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Dandy Blend Coffee Substitute
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I am interested in trying Dandy Blend coffee substitute. However it is made out of barley & rye. They claim it is gluten free. But I'm still nervous about it. Has anyone tried this product or done any research about it? Here is what they claim on the Dandy Blend website:

Dandy Blend is made of the water-soluble extracts of five ingredients--three roots and two grains. The ingredients are roasted separately and them combined in prescribed proportions, placed into a vat, covered with hot water, and allowed to steep for a prescribed period of time. The water, with the soluble portions of all the components, is separated from the grounds and spray dried. The remaining fine brown powder left after the water is driven off is what becomes Dandy Blend. All the gluten and other water-insoluble substances are left behind in the grounds to be composted.

Hence, there is no gluten in Dandy Blend. Goosefoot Acres periodically submits samples of Dandy Blend to Elisa Technologies Laboratory in Florida, one of the most respected gluten testing labs in the United States for analysis, and so far, every test has come back gluten-free.

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I am interested in trying Dandy Blend coffee substitute. However it is made out of barley & rye. They claim it is gluten free. But I'm still nervous about it. Has anyone tried this product or done any research about it? Here is what they claim on the Dandy Blend website:

Dandy Blend is made of the water-soluble extracts of five ingredients--three roots and two grains. The ingredients are roasted separately and them combined in prescribed proportions, placed into a vat, covered with hot water, and allowed to steep for a prescribed period of time. The water, with the soluble portions of all the components, is separated from the grounds and spray dried. The remaining fine brown powder left after the water is driven off is what becomes Dandy Blend. All the gluten and other water-insoluble substances are left behind in the grounds to be composted.

Hence, there is no gluten in Dandy Blend. Goosefoot Acres periodically submits samples of Dandy Blend to Elisa Technologies Laboratory in Florida, one of the most respected gluten testing labs in the United States for analysis, and so far, every test has come back gluten-free.

Whoa! I would be extremely suspicious of this if I were you. It is basic science that you can't test whether something is gluten-free. Most ELISA tests I've heard of are accurate to a specific gluten content. IE, less than 20 or 10 or 5 parts per million. There is no test that confirms something is "gluten-free". That is impossible to test for. Anyway, regardless of that, the risks due to cross contamination, etc. just seem WAY too high. That's just my opinion though. Maybe somebody here has had good luck with it?

-Ryan

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Wouldn't touch the stuff.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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