Is anyone here mildly annoyed by the statements made by the journalist and physician focusing on the minor issues with only a passing reference to the "oh by the way..it can lead to cancer, etc" as a mere afterthought? It almost makes me cringe when the "experts" seem so much like the doctors I would have avoided after I knew better. Maybe I am just being extra sensitive this morning. I think the public face of education in this matter should focus on the systemic impact of long term exposure and not the "potty" issues that make this easy to mock. What about the supposition put forth that for every cross contamination exposure it has the potential to put gut healing back 3-6 months? Just saying.
BRAVO!!! I feel the same way!!! Thanks for saying this!!
I can't wrap my brain around it sometimes---how I have been affected from head to toe, inside and out, dozens of debilitating symptoms that were leading me to a wheelchair, a mental health ward or a coffin, had I not been so persistent.....the potty issue is just a fraction of all that has happened to me and that was pretty bad in itself. And you are also correct when you say that even those who DO have a bit of understanding (i.e. doctors
) of the issue never look beyond the GI symptoms. It's just wrong. Had I listened to the dozens of "experts" I consulted in the last 12 years or so, I would have just continued to take the drugs they push for symptom management and have developed MORE autoimmune diseases (like the rest of my family) or be dead by now.
I am just one of millions---look at all of us on here!!
If the medical community doesn't really GET IT, how can we expect the rest of the people to understand it either?
Because of ALL the body systems involved, it is EXACTLY why it takes so long for diagnosis.
There needs to be a better understanding of gluten intolerance/celiac.
Maybe this controversy will make that happen.I hope someone with some clout will issue press releases and seize this opportunity. We can only hope.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
"If you want to lift yourself up, lift up someone else" Booker T. Washington
“If idiots could fly, the sky would be like an airport.”― Laura Davenport
"Do or do not. There is no try. "- Yoda.
"LTES" Gem 2014
Misdiagnosed for 25+ years; Finally Diagnosed with Celiac 11/01/10. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.