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Anyone Have Tmj Problems?


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20 replies to this topic

#1 Debbie B in MD

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Posted 07 April 2011 - 06:46 AM

This seems to one of those symptoms that I have that isn't going away as quickly as the rest. I think I may have been glutened this weekend and I am still having issues. Thanks.
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#2 angel9165

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Posted 07 April 2011 - 07:22 AM

I have TMJ but not aware of it being related to my celiac disease. :unsure:
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Diagnosed w/ Celiac disease on Sept 1st, 2010

#3 Fire Fairy

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Posted 07 April 2011 - 07:41 AM

This seems to one of those symptoms that I have that isn't going away as quickly as the rest. I think I may have been glutened this weekend and I am still having issues. Thanks.


I have TMJ too. It started at the same time I trace my becoming Celiac back to so I believe it could be related.
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If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown

#4 IrishHeart

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Posted 07 April 2011 - 07:48 AM

DITTO for me, Firefairy!

I have wicked TMJ pain :blink: and I associate it with stress and tension trying to get a proper diagnosis for so long. ARRGH!!

Trigger points in muscles can also be associated with nutritional and vitamin deficiencies (due to malabsorption) like B-12 and folate (B9)

In any case, I did not have it until I got really sick. Mine is so bad, it hurts to even lay my cheek on a pillow. Sucks.

I am having an appliance made, my teeth malocclusion fixed; I took stress reduction classes; I meditate and I get massages --(P>S> make sure you massage your neck and shoulders, too!)--and I hope it resolves.

I have met a few people on here with it and I have to think MAYBE?? it is related somehow. Any muscle/joint pain I have is connected to this, as It is NOT any autoimmune-related joint disease ... Just my take on it. :)

Hope you get relief soon!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image

#5 iamsarar

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Posted 07 April 2011 - 08:11 AM

I have it too but was not aware it might be a symptom to Celiac D.
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#6 srall

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Posted 07 April 2011 - 09:57 AM

My symptoms went away when I went gluten free a year ago. I packed my $400 night mouth guard away in the closet. It has only come out when I have been glutened. One night before I adjusted my daughter to a gluten free diet I had fallen asleep with her in her bed. Her teeth grinding kept me awake. That was one of my clues (among MANY) that she might also be having gluten problems.
I don't know exactly when my symptoms went away. It seemed so many positive things were happening that every once in awhile it would occur to me that I hadn't noticed some particular pain/ache/symptom in several weeks.
I hope it clears up for you. It is painful...esp the headaches.
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#7 lynnelise

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Posted 07 April 2011 - 10:16 AM

I have TMJ and I do think it becomes worse with glutening. Last month it was so bad I had to take prednisone to bring the inflammation down. My face was going kind of numb where the swelling was pressing on nerves! It still doesn't feel 100% right, but it stopped hurting and the numbness is resolved.
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#8 IrishHeart

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Posted 07 April 2011 - 10:24 AM

I find this really interesting---thanks for sharing, you guys! I had/have so many symptoms--really, like a hundred---that each time someone posts one on here and someone says ME, TOO!!!--I feel so validated. I am not happy you all suffer with this, not one bit!!---yet it does make me feel less alone and encourages me that I will feel better and better with each passing day I heal. :)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image

#9 GlutenFreeJess

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Posted 07 April 2011 - 04:10 PM

I also have TMJ. For me it developed after I got my wisdom teeth out. During this time though, I was struggling with my health, and about a year later I was properly diagnosed with Celiac. I find this thread interesting. Not sure if the TMJ is related to Celiac or not though.
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~Jessica~
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Dx: Celiac Disease '08, Hashimotos Thyroiditis '08, Diabetes '07, TMJD '07, Fibromyalgia '08

#10 StephHappens

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Posted 07 April 2011 - 06:49 PM

I have this too. It started about the time I had my daughter, which I think also triggered my Celiac Disease. Mine gets worse when glutenated and lasts longer than all other symptoms. I think because gluten causes inflammation, it makes TMJ worse. I have wondered about the possible correlation too!
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#11 healinginprogress

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Posted 07 April 2011 - 07:42 PM

I've had TMJ for years and years, would LOVE for that (along with all the other symptoms) to go away! I notice I've been clenching a lot lately, though...super-stressed. I try to catch myself, but I do it a LOT!

Hope you see improvement!
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#12 Marie1976

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Posted 18 April 2011 - 08:09 PM

I've had TMJ for a long time and have noticed it worsening as I've been eating lots of gluten in prep. for my endo. (Among other symptoms that seem to be cropping up lately.)

It's weird how many seemingly random symptoms so many of us seem to have in common.
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#13 IrishHeart

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Posted 19 April 2011 - 05:58 AM

I've had TMJ for a long time and have noticed it worsening as I've been eating lots of gluten in prep. for my endo. (Among other symptoms that seem to be cropping up lately.)

It's weird how many seemingly random symptoms so many of us seem to have in common.



I find it (sadly) reassuring that so many of us DO have these "seemingly" random symptoms---as it validates me and makes sense of years of horrible symptoms that doctors passed off to "stress"....WHY do you THINK I am stressed, doc??? 'Cause I feel like crap and I am in pain and you think all these symptoms are not connected and I am left feeling like a nutjob :blink:

:)

I have a giant list of all these symptoms and I take delight in checking them off as they lessen and/or disappear!! I KNEW I wasn't nuts!! Told ya so!! :lol: :unsure: :P
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image

#14 jerseyangel

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Posted 19 April 2011 - 07:06 AM

I was diagnosed with TMJ Disorder in 2004 by an Ear Nose and Throat doctor. Going gluten free has had no effect for me.
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Patti


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#15 IrishHeart

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Posted 19 April 2011 - 01:01 PM

I was diagnosed with TMJ Disorder in 2004 by an Ear Nose and Throat doctor. Going gluten free has had no effect for me.



I suspect just going gluten free is not the cure, for sure. If only! That would make this easier, wouldn't it.

I have been evaluated by a TMJ and facial pain specialist and he said it is "possible" the inflammation is a contributor to the muscle and joint pain, as well as the stress of being ill (for many years) and not knowing why, as well as neck pain and my poor posture from accomodating the pain. I have been fitted with a TMJ appliance, had my teeth malocclusion realigned, took a stress-reduction class and I learned yoga (as much as I can do) and meditation and deep breathing...all in an effort to reduce the pain in my cheeks and jaw.

That's a lot of "work" to do to relax the muscles, :D (ha!) but it has helped somewhat. The most important thing is for me to relax my clenched teeth now that I know what ails me!

It will be sweet to lay my cheek down on the pillow at night once more and not have it hurt so much. :unsure:

I have wondered why it developed right around the time I started being really ill with this disease...and I decided it was ...um, gee, let's guess ...stress? :blink:
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image


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