Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Weird Menstrual Cycles?
0

20 posts in this topic

Ever since going gluten free, and even a couple months before I got diagnosed (more when my Celiac was becoming severe), my periods have been all out of whack. I've had them for about 3 years now, but the past year or so has been really strange. My periods have been different than others in the past, and they're always a week plus later every month. Does anyone else experience weird period problems?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Back when I used to menstruate (chemo put a halt to that four years ago) and before I knew I had celiac, I had the weirdest periods ever! I used to get them every other month for a few years, even though I was on the pill. When I lived in Europe, they came nightly from 9:00 p.m. to 9:00 a.m. and disappeared during the day for three months until I returned to the U.S., and then I bled 24/7 until I took medications to stop the bleeding. When I went to live in Brazil, they completely vanished until I returned to the U.S. Finally, two years before I found out I had celiac (I had become very anemic), my periods returned 24/7 and stayed that way for the entire two years until I was diagnosed with celiac. Apparently, because our damaged intestinal lining can block absorption of hormones, our periods can get out of whack. That's why a lot of us have/had trouble getting pregnant and with miscarriages. I had to take fertility pills to get pregnant, and I had three miscarriages.

Sometimes it takes a while for the intestinal lining to heal itself--your periods may even out soon.

0

Share this post


Link to post
Share on other sites

I too have weird cycles. It's pretty variable for me- every 3-6 weeks. Also, just before I went gluten free I lost them all together for about 4 months, but this could have been related to having two stress-fractures (vit. D and calcium malabsorption). Now that I have been gluten-free (and healed for 6 months), everything is back to it's random schedule.

0

Share this post


Link to post
Share on other sites

Mine are weird too, before celiac I used to have really heavy periods. Now they are hardly anything and sometimes I don't get mine for 2 months. They aren't regular which is really annoying haha

0

Share this post


Link to post
Share on other sites

Yes! I had a completly normal menstrual cycle for about 1 year, 1 1/2 years, after that my period went away. I am 21 now and I think that I have only had maybe 5 or 6 periods since I was 13. :blink: I have been on a gluten-free diet for about 9 months, and it seems as if finally my period is beginning to come again. Luckily, although a bit sporadic (sometimes heavy sometimes light) it comes roughly every 20 to 30 days so good. Strangely though, I had PMS without having a period, not very fun. <_< With time your periods will get back to normal. If you are concerned with the irregularity I know that spearmint tea does help to regulate androgens (testosterone) which causes menstrual irregularities. Hope this Helps!

MichaelJacksons#1Fan =D

0

Share this post


Link to post
Share on other sites




My cycle was regular but strange (starting and stopping for over a week, neverending pms) until going gluten free. I thought I was cured! But then after a few months, I had a really awful period. I started taking mineral supplements (ConcenTrace drops) and things are back to being good.

0

Share this post


Link to post
Share on other sites

mine are some what normal maby you guys need more vitamins

0

Share this post


Link to post
Share on other sites

When I was a teenager, I had no cycle. I'd get my period two months in a row and then nothing for 3 - 4 months. When it did come, I had horrible cramps. I started on birth control at 22 and thought I'd died and gone to heaven! No cramps and ridiculously consistent periods - I knew the hour when it would start each month! Then i was diagnosed with celiac at 28 and looking back assumed those irregular periods were the result of the undiagnosed celiac (I had no other symptoms). Last November I stopped the pill because I got a blood clot and....still irregular periods! And I'm very strict with the gluten free diet. The doctor assures me there's nothing wrong - I've had internal ultrasounds and they can't find anything wrong.

0

Share this post


Link to post
Share on other sites

Maybe you should ask your doctor to do an ultrasound of your ovaries to check for PCOS. It's not as scary as it sounds! I've known I have PCOS for over a year, but I just realized my gluten sensitivity a few months ago. I was taking medication for the PCOS, but my period still didn't come monthly... Since going gluten free, it's been more reliable. I'm wondering if the PCOS was caused in part by eating gluten when I didn't know I shouldn't?

0

Share this post


Link to post
Share on other sites

i must be lucky then, my period is somewhat normal, tho it comes like every 21-25 days :( but my doctor isn't too concerned about it. Its always been like that for me. Heck before i got diagnosed my doctor joked that while the rest of me was going to pot, my period was normal and that was very good.

0

Share this post


Link to post
Share on other sites

Ever since going gluten free, and even a couple months before I got diagnosed (more when my Celiac was becoming severe), my periods have been all out of whack. I've had them for about 3 years now, but the past year or so has been really strange. My periods have been different than others in the past, and they're always a week plus later every month. Does anyone else experience weird period problems?

yes...I have the same thing, ever since i have been gluten free (5 months) my period has been late every month, last time I was 10 days late. Before I went gluten free I had regular periods but they were always really heavy and now I just have random scheduling but light periods. I thought that maybe my cycle was just reconfiguring itself since I haven't been on the diet for very long. let me know if you find out why being gluten-free changes it..

0

Share this post


Link to post
Share on other sites

yes! i am having the same problem! i have always had a regular period but i got diagnosed last month with celiacs and started my gluten free diet right after that but have not gotten my period this month and i know stressing out wont help bring it sooner but i can help but worry... Any advice or similar stories

0

Share this post


Link to post
Share on other sites

Are you anemic? My iron gets really low and my periods get all irregular. I didn't make the connection till I had IV iron and they Became what other people called normal/regular, and then when my iron went back down, they became normal for me again. I've been taking iron pills and got my iron back up and theyve been more regular again. My doctors have done this all backwards, treating the anemia and not caring why I'm anemic. Now that Im working on gluten testing, I realized how sensitive our hormones are when we're malnourished. :/

0

Share this post


Link to post
Share on other sites

My periods have always been irregular. I could seriously go up to 6 months without having a single one. When I was put on thyroid medication, they became more regulated, but they still weren't on a monthly cycle. I haven't tried a gluten free diet, so I don't know what will happen when I go gluten free.

0

Share this post


Link to post
Share on other sites

Are you anemic? My iron gets really low and my periods get all irregular. I didn't make the connection till I had IV iron and they Became what other people called normal/regular, and then when my iron went back down, they became normal for me again. I've been taking iron pills and got my iron back up and theyve been more regular again. My doctors have done this all backwards, treating the anemia and not caring why I'm anemic. Now that Im working on gluten testing, I realized how sensitive our hormones are when we're malnourished. :/

Very anemic! I've been anemic all the way through high school up until now (my junior year of college) and they are just figuring out that the anemia is related to celiacs! So frustrating! But even through highschool and the anemia I had regular periods. But now I haven't had one since the diagnosis of celiacs... I was just wondering if it was the gluten free diet doing something to me bc I've taken 2 pregnancy tests and they are both negative. I hope that they get things straightened out with you and your anemia! Trust me I know it's no fun!

0

Share this post


Link to post
Share on other sites

My periods are super off! Ever since I got them, they have never been regular. I keep a "log" of how many days in between, and it ranges from 23 to 32. Super strange. I don't know if it has to do with Celiac's or just because we are young so our periods aren't regular. Talk to your mom and see what her's were like, that should give you a pretty good idea of what your's will be like. Genetics play a big role in a lot of these things.

0

Share this post


Link to post
Share on other sites

At 15, I still hadn't started yet, although I was perfectly normal in every other way (my mother and sister did by age 12 or 13).

Shortly afterward, however, I developed anorexia and didn't weigh enough for it to occur anyway. At 17, I finally started (I was 5'4 and 107 pounds); from there it was regular for a few months (I got to about 120 pounds) but then just disappeared again. The doctor made me take progesterone to get it back :angry: , and though she said most women started up after 2 or 3 pills, it took 7 for me. I got a period once and then it was gone again for a few months (FINE by me! -ha!). So I had to take more progesterone- and I cleared out all 10 pills and got nothing. I'm 19 now and I'll have to take them again at the end of this month, but quite frankly I would rather just enjoy the glorious amenorrhea.

0

Share this post


Link to post
Share on other sites

these last few months have been strange for me. My periods are almost always very regular but a couple of months ago, I got one and kept bleeding for well over 2 weeks. I wasn't bleeding very hard but it went on and on. My gyn seemed to think that it was due to not ovulating. Then my last period came early but other than that, there was no problem. This period came very late and I had a good 2 weeks of PMS and cramps before it even started. Well it finally started last week but it's been 7 days and I'm still going very heavy. Usually my periods are over in 5-6 days. The cramps have died down but I'm concerned about the heavy bleeding. I've been under a lot of stress lately, but not more than I am usually under. I have also been much more tired than usual. Don't know if it has to do with the fact that I'm losing a lot of blood or what. Periods tend to tire me out anyway. I've been on the gluten-free diet for over a year now. I have diagnosed Celiac Disease and it's been really slow to improve.

0

Share this post


Link to post
Share on other sites

Mine went wacko right before dx. I chalked it up to all the corticosteroids, antihistamines since they can cause irregularity. I started using natural progesterone cream on day 14-28 of my cycle and it straightened it out. Took about 3 months. It was obvious it was working because if I'd forget the cream I'd have immediate breakthrough bleeding.

If you want to know more about progesterone cream get one of Dr. Lee's books.

0

Share this post


Link to post
Share on other sites

I have always had a perfect 28 day cycle. The last two periods have been out of whack!! I have been gluten-free since July 15 of this year. My last period came two days early and I am currently two days late (still waiting). why would going gluten-free cause this?

Eta: I am 32, didn't realize this was on the teenagers forum :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,639
    • Total Posts
      918,434
  • Topics

  • Posts

    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
    • Burning Sensation
      The last post was from 2011.   if you can eat a regular pizza crust with no issue, then gluten isn't your problem.  You might want to look for something else.  The amount of gluten in a beer or fryer cc is very very small compared to eating a pizza crust.   I am assuming you do not have Celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,732
    • Most Online
      1,763

    Newest Member
    SueJ
    Joined