Posted 11 March 2004 - 09:13 PM
Mom and dad seem to think that little amounts of things (flour in pudding, crackers in meatloaf) are fine. I cannot seem to convince them otherwise. My mom even said she lets stuff like this go in one ear and out the other. I've told her about this webpage and she seems only mildy interested in looking at it.
The other night at supper, dad was re-heating a steak from the night before when they ate out. He kindly offered me some and when I asked what it ws cooked in, he got defensive and rolled his eyes at me. He doesn't seem to think that it matters, and didn't believe me when I said that many places cook their steaks in butter (which usually has milk).
They seem more inclined to believe the dairy allergy (though mom's convinced that it was caused by the Paxil CR and that in a few months I'll be just fine again), since they've been there for those attacks (and usually in the ER with me afterwards before we knew what was wrong).
Any idea how to change their attitudes? I know it sucks that I have some limits now, but it's a good thing for me, and it explains a lot of the stomach troubles I've had over the years.
Posted 12 March 2004 - 08:15 AM
how old are you? if you are a teen you should look at the teens message board i am 13 and if you need any help ask my e-mail is in my signature
Posted 12 March 2004 - 08:41 AM
I agree with flagbabyds, I think going to a dietitian is a good idea or have the doctor who diagnosed you with this speak to your parents about it.
Also try printing out some information on Celiac and giving it to them. They need to understand the seriousness of this disease and the problems you may have if you do not stick to a strict gluten-free diet!
I applaud you for taking control of your health and wanting your parents to become more knowledgeable, hang in there it will get easier.
Posted 12 March 2004 - 10:12 AM
Thank you fo the suggestions! I refuse to eat things that are bad for me, no matter how many times mom and dad roll their eyes or get upset.
Stacie: my sister spells her name the same way, lol . We thought she was the only one!
Posted 12 March 2004 - 10:48 AM
You may have to sit with her while she reads it, but if it works that's all that matters. I don't blame you for not wanting to eat anything that will hurt you and that is an AWESOME attitude to have.
Don't take it personal when your mom and dad roll their eyes at you, they just doesn't understand. You just keep pressing on and looking out for yourself and they will come around soon!!!
Yeah I don't see many people who spell the name that way either, we must just be unique!!!!
Have a great day
Posted 12 March 2004 - 11:06 AM
Posted 12 March 2004 - 01:29 PM
I forget who asked how old I was, but I forgot to answer you . I am 25, and due to financial problems had to move back home to mom and dads for a while. Am hoping to move out in the summer, esp. so I can keep a gluten free home!
I am hoping they will come around to this. One thing I've noticed in my parents over the years is that unless it's really serious (diabetes, or something like it), or it happens to them *or* they were there and heard the doctor say it, it's almost like it's not real to them. I know that as a child I was a hypochondriac, but no more!!!
My diagnosis as I understand it is: allergic to all dairy prodcuts (which they are taking seriously, as I was allergic as a child and they've seen those reactions), and then intolerant of gluten and wheat. I assume that means Celiac, esp. since I was referred to this shite by the allergy doc . I don't know how/if I should be tested for celiac disease, though.
Posted 12 March 2004 - 02:22 PM
I am 23 and have also moved back in with mom and dad since I got sick. Lucky for me, the people who are really close to me, mom, dad, boyfriend and sister saw exactly how bad it got (including *carrying* me to the ER), so they are all behind me.
Family is great, but still it can be hard to lose your independence. I am not sure why yours would be so resistant, except for maybe the "ostrich effect." Maybe they think if they deny it, it won't be true. to many people, this diet seems like a fate worse than death, and they don't want their little girl to suffer, and make sacrifices.
I hope they come around soon, and are supportive and helpful to you. And until they are, we are here.
Posted 12 March 2004 - 03:17 PM
Posted 13 March 2004 - 06:57 PM
Oh, I didn't realize you're an adult! Thought you were a teen, but your situation and other's sounds a lot like mine...I lived alone in NYC for 10 years, went to college there, totally independant, then Celiac struck! Back home I was with my Mom! I wasn't able to live alone any longer due to the effects of the illness. My mother does most of the cooking for the household and it took a while to make her understand that she must question EVERYTHING I ate, including every spice, watching every bread crumb, the whole bit. She still doesn't get how serious cross-contamination is, and I still deal with unclean counters and unclean refridgerator a lot that I try to wipe down from time to time.
You were also asking if your gluten intolerance makes you an official Celiac. My understanding is, a person is not really a Celiac unless they are blood and biopsy tested for the disease, however, I'm sure there are plenty of celiac disease patients out there who have it but are misdiagnosed. I guess what you are is called "gluten intolerant" which is basically the same thing.
Posted 15 March 2004 - 07:15 AM
Posted 15 March 2004 - 04:13 PM
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