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Scalloped Folds In Duodenum?

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Posted 19 April 2011 - 02:00 PM

Following up on my post yesterday....

Had endo today because of elevated ttg last month.
The nurse said I have scalloped folds in my duodenum and that it usually means celiac but will need to see what the biopsy shows?

Anyone with high ttg and scalloped folds but not celiac disease?? What is the significance of "scalloped folds"?

I was pretty groggy so i dont remember much of what they told me. I do recall the nurse telling me there is gluten free beer though which is alittle odd....lol...i dont even drink.
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1996- (mis)Diagnosed with IBS. Depression/Anxiety disorder
2003 - Chronic anemia of unknown origin
2007 - Miscarriage for unknown reasons, (?celiac related)
Feb 2011 - positive ttg
April 2011 - endoscopy positive with visable damage, (scalloping/decrease folds)
- Biopsy marsh 3, gastritis, (other things I cant understand lol)
April 20th 2011 - Gluten free

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Posted 20 April 2011 - 02:35 AM

With a high positive blood test and the scalloping you are definately in the right place. The scalloping is typical of celiac. You can now go gluten free, you don't need to wait on the biopsies. You do need the diet regardless of the biopsy result.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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