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Got My Endoscopy Results And Thyroid Results


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26 replies to this topic

#16 nuttmegs17

 
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Posted 21 April 2011 - 11:59 AM

Thanks Maile that is super helpful

Just added in another dose of armour this afternoon. Is there anything I should look out for? What should hapeen vs. what shouldn't happen? I was on 30 mg and my doc told me to go ahead and add 30 more mg this afternoon....

I had not noticed much if any difference in the morning on 30 mg, but do notice that I "crash" in the afternoon. Hopefully the extra dose will help?
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#17 cassP

 
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Posted 21 April 2011 - 07:43 PM

Thanks Maile that is super helpful

Just added in another dose of armour this afternoon. Is there anything I should look out for? What should hapeen vs. what shouldn't happen? I was on 30 mg and my doc told me to go ahead and add 30 more mg this afternoon....

I had not noticed much if any difference in the morning on 30 mg, but do notice that I "crash" in the afternoon. Hopefully the extra dose will help?

nutmeg- i was always crashing in the afternoon/evening too- taking some kind of dose in the middle of the day really really helps me- tho it's a pain to not eat before and after it-
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#18 cassP

 
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Posted 21 April 2011 - 07:57 PM

no problem what you do is divide the Free T3 by the RT3 to get the ratio. here are some examples on how to calculate from the reverse T3 group information:



hope that helps if it doesn't post your results and we can get them converted for you.

thanku SO MUCH! you're a Godsend... now could you please just come with me to my next endo apt THAT GOT PUSHED BACK TO JULY 11 :angry:

ok, so moving the decimal point 3 spaces, and saying 10x more confused me. nevertheless i tried to copy the model.

my FT3 was at 4.00
my RT3 was 244.

so 4000/244= about 16.5 (is that right?)

so it's not bad but should be above 20, yes?
oy, my doc is really nice & helpful, but i dont think she's into more T3 on top of the Armour :/
because she thought my T3 was just fine on my labs- and that i needed more T4 :/ OYYYYYYYY

thanku again!
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#19 nuttmegs17

 
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Posted 22 April 2011 - 03:00 PM

Good to know, Cass. I think you are right about the timing being critical. The doc said i would need to make that call but as you mentioned timing it around what sometimes is a late lunch made it tough on my second day :) I crashed b4 I had taken it so i'm still kinda sleepy. Next time I'll be more careful about when i grab lunch...
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#20 cassP

 
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Posted 22 April 2011 - 05:30 PM

Good to know, Cass. I think you are right about the timing being critical. The doc said i would need to make that call but as you mentioned timing it around what sometimes is a late lunch made it tough on my second day :) I crashed b4 I had taken it so i'm still kinda sleepy. Next time I'll be more careful about when i grab lunch...

you may already know this- but it's because the T3 only stays in your body for 6 hours.
it's a real pain to plan my lunch around it(esp with work)- but worth it mostly to feel good for the WHOLE day!!!
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#21 nuttmegs17

 
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Posted 26 April 2011 - 01:12 PM

Can I ask you about when you time yours? I take my first does - 30 mg around 6 or 7 in the morning and haven't quite figured out when to take the next dose...I seem to crash around 1:30-3:30....I'm wondering if I need to take it as early as 11:30 am in order to prevent the crash...how soon does the next dose take to hit?

Of course, this could be bc I am on too low of a dose, but still..man, the crashing is annoying!

I would love to feel great all day!
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#22 cassP

 
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Posted 26 April 2011 - 04:44 PM

Can I ask you about when you time yours? I take my first does - 30 mg around 6 or 7 in the morning and haven't quite figured out when to take the next dose...I seem to crash around 1:30-3:30....I'm wondering if I need to take it as early as 11:30 am in order to prevent the crash...how soon does the next dose take to hit?

Of course, this could be bc I am on too low of a dose, but still..man, the crashing is annoying!

I would love to feel great all day!

i take 2 Armour pills (30mg each)/total- 60mg 1 hour before i get up and have coffee and breakfast.

then, depending on my schedule: i either take my afternoon dose (1/2 a pill= 15mg) 3 hours after my breakfast and 1 hour before lunch OR i count 6 hours from my 1st dose- and time my eating & 2nd dose before the 6 hours run out.

i also eat my 3 brazil nuts in the 2nd 1/2 of the day- hoping that the Selenium will help my body convert any T4 in my body to T3. ive been kind of okay... but have had to take a little Xanax in the evening when the Shortness of Breath comes back :( and for the past few months i also get palpitations around midnight-> i dont know if it's a thyroiditis attack that commonly occur at night- or if its my body pissed off that it's out of T3. ???

i hate being at the mercy of the Endo's permission... and i hate having both Hashi & Graves. many times i want to up the dose myself... but then sometimes i feel hyper, and am not sure.

i just had a panel done on Monday- and im so tempted to up my dose another 1/2 a pill- im not sure i can wait a week for the TSH reading & my Dr.'s vote :huh: ???
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#23 nuttmegs17

 
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Posted 26 April 2011 - 07:02 PM

i take 2 Armour pills (30mg each)/total- 60mg 1 hour before i get up and have coffee and breakfast.

then, depending on my schedule: i either take my afternoon dose (1/2 a pill= 15mg) 3 hours after my breakfast and 1 hour before lunch OR i count 6 hours from my 1st dose- and time my eating & 2nd dose before the 6 hours run out.

i also eat my 3 brazil nuts in the 2nd 1/2 of the day- hoping that the Selenium will help my body convert any T4 in my body to T3. ive been kind of okay... but have had to take a little Xanax in the evening when the Shortness of Breath comes back :( and for the past few months i also get palpitations around midnight-> i dont know if it's a thyroiditis attack that commonly occur at night- or if its my body pissed off that it's out of T3. ???

i hate being at the mercy of the Endo's permission... and i hate having both Hashi & Graves. many times i want to up the dose myself... but then sometimes i feel hyper, and am not sure.

i just had a panel done on Monday- and im so tempted to up my dose another 1/2 a pill- im not sure i can wait a week for the TSH reading & my Dr.'s vote :huh: ???



Interesting...I never thought about splitting it into 15 to spread throughout the day. Thats a good thought

I know the feeling of being tempted and cannot blame you...it's really hard knowing what all the symptons mean (am i on too much? is it too little?) it's such a bumpy ride to get it all figured out. Since you have a week, I would wait.... but is it possible for you to call BEFORE the appt? I've done that and they've upped my dose just based on what I told them...

Graves and Hashi's at the same time would be tough, but it sounds like you are doing all the right things. Also keep tabs on your iron and vitamin D as they are crucial...I even take Zinc, B's and C...PLUS omega fatty acids...anything i can do that will help my body at this point, I'm doing! Sounds like you are doing the same thing...
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#24 cassP

 
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Posted 26 April 2011 - 09:12 PM

Interesting...I never thought about splitting it into 15 to spread throughout the day. Thats a good thought

I know the feeling of being tempted and cannot blame you...it's really hard knowing what all the symptons mean (am i on too much? is it too little?) it's such a bumpy ride to get it all figured out. Since you have a week, I would wait.... but is it possible for you to call BEFORE the appt? I've done that and they've upped my dose just based on what I told them...

Graves and Hashi's at the same time would be tough, but it sounds like you are doing all the right things. Also keep tabs on your iron and vitamin D as they are crucial...I even take Zinc, B's and C...PLUS omega fatty acids...anything i can do that will help my body at this point, I'm doing! Sounds like you are doing the same thing...

oh- it wasnt really my idea-
before, i was on 2 Armour pills in the am only. then after my last panel- my doc told me to make it 2 1/2 pills a day. i tried to take the 2 1/2 in the am only- but the crash in the afternoon was too much, thats why i take the 1/2 pill in the afternoon. i split it up unevenly- because i need those 2 in the morning to function- have to.
ya, i found out i was deficient in D, and have been taking 6000iu a day for the last 6 weeks... before then i was taking a muscle relaxer and advil everyday for muscle spasms... the D has definitely improved my muscle pain :)

u know- and it finally dawned on me the other day- why many of us are deficient in D. it's because the immune system uses vitamin D to do it's job. and if our immune systems are working so hard to create all these antibodies- then, it must use up all the vitamin D. it just makes sense to me- because i get enough sun, i eat enough fish & eggs, and i havent had malabsorption in a couple of years- plus my B12 was fine.

im glad we have this forum to help eachother out- our docs can only do so much
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#25 nuttmegs17

 
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Posted 04 May 2011 - 12:58 PM

Me too this forum has been a godsend, I am sure that is why I got diagnosed in the time frame I did

That's a good theory on Vitamin D- hadn't thought of that but it makes sense
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#26 zeeclass6

 
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Posted 02 February 2012 - 02:56 AM

You guys need to read the following book and/or visit the website: Stop The Thyroid Madness. It will explain ALL of this to you very well!!

I have had Hashimoto's for 15 years. NO DOCTOR ever told me to stop eating gluten because I had an auto-immune disease until just recently!!!

I have been on Synthroid for 15 years and have recently found out that it is the root cause of my problems....I need to switch to natural thyroid (like Armour or Naturthroid) which has some T3.

If you are concerned about Reverse T3, the book I mention will explain it to you and tell you what tests you need and how to interpret them. They also have a very active and helpful Facebook group.

I have read a LOT of thyroid books, and I have to tell you that this one is one of the absolute best, even though it was not written by a doctor. After that one, I would recommend the books by Dr. Shames, Dr. Langer, and Dr. Aram, and Mary Shomon.
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#27 zeeclass6

 
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Posted 02 February 2012 - 03:03 AM

I also want to add that Armour was re-formulated in 2009 and some people find that it does not work as well for them. Those people have switched to Naturthroid or a newer generic made by Acella called NP-Thyroid. People on the Stop The Thyroid Madness Facebook group have reported that they do very well in NP-Thyroid -- as well as they used to on the "old" Armour.
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