Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

+ Blood Test, - Biopsy And More.
0

6 posts in this topic

My daughter was positive on a blood test and negative on a biopsy. She is IgA deficient. She is also pre-diabetic.

Question #1 what does that mean???

My son has been having horrible stomach pains for 2 years. The Dr. was only willing to check him if my daughters biopsy came back positive. His blood test came back negative but he is severely IgA deficient and that changes blood tests.

Question #2 Should I push the issue and talk to the Dr. AGAIN about checking my son or just remove glutin from his diet on my own.

My husband and I are very frustrated with all this. Our son has horrible joint pain, horrible stomach pain, asthma, IgA deficiency, allergies (wheat, oats and eggs). We don't know what to do or where to turn to get our boy some help. If our daughter would have been positive in the biopsy then our son would be checked next. Now we are left to "monitor his pain" for a few more months. There is only 1 pediatric gastro in the area otherwise we would get a 2nd opinion.

PLEASE HELP!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi ship.

The Dr. who did the biopsy may have missed the damaged areas, damage can be patchy, or maybe didn't do enough biopsies. Since her blood was positive you should try gluten-free and see if it helps her.

Can you list the blood tests and ranges for your children? There are many people here that are very good at understanding the results. Also to make sure they have had all the correct testing for celiac. Other testing you could have done is vitamin and mineral levels to be sure they are not deficient in any of those. Vitamin deficiencies are also symptoms.

1

Share this post


Link to post
Share on other sites

My daughter was positive on a blood test and negative on a biopsy. She is IgA deficient. She is also pre-diabetic.

Question #1 what does that mean???

My son has been having horrible stomach pains for 2 years. The Dr. was only willing to check him if my daughters biopsy came back positive. His blood test came back negative but he is severely IgA deficient and that changes blood tests.

Question #2 Should I push the issue and talk to the Dr. AGAIN about checking my son or just remove glutin from his diet on my own.

My husband and I are very frustrated with all this. Our son has horrible joint pain, horrible stomach pain, asthma, IgA deficiency, allergies (wheat, oats and eggs). We don't know what to do or where to turn to get our boy some help. If our daughter would have been positive in the biopsy then our son would be checked next. Now we are left to "monitor his pain" for a few more months. There is only 1 pediatric gastro in the area otherwise we would get a 2nd opinion.

PLEASE HELP!!!

I just have a question. Are you seeing a Gastro Dr. or is it your Pediatrician that won't do the testing? As mom's we know when our children are hurting and it is hard when we don't get the help we need.

0

Share this post


Link to post
Share on other sites

Blood test results for things that were a little off are:

Calcium 9.8 Normal being 8.0-9.5

RDW-SD 34.7 Normal Being 36.4-54.5 I don't know what that is

Lymphocytes 18.5 Normal Being 30.0-65.0 Don't know what that is

Gliadin IGG AB 15.0 Nromal under 10

IGA 63 Normal being 64-246

Hemoglobin 6.0 Normal being 4.0-5.7

Estimated Average Glucose 126

ALT (SGPT) 28 Normal 30-65 Don't know what that is

We are currently seeing a Pediatric Gastro for 2 of my kids. We started off with my son but his blood work came back normal. His IgA is 12 with 64 being the low normal. The Gastro would only be willing to do the Endo if my daughters biopsy came back normal. My daughter has only been in pain for less than 3 months. My son has been in pain for 2 years but has never been checked out. We are very frustrated.

Thank you both for looking at my post.

0

Share this post


Link to post
Share on other sites

Blood test results for things that were a little off are:

Calcium 9.8 Normal being 8.0-9.5

RDW-SD 34.7 Normal Being 36.4-54.5 I don't know what that is

Lymphocytes 18.5 Normal Being 30.0-65.0 Don't know what that is

Gliadin IGG AB 15.0 Nromal under 10

IGA 63 Normal being 64-246

Hemoglobin 6.0 Normal being 4.0-5.7

Estimated Average Glucose 126

ALT (SGPT) 28 Normal 30-65 Don't know what that is

We are currently seeing a Pediatric Gastro for 2 of my kids. We started off with my son but his blood work came back normal. His IgA is 12 with 64 being the low normal. The Gastro would only be willing to do the Endo if my daughters biopsy came back normal. My daughter has only been in pain for less than 3 months. My son has been in pain for 2 years but has never been checked out. We are very frustrated.

Thank you both for looking at my post.

Have you considered taking him to a different Dr. ?

0

Share this post


Link to post
Share on other sites




Do you have a copy of your son's test results? A serum IGA of 12 is extremely low. How many of the IGG tests did they run? I notice you listed only Gliadin IGG for your daughter. What tests did they run on your son? You should be looking on there for tTG, EMA and DGP. These are the other tests that constitute the celiac panel, and since your son is not an IGA producer they should have run the IGG versions of all these.

I believe the ALT is a liver function test.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,357
    • Total Posts
      920,528
  • Topics

  • Posts

    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)  
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
    • I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told me to stay off gluten though, and said she wants to do more allergy testing (her next open testing appt is in 6 months!!). I know I'm not the DR, but I dont think it's allergies...without a doubt, my skin begins clearing about 2 weeks post gluten-free diet...this is without changing anything else in my lifestyle. And when i had to go back on gluten before my biopsy, it took about a week, but did reappear. Now, about 2 weeks post biopsy and gluten-free, it had begun clearing until i worked outside all day in heat, humidity,  sweat etc and it has definitely irritated all the places that were healing (not new breakouts, just aggravating what was going away!). All that being said, i have a friend who is an MD( who's hobby is to attend conferences on skin conditions!), and she has told me that without a doubt, I have celiac/DH.  I think I just feel like I need test results and paperwork to show for it...especially to show family members who are unsupportive (gross understatement!) of the extreme changes I've had to make!
    • Sorry ! I have never cruised before.  Just wanting to follow your topic.  Good luck! Have a great,  safe vacation.  
    • Hi there, I hope you're all having a good day! I'll be heading on a week-long Carnival cruise shortly and had a few questions: -What is the tipping protocol? I've prepaid gratuities, but feel like the food request will warrant something extra. Should I tip the headwaiter? Hostess? Regular waiter? Chef? Those cooking at, say, the sandwich or pasta bars? If so, how much is appropriate, and should I tip at the beginning of the cruise, the end, or split it up? -It looks like the main dining room will be closed during lunch hours on most days. Any recommendations on safe bets for midday meals? I'll be on the Carnival Sunshine, for what that's worth. Thank you so much for any information you can share!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined