Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac And Back Problems?
0

15 posts in this topic

Hi everyone. I was wondering, is there a connect between back problems/bone diseases and Celiac?

I had x-rays done on March 17th and got results from my physiotherapist last Monday...and it wasn't very good.

The x-rays showed levoconvex lumbar scoliosis (still considered mild) beginning in my first 5 vertebrae. But that's not all it showed. The exact words were "mild disc height loss at the lumbosacral junction" (in the words of the physiotherapist, the disc that connects the lumbar to the main joints with your hip bones and things like that has begun to deteriorate). :(.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Did you ever have a dexa scan to look at bone loss from malabsorption? I remember that you've had terrible problems finding good medical services.

0

Share this post


Link to post
Share on other sites

Did you ever have a dexa scan to look at bone loss from malabsorption? I remember that you've had terrible problems finding good medical services.

No I didn't. Would it be a rheumatologist that looks at something like that, or can a regular family doctor order it? I plan to see my family doctor but she's so backed up that I won't get in to see her until next month.

0

Share this post


Link to post
Share on other sites

No I didn't. Would it be a rheumatologist that looks at something like that, or can a regular family doctor order it? I plan to see my family doctor but she's so backed up that I won't get in to see her until next month.

my family doctor ordered mine,,, could you call her office and see if she will order it before she sees you ???

0

Share this post


Link to post
Share on other sites

Hi everyone. I was wondering, is there a connect between back problems/bone diseases and Celiac?

I had x-rays done on March 17th and got results from my physiotherapist last Monday...and it wasn't very good.

The x-rays showed levoconvex lumbar scoliosis (still considered mild) beginning in my first 5 vertebrae. But that's not all it showed. The exact words were "mild disc height loss at the lumbosacral junction" (in the words of the physiotherapist, the disc that connects the lumbar to the main joints with your hip bones and things like that has begun to deteriorate). :(.

my CT Scan showed a mild compression deformity of the superior T11 end plate,, my DEXA scan showed osteoporosis in my spine

0

Share this post


Link to post
Share on other sites




Your regular family doctor should be able to order a DEXA scan - mine did (it was fine :D ). It's funny you mention scoliosis because I have been wondering if mine is related to celiac too :o I have read mention here and there of people associating scoliosis and celiac. I developed mine very late in life. I though it was maybe because I had to have my left first rib removed but now I am wondering. I haven't had it checked in a while so will do so this summer.

0

Share this post


Link to post
Share on other sites

Your regular family doctor should be able to order a DEXA scan - mine did (it was fine :D ). It's funny you mention scoliosis because I have been wondering if mine is related to celiac too :o I have read mention here and there of people associating scoliosis and celiac. I developed mine very late in life. I though it was maybe because I had to have my left first rib removed but now I am wondering. I haven't had it checked in a while so will do so this summer.

I will definitely mention it to her, then! May 10th can't come soon enough! :/.

I wonder about the connection, also. If I do get sent to a rheumatologist I'm going to ask them what the odds of a connection between Celiac/scoliosis is! Can't hurt, right? I just refuse to go to the same jerk as last time, that's for sure.

0

Share this post


Link to post
Share on other sites

I had a case of mild scoliosis discovered when I was around 6 years old. It became an extreme case in my teens that required surgery. I also suspect I had undiagnosed Celiac most, if not all of my life = /... Also had Chiari 1 Malformation surgery around the same time.. which is another bone disorder..I am pretty convinced mine was a result of the celiac and the vitamin deficiencies (calcium) that it causes ..

My 23 year old sister who is having stomach issues lately and having issues with shaky hands, migraines and feeling extremely lethargic at work just found out she is developing a slight case of scoliosis also.. but she is one of those people that won't change her diet or get tested for Celiac or gluten intolerance until her health basically hits rock bottom =(. I actually had to pick her up from work tonight because she could not drive home and she almost passed out mid shift.

0

Share this post


Link to post
Share on other sites

BTW, you can use yoga to help relieve that pain of scoliosis and help prevent further degeneration. Surgery isn't the only option. (A well trained yoga therapist would be in order if you wanted to go that route, not just any ol' standard yoga teacher.)

0

Share this post


Link to post
Share on other sites

I'm still wondering, which of the 2 conditions can cause major back spasms to occur at random times? I had one again today where I nearly had to grab onto the table to keep my balance or walk because it hurt that bad and hit out of nowhere. This is the 5th time in the last 2 months i've had these random attacks now...

I had a case of mild scoliosis discovered when I was around 6 years old. It became an extreme case in my teens that required surgery. I also suspect I had undiagnosed Celiac most, if not all of my life = /... Also had Chiari 1 Malformation surgery around the same time.. which is another bone disorder..I am pretty convinced mine was a result of the celiac and the vitamin deficiencies (calcium) that it causes ..

My 23 year old sister who is having stomach issues lately and having issues with shaky hands, migraines and feeling extremely lethargic at work just found out she is developing a slight case of scoliosis also.. but she is one of those people that won't change her diet or get tested for Celiac or gluten intolerance until her health basically hits rock bottom =(. I actually had to pick her up from work tonight because she could not drive home and she almost passed out mid shift.

Aww, sad. Wish she would go get checked! and hope she'll be okay. Not sure how much of my story you know, but I went about 7.5 years undiagnosed/untreated. And the list of my health problems is ridiculous. So long I can't fit it in the signature basically! Just a gut feeling I have that the 2 are connected, but I'm no expert of course.

BTW, you can use yoga to help relieve that pain of scoliosis and help prevent further degeneration. Surgery isn't the only option. (A well trained yoga therapist would be in order if you wanted to go that route, not just any ol' standard yoga teacher.)

Thanks, I will definitely keep that in mind if anything!

0

Share this post


Link to post
Share on other sites

Hi everyone. I was wondering, is there a connect between back problems/bone diseases and Celiac?

I had x-rays done on March 17th and got results from my physiotherapist last Monday...and it wasn't very good.

The x-rays showed levoconvex lumbar scoliosis (still considered mild) beginning in my first 5 vertebrae. But that's not all it showed. The exact words were "mild disc height loss at the lumbosacral junction" (in the words of the physiotherapist, the disc that connects the lumbar to the main joints with your hip bones and things like that has begun to deteriorate). :(.

Gluten does all kinds of crazy things to my body. I had terrible back problems to the point that I could not walk.It would happen at the most random times and sometimes I would get stuck in the car or have my boyfriend carry me out of the grocery store. I went to all different types of doctors and nothing seemed to help much until recently I started following a Paleo style diet and cutting out all grains. It kinda stinks because I am already allergic to gluten, soy, dairy, and now now grains at all!!! I was in so much pain all of the time though that this sacrifice was worth it. I would make sure that you aren't getting gluten by something your eating that is causing the spasms to occurs.

One doctor told me that the organs can get so swollen then can put pressure on certain areas and cause spasms, my pain would radiate all the way down my leg.I also had xrays done but they mainly just showed some slight alignment issues so I knew that my pain was being caused from something I was eating. I decided to do a test and ate a piece of regular bread which was a terrible idea because for 3 days I could barely move the pain in my back was so bad.

My chiropractor told me that he thought my hips joints were so weak that they could support my body weight which didn't make sense because I have been a personal trainer for almost 7 years and until about a year ago when I started getting sick I worked out all the time, so I really believe that is was connected to my diet. Because otherwise why would it not hurt all the time?

Even though your xrays show that there is an problem there I would also recommend yoga it has been something that has helped me so much that I even went through a training program to teach it to others. I really hope you start feeling better soon...I feel your pain.

0

Share this post


Link to post
Share on other sites

Hi everyone. I was wondering, is there a connect between back problems/bone diseases and Celiac?

I had x-rays done on March 17th and got results from my physiotherapist last Monday...and it wasn't very good.

The x-rays showed levoconvex lumbar scoliosis (still considered mild) beginning in my first 5 vertebrae. But that's not all it showed. The exact words were "mild disc height loss at the lumbosacral junction" (in the words of the physiotherapist, the disc that connects the lumbar to the main joints with your hip bones and things like that has begun to deteriorate). :(.

Sorry you're suffering from the back pain. As many others have noted Celiac is connected to all sorts of diseases. I, too, have scoliosis and it turned out the pain I attributed to celiac was the scoliosis and the pain radiated. I agree that you need a DEXA Scan to make sure there's no bone loss. Good luck and feel free to PM me if you want to vent about the back pain or anything else.

Loey

0

Share this post


Link to post
Share on other sites

Ugh, I've been having a MAJOR spasm this past week. Bad enough that I had to go to the ER for a shot. She gave me a low dose of Toradol (sp?) so that it wouldn't affect my hypertension too greatly.

Tomorrow is my last day of taking Celebrex twice daily (the rest as needed), and Cyclobenzaprine half-to-one tablet up to 3 times a day as needed.

If it wasn't for either I'd be in bed 99% of the day. I cannot walk more than 2 blocks without having to stop because of the pain :/.

And to add to it I have a job that requires me bending down a lot :(

0

Share this post


Link to post
Share on other sites

I have severe back pain, and you bet it's related. Remember, Celiac (or gluten-intorance) can damage every system in the body (from inflammation or malnutrition...)

See if you can find a heath care worker that will understand and help you through it. I have a very patient physical therapist who has come to understand that since I'm still in a health crisis my body doesn't heal as fast... so everything I do needs to be at a slower pace. I've been in it for a year. A year ago I couldn't sit, and would have days and weeks of spasms. Now I can sit through meals, take 20 minute walks, and bend and stretch some.

Best of luck. I hope you can find some relief. Are there modifications you can make at work so it doesn't get worse?

0

Share this post


Link to post
Share on other sites

Ugh, I've been having a MAJOR spasm this past week. Bad enough that I had to go to the ER for a shot. She gave me a low dose of Toradol (sp?) so that it wouldn't affect my hypertension too greatly.

Tomorrow is my last day of taking Celebrex twice daily (the rest as needed), and Cyclobenzaprine half-to-one tablet up to 3 times a day as needed.

If it wasn't for either I'd be in bed 99% of the day. I cannot walk more than 2 blocks without having to stop because of the pain :/.

And to add to it I have a job that requires me bending down a lot :(

When I sent to my second GI in my new home state he had me lift my left leg while he pushed on the area I had the most severe celiac pain and told me it was my back. Sure enough I have scoliosis. It's not uncommon. I see a chiropractor for it. Sending lots of positive energy to you!!!!!

Loey

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined