Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Common Is Gastroparesis Here?
1 1

14 posts in this topic

Hello,

After discovering celiac with an upper endoscopy (it was a silent disease for me), at the same time they discovered antral gastritis and gastroparesis. The gastroparesis continues to worsen even though I've been gluten free since August. Gastritis remains the same. I now have a positive ANA (1:320), so there might be a connective tissue disease we're looking for, maybe sjogren's. But I have two questions:

1. Can celiac (even though gluten free for nearly 8 months) cause a positive ANA of 1:320, speckled?

2. Does celiac cause gastroparesis, and if so would it worsen after being gluten free for nearly 8 months?

Anyone with similar experience?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Maybe I got my answer by no one replying. Maybe celiac and gastroparesis aren't really connected. And maybe celiac and a positive ANA aren't connected either. It seems we're looking at a connective tissue disease.

0

Share this post


Link to post
Share on other sites

Hi there

I think quite a few suffered from it before going gluten free. How strict is your diet - any chance of small amounts of gluten getting in? Have you had follow up tests to check blood antibodies or intestine to see if you are healing?

I was " diagnosed" with non ulcerative gastoparesis while trying to figure out what was wrong with me. Turns out I was gluten intolerant instead!

Hope you figure out what the problem is. You do know there is often greater chance of developing other auto-immune diseases like sjorens, when you have celiac? Bu if you are gluten-free it shouldn't be such a problem still?

0

Share this post


Link to post
Share on other sites

Chooper: When I hwas dignosed with Celiac in 2005 [by an upper GI, blood test neg.] My Dr. had me do the test for gastroparesis[stomach empting]. Showed I had it.

So no more salds. Woody

0

Share this post


Link to post
Share on other sites

I also have Gastroparesis diagnosed by the capsule test. In addition I have GERD, hiatal hernia, IBS. I am dairy free and gluten free.

0

Share this post


Link to post
Share on other sites




My daughter was diagnosed with it at about the same time as she was diagnosed with celiac disease. Doc thought it was related. He put her on a med for a couple of months to help motility until she had a chance to heal. She has intermittent issues...when glutened and strangely enough about once a month around the same time which I think may be hormonal.

0

Share this post


Link to post
Share on other sites

I definitely have gastroparesis, and that diagnosis came a year after being strictly gluten-free. About 4 months later I discovered I had several food allergies, and I thought that was the cause of the gastroparesis. It wasn't. If I'm gluten- and allergy-free and do my best to eat what I need for my gastroparesis, I'm mostly okay. Still have good days and bad days, and it's a delicate balance, but I do feel better.

0

Share this post


Link to post
Share on other sites

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.

0

Share this post


Link to post
Share on other sites

Thank you all for your replies. If it turns out I don't have another AI disease causing it, I'll take comfort in knowing there are others with celiac and GP! Thank you!

0

Share this post


Link to post
Share on other sites

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?

0

Share this post


Link to post
Share on other sites

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?

Sorry, just saw your question! I prepare most everything from scratch using gluten-free flours, like muffins and bread. There are a few gluten-free prepackaged items I buy, like Riceworks crackers and a couple other snacks. I avoid dairy except an occasional indulgence in a hard cheese. How do you 'test' your food?

I just got the diagnosis this week of limited scleroderma and hoshimotos, so maybe that's contributing to my tummy problems. I guess only time will tell!

0

Share this post


Link to post
Share on other sites

Hi,

I got diagnosed with Celiac first and when I only improved halfway, I got tested and diagnosed with gastroparesis, the medicine works well, but it has its own diet, no greasy foods or strawberry seeds, many things, I am two different diets for Celiac and GP. GP diet is important too. I take Eyrthmycin Tabs as well for GP.

0

Share this post


Link to post
Share on other sites

Welcome Dawn!  Since celiac disease interferes with the ability to absorb vitamins, it can cause nerve problems.  It's a good idea to be tested for vitamins levels at the beginning of the gluten-free diet, so we know if we are lacking any.  Some people are low in B vitamins, and that can cause nerve issues.  Which could cause gastroparesis.  So might be worth looking at.

0

Share this post


Link to post
Share on other sites

I have gastroparisis, or go through phases of it [have had the testing for it.]  I think its related to both celiac and my diabetes. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      104,344
    • Total Posts
      920,486
  • Topics

  • Posts

    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined