Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Allergist?


dube

Recommended Posts

dube Contributor

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MrsMonteSS Newbie

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

Hi, I just went yesterday, after being misdiagnosed for the last two months (Hyperthyroidism / Diabeties). I am Gluten Free for two days now, and slowly feeling myself coming back together. I went and had no food allergies, but he ordered the Gluten work up. A Gastro typically deals with the effects of Celiac, but my allergist wanted this done right away. I would avoid as much sugar as possible because it is the reason I was misdiagnosed, stay hydrated, and start reading labels. I was allows in bouts with Lactose Intolerance as well. Hope this helps! RoseAnne - NY

Link to comment
Share on other sites
hnybny91 Rookie

I went to a natropath for food sensitivity testing. Some on here think it is not reliable but I knew there were other food issues after going gluten free and, to be honest, I did not want to do an elimination diet to figure them out. I came back positive for 36 foods (including gluten and wheat....surprise surprise.) Since I have cut all of those foods out I have felt so much better. I highly recommend testing.

Link to comment
Share on other sites
pondy Contributor

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

Hi Dube,

I'm seeing an allergist/immunologist this week.

My primary doctor recommended him because I get bothersome (sometimes scary) reactions to foods & other things - can't seem to figure out which foods, etc...

Fortunately, the allergist is covered by my insurance. Even if he wasn't though, I'd still go.

Personally, a bad allergic reaction for me sometimes involves a "choking" feeling in the throat or shortness of breath. Seems potentially dangerous so I'm covering all my bases.

Good luck to you :)

Link to comment
Share on other sites
T.H. Community Regular

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

I have, and I'd recommend finding a doctor who specializes in food allergies. There are usually one or two in a city, at least. The others? They tend to focus more on environmental allergies and allergy shots, these days.

I went to the latter first, and it was awful. My food allergies were, essentially, 'all in my head' and the fact that I started having trouble with food after going gluten free was a 'coincidence' and...it just went down hill from there.

I persevered and found an amazing allergist. He admitted that most food allergy tests aren't that accurate. The more mild your reactions are, the less accurate the tests were, in his opinion. He recommends a food journal for his patients who aren't having hives as reactions to foods. Sometimes a patch test, but he thinks a food journal is as accurate, if not more so, than patch tests if you are having issues with foods that aren't hives.

You also need to find someone who is aware of Celiac Disease, if possible. Probably need to shop around. Maybe ask people in a local celiac group if there are any they would recommend?

Link to comment
Share on other sites
Robert16 Newbie

Yes i did and was very helpful found out about half my problem foods were allergies the one that suprised me was highly allergtic to pork was worth it.

Link to comment
Share on other sites
Marilyn R Community Regular

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

I went to an allergist eight months after going gluten-free against the advice of my Gastro. I learned I was highly allergic to pecans, even though I'd never had a problem with them before. They're an ingredient in a gluten-free SF DF bar I'd been snacking on. The other thing I was highly allergic to is turkey, which I've never cared for, but occasionally ate when it was on sale.

I turned up 2's and 3's on some things (egg yolk, tomato, clams, wheat and barley.) I just avoid repeating the first 3 items in that list in my diet or going overboard on them. For instance, I'll have eggs for breakfast, but eat just the white. I still make things with a beaten egg though (like gluten-free pancakes or refried rice, etc), just wait a few days before eating anything with egg yolk in it again. I don't make tomato sauce anymore, but can deal with tomato sauce or paste as an ingredient in a dish every few days.

I break out in hives but I know my triggers, so I refused the hive panel on the initial visit. We talked about environmental allergies and he told me I probably have mold and dust allergies. He offered that panel as well, and I declined.

So I definitely recommend going to an allergist. You can be selective about the panels ordered, but it's important to discuss this on your initial visit.

I was pretty impressed with how much better I felt after eliminating my other culprits from my diet combined with minimizing the mild allergins. And just so you know, the nurse that does your tests might tell you what popped up on the day of your test if you ask her. (Vs. waiting two weeks for the doctor to tell you. )

If you haven't been tested for celiac disease yet, I think an allergist would order that the day you see them, especially if you ask them to.

Good luck to you! :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dube Contributor

Well, going to the alergist was a waste of time! The did the food pricks right there in the office...hardly nothing! She said, alittle on pork, walnuts and crab...well whoopie doo....I dont eat walnuts or crab...and pork well, very little but never had a problem with it...

Oh well...it was worth a try, not to mention a very nice scenic drive in the country!!! LOL

Link to comment
Share on other sites
burdee Enthusiast

Well, going to the alergist was a waste of time! The did the food pricks right there in the office...hardly nothing! She said, alittle on pork, walnuts and crab...well whoopie doo....I dont eat walnuts or crab...and pork well, very little but never had a problem with it...

Oh well...it was worth a try, not to mention a very nice scenic drive in the country!!! LOL

Skin tests for food allergies (esp. delayed reaction allergies) are totally worthless, UNLESS your only reaction to food is hives or eczema. We don't put food under our skin when we eat. Many people get gastrointestinal reacions to food allergens. Skin tests will not reproduce those kinds of reactions. However, blood tests can show to which foods our blood creates antibodies. Nevertheless, skin tests can rule out some IgE (immediate reaction, anaphylactic reaction) types of allergies. Some allergy 'experts' consider IgE mediated reactions the only 'true' allergies, despite the fact that most people have delayed reaction food allergies.

Link to comment
Share on other sites
  • 2 weeks later...
Deedeedum Newbie

I read the same thing - that a patch (skin) test only uncovers allergies that you have an immediate reaction to. From what I've read, most people with intolerance to certain foods, chronic fatigue, gluten, yeast, celiacs, etc, won't find their allergies with a patch test. Symptoms can take up to 3 days to show up, and they can be subtle: gas, bloating, mood, fatigue, low energy, skin problems and so on. And that's not counting long-term organ and nerve damage.

I would seriously consider getting a blood test done, since this is the only way to see what foods you can tolerate well. And the point isn't only to find what is debilitating, but to find what foods are stopping you from living life to the fullest, or on a full tank of gas.

Cheers

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    2. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    3. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

    4. - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

    5. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...