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What Is Gluten Withdrawal?


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11 replies to this topic

#1 shayre

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Posted 31 March 2011 - 12:26 PM

Hi. I saw you all talking about gluten withdrawal. What is it?
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#2 Dixiebell

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Posted 31 March 2011 - 03:15 PM

Hi shayre.

Withdrawal
Consumption of gluten triggers production of exorphins, which are opiate chemicals with similar results as endorphins---promoting feelings of calm.
-in some people, gluten and/or casein can mimic opiates, such as morphine and heroin. When these foods are removed, intense cravings and even drug withdrawal-like symptoms can result.

Read more: http://www.livestron.../#ixzz1IDp613da
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#3 luvs2eat

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Posted 31 March 2011 - 04:38 PM

Well then... almost 10 years after going gluten free, I'm still having withdrawal. Awesome husband is so good about hearing me WHINE about wishing I could have a sausage egg Mcmuffin or a Pizza Hut pizza or a Big Mac or a myriad of other things!!
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luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!

#4 mushroom

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Posted 31 March 2011 - 06:06 PM

I think wanting and physically craving are separate things :P :lol:
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#5 confusedwife

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Posted 21 April 2011 - 10:07 AM

my husband went gluten free six weeks ago and was complaining he was feeling like he was going thru withdrewls or the flu...are you saying that this is a true symptom of the celiac as hes going thru this transition?
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#6 mushroom

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Posted 21 April 2011 - 11:52 AM

Yes indeedy, we are. It is a very real physical reaction when gluten is removed. Generally doesn't last beyond a couple of months at very most. Gluten acts like an opioid :o
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#7 Kquad

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Posted 10 May 2011 - 01:04 PM

I went through 6 weeks of terrible withdrawal. I had weakness, fatigue, depression, nausea, dizziness, and achiness. I have only come out of it this past week. It is finally looking worth it. My so called IBS is gone. Months on Nausea gone. Still have a little fatigue, but there is light at the end of the tunnel. If only they have given me the celiac panel 8 years ago, when they first told me I had IBS. I have very little craving for gluten now, as I associate it with the past 6 weeks. I will see if the craving returns!
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#8 a1956chill

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Posted 10 May 2011 - 02:08 PM

The withdraw when I went gluten free was HORRIBLE but it passed in about 6 weeks. The cravings only seem to happen on the rare occasion that a bit of gluten sneaks in to my diet and are a signal to double check my food sources for gluten. Gluten is a VERY sneaky thing.
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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#9 navigator

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Posted 10 May 2011 - 02:56 PM

This is interesting; - I've been gluten free for five days and have a dreadful headache for two days. The only time I've experienced this is before is when I gave up coffee. Never considered that it may be gluten withdrawal.
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#10 pricklypear1971

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Posted 26 August 2011 - 08:19 PM

I guess I'm lucky because mine lasted a week. I was pretty much a raging lunatic, though. Dangerous because my brain was working again for the first time in forever...:).

I was obsessed for about 6 weeks with trying every gluten-free processed food. Got over that when I glutened myself.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#11 RedRockChicka

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Posted 25 June 2013 - 03:02 PM

Hi, everyone. I'm newly diagnosed, and on my second day of gluten free. I know this thread is over a year old, but it's still giving me hope. I was about ready to think I was going freaking crazy. 

 

The first day of no gluten was great. I had energy, I felt better. I wasn't all bloated (well, not as much) and looking like I should be the poster child for UNICEF. 

 

Today, however, I feel like I'm going nuts. Certifiably so. My stomach has been a wreck all day, from bloated and constipated in the morning to a veritable fountain now (sorry to be gross). I have zero energy, and I feel like ripping the head off anyone who asks me even the most innocuous request (like, "Tell me how your day was?"). I also feel seriously out of it. I was driving earlier, and luckily, made it home without driving into a telephone pole (that would have been interesting. Officer: "Ma'am, have you been drinking?" Me: "No, just going through some major gluten withdrawal."). 

 

Thanks for this thread, old as it is. I feel a bit less nuts just knowing I'm not certifiable (at least not completely). Oh, how I hope this doesn't last for months, though! 


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#12 nvsmom

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Posted 26 June 2013 - 07:18 AM

For most, withdrawal only lasts a week or so. I hope you are well soon.

 

Welcome to the board.


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"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

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