Gluten Intolerance? Ibs? Or Both?
Posted 25 March 2011 - 10:07 AM
I went to an allergist and was tested for all food allergies, I have NO allergies to anything else including wheat,milk, eggs, corn, etc.. (didn't bother to test for gluten since it would be negative anyways with no gluten diet). He said that he is not actually convinced I have gluten intolerance, that he leans more to IBS since I have boughts of constipation once a week the day before I have the diarrhea. He said wheat would have inflamed the IBS in the same manner as if I had GI. He suggested I go on high doses of fiber, see if the attacks go away, and then even possibly re-introduce gluten just as a test to see if it was simply IBS all along.
I was hoping someone would have any experience for me with these two. Is it possible it's just been IBS (which is inflamed with wheat and dairy and stress?) Or does GI go hand in hand with IBS frequently and I may just have both? I have a few months before we do the re-intro diet..and the suspense of whether I am not actually GI is killing me, lol. Is there any way to know the difference?
Posted 25 March 2011 - 12:28 PM
IBS is a symptom of something else, you have an irritable bowel from something.
I think if you really buckle down you will start to feel better. You need to not use the same condiments that have had a gluten knife in them- peanut butter, jelly, mustard, mayo, butter, etc. You will need a new toaster-because of gluten crumbs- and if your non-stick pans are scratched you will need your own new pans for gluten-free only, any wooden kitchen ware that has had gluten containing foods on it is contaiminated (CC) and can make you sick, scratched plastic needs to be replaced also. If your SO eats gluten you can get CC from kissing them before they have brushed their teeth. There are some people here that 'just a crumb' will make them very sick.
I hope you are able to get some answers so you can get better.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.
Posted 25 March 2011 - 01:21 PM
With a family history of celiac that is far more likely to be the culprit and I would advise you, as dixiebell has, to get really scrupulous about eliminating the gluten, including from all personal care products like lip gloss, toothpaste, hand lotion, shampoo, etc., in addition to what dixiebell mentioned. Check all scrips and OTC meds for gluten too. You have to get it ALL!
Good luck on your detective work. It worked before - it can work again!
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
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