • Topics

  • Posts

    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,701
    • Most Online
      3,093

    Newest Member
    Dtroutmann
    Joined