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What Tests Exactly Should I Ask For?
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3 posts in this topic

I have an appointment in the morning with my family doc and want to be sure I ask for all of the correct blood tests. I would hope she'll know, but you know, just in case :) I don't want there to be any doubt, I want any test she can order lol

Also, anything specific I should ask about? I am taking along my history and notes about Celiac's. Again, I would hope she's a little knowledgeable, but I am not taking any chances. I want to be sure she knows I am serious and why. She's a great doctor, I don't think I will have to fight hard or anything, I guess I am just nervous about pleading my case for these tests.

Also, as far as I can tell being pregnant will not have any effect on the outcome of the tests right?

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Here are some of the Celiac blood tests below. I don

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Thank you!

The appointment went well. She, of course, thought it sounded like IBS, but also said it was smart to test for Celiac with the other symptoms. She said obviously we couldn't do the endoscope until after I had the baby. I am not sure if I would even want to have it if the blood tests are positive. I've never been sedated before and it kinda scares me honestly. She went ahead and checked my thyroid again too since they were already drawing blood, but it was normal just last summer.

They drew the blood and now I guess I wait. I know it depends on lab probably, but about how long does do people typically get results back?

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    • Good luck with all the testing.  You are doing the right thing by telling your son to gluten up!  Buy him one of those gluteny cakes at a bakery...if that doesn't spike his numbers, nothing will. 
    • Thank you for this response! You are right, I'm sure. My sed rate was normal. My c reactive protein was 6, which is high. My platelets were a bit elevated and I was slightly anemic. I am going tomorrow for another endoscopy. I know that these things could be related to other things... but I'm thinking there is a change they are all still related to celiac (I'm hoping). What other autoimmune disease do you have, if you don't mind me asking?
    • HIV doesn't turn off the immune system, it destroys it to the point where most people die from complications that arise from having no immune system.  Some end up with pneumonia or cancer, which takes their life. It is pretty amazing the treatments they have developed for it, to slow it down and give people longer, quality time. I am perfectly content with the gluten free diet as my treatment and honestly, if they developed a pill that they claimed would make it possible for people to eat gluten again, I doubt I would. I could not bring myself to eat a food that I am genetically programmed to not be able to digest and that totally pisses off my immune system.  However, if they succeed with some of the meds they are working on now, one of which I posted about earlier this summer, I would take those.  They are working on things that modulate the immune system down so inflammation can be tamed down further.  Even with a strict gluten-free diet, there will always be more inflammation for us than for those who don't have AI diseases.  I do everything possible to tame it down myself but it isn't in the normal range.....yet. Long term inflammation can kill you so something along those lines would be welcome.  You would still have to eat gluten-free but the disease activity would be calmed down.  This is a drug that targets those with lupus and maybe Sjogren's....which I have.  There are possibilities for other AI diseases from that!
    • Hi Anns and welcome   Do you think that I am on the right course to see if I possibly have Celiac?   Yes, it was smart of you to consider the possibility and its good that you've had the tests. Both the aneamia and bloating are symptoms, although of course they may be unrelated. Best way to find out is to check as you are doing.   Can this develope later in life ( I'm 46)?   Yes, I think its most common discovered later rather than sooner.   I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   Yes, I noticed far less of a heavy feeling after eating very soon after diet changes. However you would be better off not trying gluten free just yet. I collected some links and other stuff here, it may be of use: Your best bet is to eat as normal and wait for the test results. If your doctors eliminate celiac there's nothing to stop you excluding gluten at that point to see if it helps. But before then you need to keep eating it to ensure an accurate diagnosis.  All the best  
    • Well HIV undermines the entire immune system as I understand it, so that would be akin to using dynamite to put out a kitchen fire! There is some work going on to try and retrain the immune system to not see gluten as a threat though: http://www.immusant.com/docs/ImmusanT DDW Data Release FINAL 5.24.16.pdf  I'm laughing as I write this imagining the conversations you could have with people as you tell them you'd like to contract HIV so that you can eat a decent sandwich        
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