Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Im New To This Whole Gluten-Free Thing. Any Advice?
0

10 posts in this topic

im 13 and i recently found out that i have celiac disease 2 weeks ago. so i have tried my best to not eat it but i do by acciedent a few times. yesterday i had one bite of gluten and i think im getting a lot more sensitive to it since i haven't had it at all, for a week since i ate the gluten. is this possible? and i get joint pain when i have gluten, but is it possible for my joints to start hurting only an hour after accidentally eating gluten? thats what happened to me yesterday and my joints still hurt today.

:(

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome SusieQ. The same thing happens to me within an hour or 2 after I accidentally consume gluten(achy joints, grumpy mood, brain fog, stomach issues)-Sometimes the side effects can last a few days from my personal experience but they do eventually go away and I get back to normal again. I am glad to see someone learning about gluten intolerance at such a young age. I have had symptoms of gluten intolerance/celiac disease since I was your age-I only wish that I would have known back then about this disease. Consider yourself one of the lucky ones who does not have to live with it for 30 or 40 years before we got diagnosed. Good luck and watch out for those accidental glutenings.

0

Share this post


Link to post
Share on other sites

My son is 10 and also gets joint pain right after he accidentally gets even a tiny amount of gluten. Joint problems were the symptom that let us finally figure out what was wrong.

It takes some time to really understand all the foods that could have gluten in them. It also takes some time to learn how to make sure you don't get gluten on accident from things you touch or that touch other foods with gluten.

At home, if other people are still eating gluten, you can make sure you are safe by making sure any kinds of dips or spreads either come from a squeeze bottle or that you have your own. (People could dip a contaminated knife in and cause you trouble). Also, cooking utensils and pans shouldn't be shared between foods with gluten and foods without.

At school or other places, you can make sure to wash your hands a lot with soap and water (not just sanitizer). Before eating, make sure your food didn't touch anything with gluten. Make sure you don't set your food down on tables or dishes that have had gluten on them.

My son hasn't been glutened in months, since we've really learned how to avoid it. It sounds like you are on the right track! Good luck getting healthy and staying healthy!

0

Share this post


Link to post
Share on other sites

Welcome SusieQ. The same thing happens to me within an hour or 2 after I accidentally consume gluten(achy joints, grumpy mood, brain fog, stomach issues)-Sometimes the side effects can last a few days from my personal experience but they do eventually go away and I get back to normal again. I am glad to see someone learning about gluten intolerance at such a young age. I have had symptoms of gluten intolerance/celiac disease since I was your age-I only wish that I would have known back then about this disease. Consider yourself one of the lucky ones who does not have to live with it for 30 or 40 years before we got diagnosed. Good luck and watch out for those accidental glutenings.

wow. 30-40 years?? the symptoms began 2 years ago for me. i guess i am pretty lucky, but never really realized it. do you know if someone is born with it? or can they develop it? because id be surprised if i were born with it.

0

Share this post


Link to post
Share on other sites

My son is 10 and also gets joint pain right after he accidentally gets even a tiny amount of gluten. Joint problems were the symptom that let us finally figure out what was wrong.

It takes some time to really understand all the foods that could have gluten in them. It also takes some time to learn how to make sure you don't get gluten on accident from things you touch or that touch other foods with gluten.

At home, if other people are still eating gluten, you can make sure you are safe by making sure any kinds of dips or spreads either come from a squeeze bottle or that you have your own. (People could dip a contaminated knife in and cause you trouble). Also, cooking utensils and pans shouldn't be shared between foods with gluten and foods without.

At school or other places, you can make sure to wash your hands a lot with soap and water (not just sanitizer). Before eating, make sure your food didn't touch anything with gluten. Make sure you don't set your food down on tables or dishes that have had gluten on them.

My son hasn't been glutened in months, since we've really learned how to avoid it. It sounds like you are on the right track! Good luck getting healthy and staying healthy!

thanks for the info! it really helped. and do i NEED to be that careful about it? not trying to be rude, im just asking. because im not sure if im that sensitive to it. i haven't had anything that has gluten touch my gluten-free food. how do i know if im that sensitive?

0

Share this post


Link to post
Share on other sites




You do need to be that careful about it. The reason is that celiac disease is different than an allergy. With an allergy you can tell right away if you are having a reaction. If you are "not that sensitive" you just don't get a reaction. If your reaction is not very severe, it's not doing damage to your body. Your body is attacking the thing you are allergic to, not you.

Forgive me if you know this already, but celiac disease is called an autoimmune disorder. Your immune system is what attacks invaders and "auto" means self. So with celiac disease, gluten tricks your body into attacking itself!

With celiac disease, even a tiny bit of gluten can make your body react and start attacking itself inside. Even if you don't notice the reaction, damage can be happening. Some people notice small amounts of gluten, others don't. But all celiac people have autoimmune reactions to gluten.

Really avoiding all gluten is tough, but you can do it!

0

Share this post


Link to post
Share on other sites

You do need to be that careful about it. The reason is that celiac disease is different than an allergy. With an allergy you can tell right away if you are having a reaction. If you are "not that sensitive" you just don't get a reaction. If your reaction is not very severe, it's not doing damage to your body. Your body is attacking the thing you are allergic to, not you.

Forgive me if you know this already, but celiac disease is called an autoimmune disorder. Your immune system is what attacks invaders and "auto" means self. So with celiac disease, gluten tricks your body into attacking itself!

With celiac disease, even a tiny bit of gluten can make your body react and start attacking itself inside. Even if you don't notice the reaction, damage can be happening. Some people notice small amounts of gluten, others don't. But all celiac people have autoimmune reactions to gluten.

Really avoiding all gluten is tough, but you can do it!

thanks for your support! do you know if any pizza places sell gluten free pizza?

0

Share this post


Link to post
Share on other sites

Z-Pizza has gluten-free pizza. I am sure there are other chains that have it but I don't remember them at the moment.

You can also buy pre-made frozen gluten-free pizza crusts by Kinickinick to make your own pizza. Many gluten-free breads are kept in the freezer section because they usually don't have any preservatives and would go bad too fast on an unrefrigerated store shelf.

Many stores mark their gluten-free food items with a special tag, often it's a green tag with gluten free written on it. Some stores keep all their gluten-free products in one section but others spread them all through the store.

If you do a Google search on the store name and gluten free you can usually find some info on what they carry.

0

Share this post


Link to post
Share on other sites

Unos has gluten-free pizza. My daughter is 15 and we just discovered her celiac. You can do it!!!

0

Share this post


Link to post
Share on other sites

Hi SusieQ,

I am 46 yrs old and I have had these symptoms since I was 7 or 8 years old. Didn't find out about the gluten until I was 44. That's like 35 years I was sick all the time. I haven't tried any gluten free pizza so I can't help you there. But you are a very lucky young lady to have found this so early. You won't spend years of feeling sick and helpless like a lot of us.

Good luck,

Txplowgirl

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,637
    • Total Posts
      921,542
  • Topics

  • Posts

    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,641
    • Most Online
      3,093

    Newest Member
    not diagnosed celiac
    Joined