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Richmond, Va Area
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Hello all. I am needing help finding a good doctor to see if they can help figure out what is going on with me. My regular dr, and the dr's I've been referred to from them: are all pretty blase about what's going on with me and act like they can't be bothered to figure out what going on.

I have had chronic low vitamin D for about 2 years now, my calcium is now dropping. My most recent lab test showed this, as well as my hemoglobin and hematocrit are elevated. I have Dx'd gluten intolerance and casein intolerance (positive antibodies found in my intestines) but when I was sent to the GI for testing etc, he basically told me that since I didn't have positive blood antibodies for celiac that an endoscopy would be a waste of time to check for intestinal damage causing malabsorption. -_- I'm sure some of you can sympathize!

I have had autoimmune hypothyroidism for 3 years now (Dx'd) but the hypothyroidism has been around since high school, so about 9 years now...some of which I'm sure includes the autoimmune portion pre-Dx.

I'm just so tired of being bounced around and need/want answers and if anyone knows of a dr that is a good listener and genuinely cares about their patients and tries to find answers...I'd love their contact info please...

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I am new to this forum, and you are my first post. I've had many of the same issues all of my life, with medical doctors consistently shrugging their shoulders, prescribing all manners of pills and such, and basically either blowing me off when they can't "cure" me or telling me that it's all in my head. My acupuncturist here in Richmond, Remee Gemo, recommended a holistic M.D. to me, Dr. Susan Solomon. My first visit with her was yesterday, and she nailed a lot of my ills simply by examining my body. Although I've only started this journey with her, I may rarely need another M.D.! A free thinker, she understands gluten-intolerant people and vitamin deficiencies (mine are potassium, magnesium, and calcium) with issues with my adrenal glands - NOT my thyroid as doctors insisted! Contact me - we may have a lot to talk about.

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As another suggestion, my cousin lives in RVA and sees Dr. Kevin Harrison. He is an MD/OD. She loves him. I've read about him; he's supposed to be wonderful.

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
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