Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Support Group In Fresno, California


Guest kmmolina

Recommended Posts

Guest kmmolina

I am new to the website and a newly diagnosed with Celiac. I am looking for someone in the Fresno, California area I could confer with regarding doctors, dietitains, best placed to buy gluten free products, etc. I've been to the Whole Food Store and it had a lot of gluten-free things, but is there anything thing else in Fresno :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest kmmolina
I am new to the website and a newly diagnosed with Celiac.  I am looking for someone in the Fresno, California area I could confer with regarding doctors, dietitains, best placed to buy gluten free products, etc.  I've been to the Whole Food Store and it had a lot of gluten-free things, but is there anything thing else in Fresno :o

I hope I am not the only one in Fresno...

  • 1 year later...
Satori Newbie

I know this was a year ago but did you ever find anything? Were moving there in Feb and go up there all the time. I found Whole Foods to be really disappointing, the one down in Santa Clarita has way more gluten-free foods and flours.

  • 2 months later...
janelyb Enthusiast

This is a bit behind but I found a group in Sacramento and one lady mentioned there they had a bay area support group too. Here is some info to check out

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

here is some more info I found

Group: Sprue Group of the SF Bay Area

City: Oakland

Contacts:

Ellen Switkes

116 Fairview Ave.

Piedmont, CA 94610

510-655-0215

Ellen Eagan

632 Miller Ave.

South San Francisco, CA 94080

415-583-6413

Cindy Breeden

510-895-9590

Elysse Paige

2401 Bowditch Street

Berkeley, CA 94702-2272

510-643-6701

510-643-8943 (fax)

Internet:

Ellen Switkes, ellen.switkes@UCOP.EDU

Ellen Eagan, eagan@pangloss.ucsf.EDU

Cindy Breeden, cbreeden@worldnet.att.net

Elysse Paige, epaige@berkeley.edu

Paul Jackson Rookie
I hope I am not the only one in Fresno...

Hi, Kathleen! (I hope I got your name right.) Now age 38, I've been a pretty big guy most of my life with a waistline of about 44 inches during the past decade or so. Whenever my waistline has gotten larger once every year or so, I've been accustomed to going on a reducing diet--figuring I had some genetic predisposition to megamorphism (a big body). Actually, I'm now convinced that these enlargements were warning signs of the onset of celiac disease. In the past three months (i.e,. since Dec. 2006), my waist enlarged by an astounding 20 inches to a whopping 65 inches!

About three weeks ago, I tried to go off gluten; but two weeks ago, I inadvertently ate some wheat flour at a potluck at my workplace. Within about one hour, my legs became extremely bloated and have been so ever since. With every meal, I'm taking two Diurex for Men caplets, a natural OTC diuretic that has taken the edge off this bloating. (On Jan. 30-31, 2007, I also visited the UMC Emergency Room for 24 hrs., during which I got an EKG and blood tests that found no serious cardiac issues. Neither any doctor nor nurse was willing to have a xylose blood test performed to confirm celiac disease, as suspected by a dietitican whom I'd earlier visited in the Fresno area.)

Every day, I struggle to get out of bed and spend eight or more hours doing light activity. Every day, I feel I have more physical energy; but I usually get no more than half of the eight hours of sleep I require. Until about a week ago, fatigue was a dire issue affecting my health.

Leroy, a friend of mine in the L.A. area who practices macrobiotics, believes that my physical difficulties (as my system adjusts to a gluten-free diet) will last three months--meaning I have to endure at least another month of this agony! Two things form the silver lining on this celiac cloud hanging over my head: one is that my voice has grown stronger and clearer; the other is that food nourishes me, seemingly as never before! I eat small amounts of food slowly and am satisfied! Two rice cakes and a tablespoon of unsalted peanut butter between them is an adequate breakfast (as compared to a three-course breakfast that would be my usual fare). Also, I no longer crave dairy products, which digest with grain products, so that an addiction to one may result in addiction to the other.

I can see the proverbial lining on the cloud! However, I continue to struggle each and every day.

Hoping you are coping at least as well as I am,

Paul

(559) 233-3786

pjackson32@hotmail.com

  • 1 year later...
trav Rookie

Hey Kathleen,

I've been gluten free since Feb 2007. I was puzzled for a while that things I expected to feel good after, like pasta with TVP, or tomato sandwiches, or multi-grain crackers, I would actually feel terrible after. Finally I realized that if I had oatmeal in the morning I would be fine, but if I added wheat germ to it I would feel bad and my breakfast wouldn't digest all day. So I went off gluten and since then have gone off corn and yeast. I seem to do well with soy. I was already vegan.

The results have been mixed, I definitely haven't solved the whole problem, but I definitely feel better than when I was eating wheat.

I've been to Kristina's Natural Ranch Market on First and Barstow and they seem to have a lot of gluten-free products. Kind of expensive though.

Where's the cheapest gluten-free foods you've found?

-Travis

Guest kmmolina
Hey Kathleen,

I've been gluten free since Feb 2007. I was puzzled for a while that things I expected to feel good after, like pasta with TVP, or tomato sandwiches, or multi-grain crackers, I would actually feel terrible after. Finally I realized that if I had oatmeal in the morning I would be fine, but if I added wheat germ to it I would feel bad and my breakfast wouldn't digest all day. So I went off gluten and since then have gone off corn and yeast. I seem to do well with soy. I was already vegan.

The results have been mixed, I definitely haven't solved the whole problem, but I definitely feel better than when I was eating wheat.

I've been to Kristina's Natural Ranch Market on First and Barstow and they seem to have a lot of gluten-free products. Kind of expensive though.

Where's the cheapest gluten-free foods you've found?

-Travis

Hi Travis...I'm sorry I haven't responded earlier, but I haven't been on the website lately. Actually, Kristina's is the cheapest I've found. I was going to Whole Foods in Fig Garden's for awhile but I found they were often out of what I wanted, didn't always have a great selections and very expensive. I found a lot of Kinkanick (sp?) stuff at Kristina's. It seems that a lot of the gluten-free stuff is expensive. At Kristina's I pay an annual fee (I think it was $20) and I get a 10% discount, which helps a little bit. Online is usually the cheapest, but you usually have to buy in bulk Also SaveMart does carry some of the Pamela's products. Hope this helps...Kathleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 months later...
Paul Jackson Rookie

Affordable gluten-free Grocery Shopping in Fresno, California

Twelve-net-ounce packages of gluten-free chicken sausage sell at Kristina's Market, Trader Joe's, and Whole Foods Market for $5 or more on a consistent basis. At WinCo, however, a 12-net-ounce package of Al Fresco

Paul Jackson Rookie

Still on the bargain hunt in Fresno, California: Without having to consult Scott Adams's Unsafe Ingredients List (handy though it is), you may find at WinCo, Thai Kitchen Green Curry Paste, a 4-oz. bottle of which is about $3. Though unlabeled curry is certainly risky :unsure: , Thai Kitchen labels this and a great many more of its products "gluten-free," which they certainly are. (Open Original Shared Link)

Concerning instant soups, WinCo also carries Simply Asia (a product line of Thai Kitchen), whose rice noodle soup bowl in Sesame Chicken flavor is labeled gluten free and sells for a little more than a dollar. But Trader Joe's is the cheapest at 99

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,196
    • Most Online (within 30 mins)
      10,442

    Spider2026
    Newest Member
    Spider2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...