Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Another Newbie W/lots Of Questions
0

9 posts in this topic

I was just diagnosed with this a week ago. I couldn't get an appt with the dietary specialist until the end of the month, so in what little spare time I've had (I'm taking 10 credit hours in 2 months - can you say stressed out?!?!), I've been researching as much as I can. I've found a lot of things that are extremely confusing, though. Like on the list my doctor sent me about what I can and can't have - on the things I can have it says salad dressings, soups, pure instant or ground coffee, , cold cuts, yogurt, etc. But then on the list of things I can't have, it says commercial salad dressings, prepared soups, flavored instant coffee, cold cuts, flavored yogurt, etc. So I'm not sure what the differences are between those things. Also it says I shouldn't have buckwheat but then it says I can. Same thing with rice - it says I can't have packaged rice but then it suggests to have rice. It also says I shouldn't have anything that's seasoned but then it says it's ok. And oatmeal. I'm just very confused by all of this. Any help would be greatly appreciated!

~STARVING!!~

0

Share this post


Link to post
Share on other sites


Ads by Google:

You just have to check absolutely everything. Some salad dressings will be ok and others are not. Pretty much for everything that contains gluten, there is a gluten free version.

You can find info on so many great products on here and there are some brands that will clearly list wheat,rye,barley,oats on the label or will be safe. Those brands definitely help us out and they are listed on this site in numerous places(if you can't find it let me know)

Make sure products like makeup/shampoos/soaps and things that can get into your mouth in any way are checked for gluten.

I would stay away from oatmeal...Oats in the US are highly contaminated plus about 10% of people actually react to the protein called avenin in the oats even if they are uncontaminated....too risky for me.

If you need any help let me know and I would be glad to help you out. Hang in there though, it gets alot easier...you'll learn it very quick.

0

Share this post


Link to post
Share on other sites

Hi! Welcome to the board! Any questions you might have, fire away. Our motto is "No question is too stupid to ask", since navigating the gluten free world can be somewhat overwhelming at first. There's a bunch of really great people here who are always willing to help.

It sounds like you got a lot of confusing information! Basically, you have to live by one rule: READ EVERYTHING!!! There are some companies like Kraft who are really good at listing their ingredients and will clearly list if it has any wheat, rye, barley or oats in it. All of the salad dressings, bbq sauces etc. I use are Kraft, and their selection of things that are okay for us is really quite extensive!

Also, if you e-mail celiac3270 (our resident expert here.....), he has a list he can send you that is an extensive list from delphiforums of things that are okay for us. It's really useful and is broken down into convenient categories to make it easier.....

Make sure you read up on cross contamination also. There is a really good list on this site of ways to make your gluten free world safer (especially the kitchen.....).

Again, welcome to the board and I know the community here will be a wonderful resource for you.......

Karen

0

Share this post


Link to post
Share on other sites
So I'm not sure what the differences are between those things. Also it says I shouldn't have buckwheat but then it says I can.
I know that can be confusing at first. The safe list says you can have it and the forbidden list says you can't have it ;) When you see stuff like that, then you know that you have to double check the ingredients. For example you can find salad dressings, soups, pure instant or ground coffee, cold cuts, and yogurt that are gluten free and not gluten free. There are many companies that clearly indicate gluten in their ingredient lists like Kraft, McCormick, Hunt's-Wesson, Dove, ect. Some people on the board have the full list

Also it says I shouldn't have buckwheat but then it says I can.
Buckwheat by itself is gluten-free; however, it can be contaminated or mixed with wheat. I eat gluten free waffles made with buckwheat and have never reacted to them.

Also, I noticed that you had starving at the end of your post. I know at first it seems like you can't have anything at all and it seems like you are eating the same thing over and over. Trust me I've been there done that :D If you would like recipe ideas or meal ideas feel free to ask and I can give examples with all the safe products.

0

Share this post


Link to post
Share on other sites

You should try just eating fruits, vegetables, and plain meats to start with. That way you don't have to worry about eating gluten in processed foods while you are learning what you can and cannot have.

0

Share this post


Link to post
Share on other sites




Here is a link to a "A Gluten Free Diet Guide for Families" from the Childrens Digestive Health and Nutrition Foundation.

http://www.naspghan.org/assets/diseaseInfo...eeDietGuide.pdf

This will will help you get started with the gluten free diet and answer some of your questions.

I'll try to post some other helpful links later. Good Luck!

0

Share this post


Link to post
Share on other sites

Thank you so much, everyone. This is all a huge help. I haven't had time to get to the grocery store yet so pretty much all we have around here that I can eat is fruit (which I've been living on for a week!), rice and salad - none of which really fill you up so I've felt so hungry lately! I went through the fridge, freezer and pantry with my dad and showed him everything that he could have that I can't have anymore, plus I wanted to see what we had in there that I could have. Which isn't a whole lot! It's really amazing how many things have gluten in it. And it's no wonder now why I was so sick! All I lived on was gluten. I'd have cereal every morning, sandwiches every afternoon, and pizza or something like that for dinner, plus snacks like baked goods. Gluten gluten gluten!

I do have another question - I've seen whiskey on both the good and bad lists at various places online. Is that safe or not?

0

Share this post


Link to post
Share on other sites

I wouldn't be able to answer that as I am not a whiskey drinker (bad experience, drunker than a skunk in my teenage years from Canadian Club Whiskey - still can't stand the smell of whiskey...... anyway, enough of that!!!! :P ) Anyway, here is a list of alcoholic beverages that are gluten free:

http://forums.delphiforums.com/n/mb/messag...iac&msg=42463.1

It seems some are gluten-free, and some are not. e.g. Bushmills and Crown Royale are on there as okay.......

Cheers! ;)

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,639
    • Total Posts
      918,435
  • Topics

  • Posts

    • Anxiously waiting
      Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,732
    • Most Online
      1,763

    Newest Member
    SueJ
    Joined