Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ideas To Speed Up Recovery From Contamination?
0

5 posts in this topic

Lately I have been VERY sensitive to any kind of contamination or cross contamination. Meaning, I am showing immediate and obvious/strong ill reactions after the slightest ingestion of gluten. Just the tiniest flake of wheat germ or slight dusting of it on the table-to-my-food-in-my-mouth kind of a thing. It NEVER used to be like that. I have 2 kids and a husband that do NOT eat gluten free and we've never had to worry about cross contamination but now it's terrible bc I stress about cooking their seperate pot of spaghetti (yes, my husband still insists even though we now have VERY good spaghetti...kids don't mind). And I've had to get a new toaster just for my bread.

I think stress has something to with my new 'sensitivity'. Because I was diagnosed 10 years ago and have NEVER been this reactive to small amounts. I get that I've probably had underlying issues as a result of cross contamination, which is probably just as dangerous and this physical reaction is likely a blessing in disguise to get me to really pay attention.

Well I AM!!!

My question is... how to I DEAL with the physical symptoms in the meantime? I feel like I cannot get back on my feet for weeks. (magic number seems to be 2 weeks after contamination as long as I am VERY strict).

Fatigue, cramps that are really bad one day and totally fine the next, then hit me bad the next, IBS which is like PMS of the intestines... can't make up its mind if I have constipation or the opposite, migraines and tension headaches, BRAIN FOG, gas (Lord help me), hormonal fluctuations which cause this 30yo to break out like a 14yo and also I'll miss my period entirely. I am also a runner and am training for a marathon- and my joints begin hurting TERRIBLY (hips and knees) so this cripples my long runs for two weeks which is uncool.

HELP.

I need a super pill!!!!

Any ideas?

I need help trasitioning and smoothing over these horrible effects.

I already practice a VERY strict regimen of eat well ----> exercise well ----> sleep well. Purely organic whole foods and a dynamic round of exercise and no matter what I sleep about 8-9 hours a night. That has always worked for me to stay strict with those 3 elements but when I get glutened my LIFE is upside down.

:(

0

Share this post


Link to post
Share on other sites


Ads by Google:

My glutenings used to be like that. Now that I am super gluten free my glutenings only last a day or so, but that is only glutening from very small amounts of gluten like a tiny bit of contamination of a gluten free food. We had to go to a gluten free household years ago. We just couldn't do it without me getting sick. Probiotics will help some. I hope that you can get your family to cooperate.

1

Share this post


Link to post
Share on other sites

Hi. I just came across a new "cross-contamination" definition which is much broader and may explain some of our symptoms.

I came across this article by Donna Gates about coffee and gluten reactions. .. there is a sinus-gut connection, added to neurodegeneration, inflammation and cross-reactive inflammatory triggers (something new to me):

http://us2.campaign-archive1.com/?u=afe3f6ece59748c3a045bc4b7&id=1d6f3d26d0&e=[uNIQID]

"And solid claims have been made that coffee reduces risk of Alzheimer's, dementia, and Parkinson's. (5) However, when working with a permeable gut, it is essential to consider the latest research regarding gluten sensitivity.

There is such a thing as gluten-associated sensitivity and cross-reactive foods that trigger a systemic gluten-like inflammatory response. So far, Cyrex Labs is the only testing facility that checks for the appropriate antibodies. Cyrex researchers have discovered that coffee has the highest rate of cross-reaction with gluten. Meaning, it tops dairy as a cross-reactive inflammatory trigger.

Perhaps a little less surprising is that dairy shows up as commonly cross-reactive because its protein structure is so similar to gluten. An array of testing for cross-reactivity can determine which foods will trigger a gluten-sensitive response in your body. (6) It is important to build the healthy microflora in the gut with coconut water kefir or probiotic beverages <or acidophilus> in order to lower the inflammatory response.

What does a permeable and inflamed gut have to do with brainpower and neurodegeneration?

Well, a lot. Think of the gut and the brain as best friends that are constantly communicating via the vagus nerve. Another reason why they are such good friends is that they are made of the same stuff, neurons and glial cells.

When glial cells get the inflammatory signal, a sort of excited frenzy of cell death occurs. If these episodes of cell death happen frequently, irreversible neurodegeneration follows. In short: fire in the gut, fire in the brain - both have the potential to lead to neurodegeneration.

Therefore, while studies have observed a positive link between coffee and a reduced risk of Alzheimer's, dementia, and Parkinson's, if you have any kind of systemic inflammatory condition, gut dysbiosis, an autoimmune condition, or food sensitivity, consider the most recent research that shows that the proteins in coffee are cross-reactive with gluten antibodies." footnote: http://drknews.com/what-type-of-gluten-intolerance-do-you-have/

I have found a link from my nose to my gut. This is an example of how the different parts of our body are connected. When I find my nose running, like yesterday after I was exposed to beach fire smoke, today my sinuses are inflamed. I am not digesting food well today. Perhaps the 1/4 cup coffee I had yesterday was connected to my hypersensitivity today. ???

I have a totally gluten free/dairy free kitchen and have been staying off of "gluten free" foods, except for a few that I am re-testing one at a time. I was having a reaction like you, but I was not figuring out where it was coming from. I now know some of the products I was using have been causing a reaction.

The protocol I have been successfully using is to drink mangosteen juice daily as it is anti-inflammatory, anti-biotic and anti-fungal. It has helped my gut re-balance faster than anything. I also take chlorella 1 tsp 2 X day half an hour before the juice. I also take a powerful acidophilus (TheraLac) at night. Occasionally I do an Ayurvedic panchakarma intestinal cleanse (Dr. Lad's book) every 4 - 6 months. I use bioidentical hormones daily. This combination with strict avoidance of gluten, has allowed me to feel well most of the time now and my recovery times have gotten very short if I do get into a little gluten unknowingly. I, too, have my own toaster in case anyone brings wheat bread into the house. I have quit eating gluten free bread for now until I figure out if it is something I am reacting to.

Lately I have been VERY sensitive to any kind of contamination or cross contamination. Meaning, I am showing immediate and obvious/strong ill reactions after the slightest ingestion of gluten. Just the tiniest flake of wheat germ or slight dusting of it on the table-to-my-food-in-my-mouth kind of a thing. It NEVER used to be like that. I have 2 kids and a husband that do NOT eat gluten free and we've never had to worry about cross contamination but now it's terrible bc I stress about cooking their seperate pot of spaghetti (yes, my husband still insists even though we now have VERY good spaghetti...kids don't mind). And I've had to get a new toaster just for my bread.

I think stress has something to with my new 'sensitivity'. Because I was diagnosed 10 years ago and have NEVER been this reactive to small amounts. I get that I've probably had underlying issues as a result of cross contamination, which is probably just as dangerous and this physical reaction is likely a blessing in disguise to get me to really pay attention.

Well I AM!!!

My question is... how to I DEAL with the physical symptoms in the meantime? I feel like I cannot get back on my feet for weeks. (magic number seems to be 2 weeks after contamination as long as I am VERY strict).

Fatigue, cramps that are really bad one day and totally fine the next, then hit me bad the next, IBS which is like PMS of the intestines... can't make up its mind if I have constipation or the opposite, migraines and tension headaches, BRAIN FOG, gas (Lord help me), hormonal fluctuations which cause this 30yo to break out like a 14yo and also I'll miss my period entirely. I am also a runner and am training for a marathon- and my joints begin hurting TERRIBLY (hips and knees) so this cripples my long runs for two weeks which is uncool.

HELP.

I need a super pill!!!!

Any ideas?

I need help trasitioning and smoothing over these horrible effects.

I already practice a VERY strict regimen of eat well ----> exercise well ----> sleep well. Purely organic whole foods and a dynamic round of exercise and no matter what I sleep about 8-9 hours a night. That has always worked for me to stay strict with those 3 elements but when I get glutened my LIFE is upside down.

:(

0

Share this post


Link to post
Share on other sites

I take mangosteen juice daily a long with probiotics and alpha lipoic acid. This combination has done wonders for me. Good luck :)

0

Share this post


Link to post
Share on other sites

This may not help, but our GI prescribed hyoscyamine for my daughter to take whenever she became ill from a gluten infraction. Typically, a reaction knocks her out for about 7 - 10 days. The first two are usually in bed with stomach cramps, so severe she can't walk or sit straight. She literally moans in her sleep. The diarrhea is usually the main problem and occasional vomiting. She's a very, very sick child during those times. The pain is the worst and what I sought help to relieve.

We've tried it twice now and it does seem to be a magic pill. The first time, she ate half a bagel. I had bought several bags of gluten-free ones and somehow picked up one that wasn't. My husband made breakfast, didn't notice it and she ate a wheat bagel. The reaction came about thirty minutes later and she was vomiting at school and unable to stand. She was doubled over in pain but within an hour of taking the pill, it stopped. She took it for two days and was able to move around without incident.

Because I'm a natural skeptic, I decided that it worked so well because she vomited everything up.

A couple of weeks ago, we went to a restaurant to celebrate my step-mom's birthday. The chips on the table had obviously been fried with something else because halfway through the meal, she became paler and paler and finally doubled over and started crying. Same thing, we got home, took the medicine and within a couple of hours she was back on her feet and able to participate in family events.

Technically, it's not supposed to prevent diarrhea, but she didn't have diarrhea either time.

She's not considered a super sensitive, but her sensitivity is quite high. If you're thinking of medication, it might be worth a try.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,641
    • Total Posts
      921,558
  • Topics

  • Posts

    • They are big on selling books -. They try to spam a lot forums and FB groups. why can't you eat nuts, nut flours, quinoa, hummus and beans? I think I missed that. Those are a good source of protein.  If you can't digest lactose look for a lactose free cheese - like one made from yogurt. at first,I thought life was over.  But with a few years of experience, I have found it isn't that big of a deal. It helps to have an attitude of "I am not here for the food.  I am here for the wine ( or the company . ). Also helps to not care what people think - "I don't care if you think it's odd that I brought my own lunch to the funeral luncheon. "( And it helps that my lunch looks better than theirs lol.)
    • Gracey, It am a mother and I am going to give you some  valuable advice.  You need to keep and document everything related to your health.  Every lab test result, notes from your doctor's visits, etc.  Why?  Because only you are your best health advocate (except for your mom).  Doctors come and go, but it is up to you to manage your health.   When I changed insurance and doctors, I had copies of all my medical records in hand.  My new PCP was impressed.  There was no doubt that I had celiac disease, fractures, Hashimoto's and diabetes, anemia, etc.  I had physical proof.  As an result, she was quick to refer me to a new GI  and order tests to measure my progress  (e.g bone scans).  My family health history chart helped not just me, but other family members.   So, find out if biopsies were taken during your endoscopy.  Get the pathologist's report.  See if your doctor checked for other issues besides celiac disease.   Hugs!  
    • I don't do grieving, bad enough for something that's been taken away in the past but to know my future is pretty much gone now just feels too much. The only time I've forgot about the unfolding nightmare was during my hour or so of sport so need to cling onto that at the moment or I fear going to a very dark place indeed. Yup that SCD site is terrifying, still can't make up my mind if they're giving out useful information to genuinely help people or using scare tactics to sell their books etc. 
    • I agree with all the advice you have been given.  It is excellent!   I just want to add that things will get better.  There is a huge grieving process to go through.  Do not fight it.  You have a right to grieve as your health and lifestyle will change, but you will adapt!  Exercise gently until you feel a bit better.  There is plenty of time to exercise hard later.  Taken this advice from a gal who just rode 40 miles (no biggie you say) this morning  on her bike through the Santa Ana winds (better known as the Devil's winds!).  But I am three years into my recovery.  I took it easy the first six months because I was anemic.  I teach few exercise classes, bike, swim and run and I am in my 50's.   The SCD website?  It can scare the (bleep) out of you.  There was one point that I took from the site and that was to stick to whole nourishing foods.  No rocket science -- just common sense.    
    • Thanks for the replies so far everyone, much appreciated Great, another doctor gets it wrong, how many more times can they make a mess of this diagnosis process?! Bloating had gone down a bit in these first few days of cutting the gluten so I guess expect that to come back. It's one way to have a farewell tour of the gluten foods I guess - if a little or a lot makes no difference may as well go all-in... The doctors didn't diagnose this at all, Google did. If I trusted in the health professionals I'd be blaming the symptoms all on stress and having counselling for it whilst the fire raged on inside me due to a clinical condition they'd missed. Just glad one of doctors agreed to run the test on second time of asking to keep me quiet as much as anything. Believe me I've read that newbie thread multiple times, as well as numerous others around the web. Been doing nothing but since Tuesday when the blood test results came back and each time I go into the comments sections a little bit more of me gives up inside. Seems so many don't ever heal and so many associated complications too. The reality looks bleak apart from a lucky few it seems. In the nicest possible way the vegetarian choice is non-negotiable, it's a core part of what I believe and the thought of eating any form of animal \ fish flesh would make me physically sick (sorry meat eaters) so will have to find some way around it, how I don't know yet. Perhaps lots of this... http://www.pulsin.co.uk/pea-protein-isolate.html The cooking bit is a concern as it's something none of us do well at home, adds to the feeling of being completely lost right now. I kick myself for the decision that lead to the stress as I could've avoided all this. The only thing I can cling onto there is that I was having some pains in the side before that time which I blamed on a muscle strain... maybe that was the early stages, in which case I could feel a bit better knowing it had just come on gradually. With the biopsy and gluten from what I read the villi take a long time to heal up so they'd still see that. With the blood test result as definitive as it was surely the disease is pretty much confirmed? How can it heal enough for non eating gluten to throw a biopsy result yet on the flip side take over a year to heal (that sounds like the best case scenario time-wise from what I've read). Not suggesting anyone is wrong for one second but need to understand how that works with what's going on inside to make any sense of this situation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,644
    • Most Online
      3,093

    Newest Member
    Jross69
    Joined