Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Intolerance? Ibs? Or Both?
0

3 posts in this topic

2 years ago after finding out there was a history of celiac in my family (grandfather) and me having celiac symptoms (explosive diarrhea, painful gas, and infertility), my doc put me on a gluten-free diet and my symptoms went away AND I got pregnant within 4 weeks (after 7 year drought). Now 2 years later after still being gluten free, I am having severe attacks of painful gas and diarrhea. Since I have occasionally "cheated" once a week over the last 2 years with mild forms like soy sauce, or a single cookie in one day, any random attacks I've had I attributed to the cheating. But now being 100% gluten free for 5 months, there is no reason for it.

I went to an allergist and was tested for all food allergies, I have NO allergies to anything else including wheat,milk, eggs, corn, etc.. (didn't bother to test for gluten since it would be negative anyways with no gluten diet). He said that he is not actually convinced I have gluten intolerance, that he leans more to IBS since I have boughts of constipation once a week the day before I have the diarrhea. He said wheat would have inflamed the IBS in the same manner as if I had GI. He suggested I go on high doses of fiber, see if the attacks go away, and then even possibly re-introduce gluten just as a test to see if it was simply IBS all along.

I was hoping someone would have any experience for me with these two. Is it possible it's just been IBS (which is inflamed with wheat and dairy and stress?) Or does GI go hand in hand with IBS frequently and I may just have both? I have a few months before we do the re-intro diet..and the suspense of whether I am not actually GI is killing me, lol. Is there any way to know the difference?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is possible for you to be intolerant, which is not the same as an allergy, to something else. I would stay away from dairy to start with and then if nothing changes maybe take soy out too. If in fact you do have celiac disease, then your villi in your small intestine are damaged and by cheating you have continued to do damage. You have to be 100% gluten-free for this to work.

IBS is a symptom of something else, you have an irritable bowel from something.

I think if you really buckle down you will start to feel better. You need to not use the same condiments that have had a gluten knife in them- peanut butter, jelly, mustard, mayo, butter, etc. You will need a new toaster-because of gluten crumbs- and if your non-stick pans are scratched you will need your own new pans for gluten-free only, any wooden kitchen ware that has had gluten containing foods on it is contaiminated (CC) and can make you sick, scratched plastic needs to be replaced also. If your SO eats gluten you can get CC from kissing them before they have brushed their teeth. There are some people here that 'just a crumb' will make them very sick.

I hope you are able to get some answers so you can get better.

1

Share this post


Link to post
Share on other sites

IBS is not a diagnosis, it is a description of a set of symptoms caused by something. You will need to find out what that something is before you get better. If you are eating fruits and vegetables you should be getting plenty of fiber - unfortunately most other fiber is gluten (although there is psyllium husks.) Check out the fiber supplements for gluten free and see if we can put that theory into a cocked hat (which is where I think it probably belongs :P ) It is an MD favorite, as is IBS.

With a family history of celiac that is far more likely to be the culprit and I would advise you, as dixiebell has, to get really scrupulous about eliminating the gluten, including from all personal care products like lip gloss, toothpaste, hand lotion, shampoo, etc., in addition to what dixiebell mentioned. Check all scrips and OTC meds for gluten too. You have to get it ALL!

Good luck on your detective work. It worked before - it can work again!

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,618
  • Topics

  • Posts

    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
    • You could ask the allergist to give you a starting point for an elimination diet. You would start out with 5 or so foods and then add in one new food a week to see if you react. If you react you of course drop that food. It is a bit of a pain as everything has to be basically single ingredient to start.  My allergist felt that was the best way to go and more accurate than blood testing.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined