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How Common Is Gastroparesis Here?


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10 replies to this topic

#1 Chopper

 
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Posted 24 March 2011 - 12:46 PM

Hello,

After discovering celiac with an upper endoscopy (it was a silent disease for me), at the same time they discovered antral gastritis and gastroparesis. The gastroparesis continues to worsen even though I've been gluten free since August. Gastritis remains the same. I now have a positive ANA (1:320), so there might be a connective tissue disease we're looking for, maybe sjogren's. But I have two questions:

1. Can celiac (even though gluten free for nearly 8 months) cause a positive ANA of 1:320, speckled?

2. Does celiac cause gastroparesis, and if so would it worsen after being gluten free for nearly 8 months?

Anyone with similar experience?
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#2 Chopper

 
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Posted 26 March 2011 - 06:01 AM

Maybe I got my answer by no one replying. Maybe celiac and gastroparesis aren't really connected. And maybe celiac and a positive ANA aren't connected either. It seems we're looking at a connective tissue disease.
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#3 Marz

 
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Posted 26 March 2011 - 09:58 PM

Hi there

I think quite a few suffered from it before going gluten free. How strict is your diet - any chance of small amounts of gluten getting in? Have you had follow up tests to check blood antibodies or intestine to see if you are healing?

I was " diagnosed" with non ulcerative gastoparesis while trying to figure out what was wrong with me. Turns out I was gluten intolerant instead!

Hope you figure out what the problem is. You do know there is often greater chance of developing other auto-immune diseases like sjorens, when you have celiac? Bu if you are gluten-free it shouldn't be such a problem still?
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Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#4 Woody

 
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Posted 27 March 2011 - 02:44 PM

Chooper: When I hwas dignosed with Celiac in 2005 [by an upper GI, blood test neg.] My Dr. had me do the test for gastroparesis[stomach empting]. Showed I had it.
So no more salds. Woody
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#5 Nor_TX

 
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Posted 28 March 2011 - 10:06 AM

I also have Gastroparesis diagnosed by the capsule test. In addition I have GERD, hiatal hernia, IBS. I am dairy free and gluten free.
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Gluten Intolerance, Colitis, IBS, Lactose and Casein Intolerance, Gastro-Paresis, GERD, Arthritis. Taking Remicade and Asacol, 2 Prilosec/day among other meds. Officially a senior citizen! New knee is doing well.. now about that other knee...

Food is in my dreams and in my nightmares!

#6 Darn210

 
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Posted 28 March 2011 - 10:44 AM

My daughter was diagnosed with it at about the same time as she was diagnosed with celiac disease. Doc thought it was related. He put her on a med for a couple of months to help motility until she had a chance to heal. She has intermittent issues...when glutened and strangely enough about once a month around the same time which I think may be hormonal.
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#7 Cinderella10

 
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Posted 28 March 2011 - 11:03 AM

I definitely have gastroparesis, and that diagnosis came a year after being strictly gluten-free. About 4 months later I discovered I had several food allergies, and I thought that was the cause of the gastroparesis. It wasn't. If I'm gluten- and allergy-free and do my best to eat what I need for my gastroparesis, I'm mostly okay. Still have good days and bad days, and it's a delicate balance, but I do feel better.
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Celiac dx May, 2009 via bloodwork

Allergy testing done 10/7/10, responded to:

Beef, Chicken, Eggs (White & Yolk), Milk, Bananas, Carrots, Corn

I'm currently working on an elimination diet to figure out what are actually problems and in what amounts.

#8 Chopper

 
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Posted 28 March 2011 - 11:59 AM

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.
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#9 Chopper

 
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Posted 28 March 2011 - 12:01 PM

Thank you all for your replies. If it turns out I don't have another AI disease causing it, I'll take comfort in knowing there are others with celiac and GP! Thank you!
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#10 deezer

 
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Posted 30 March 2011 - 05:48 PM

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.


How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?
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For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. - John 3:16

#11 Chopper

 
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Posted 31 March 2011 - 12:36 PM

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?


Sorry, just saw your question! I prepare most everything from scratch using gluten-free flours, like muffins and bread. There are a few gluten-free prepackaged items I buy, like Riceworks crackers and a couple other snacks. I avoid dairy except an occasional indulgence in a hard cheese. How do you 'test' your food?

I just got the diagnosis this week of limited scleroderma and hoshimotos, so maybe that's contributing to my tummy problems. I guess only time will tell!
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