4 replies to this topic

[CruiseWriter]

Not sure if I really am Celiac or not (unhelpful GI says no) but I want to sleep all the freaking time. Can barely work or stand on my feet, bloated like a stuffed pig and weigh 240 pounds,have mouth ulcers,depression and acid reflux that was so bad, I was misdiagnosed with asthma and put on steroids that I never needed. I sleep 10 hours a night and wish I could sleep around the clock....I hate being awake. Oh yeah, I've been gluten free a week and a half and cheated once because I came face-to-face with a Wawa pretzel that I coudn't pass up.

[eatmeat4good]

Yes, your symptoms are all the miserable symptoms of Gluten Intolerance, which is just as serious as Celiac in terms of how it destroys your life. Get off the gluten as diligently as you can. It is very important. I ballooned up to 200 lbs and cried or slept all the time. Just miserable and could sleep all evening and all night and barely functioned the next day. You might feel rotten for a while before you start to feel better but you really could have all that weight from inflammation. I don't know why but it happens to some people. I weigh 115 now and am back to a normal size and feeling pretty good for all the hell my body has been through. Give is 6 months and see how you feel. I am only on month 7 of the rest of my life...but it feels great and I no longer sleep all the time. When I do need a nap, it is refreshing, not like the gluten fatigue you are describing which is very real. Wishing you fast healing.

[Goof]

Hang in there Cruise! I had many of the same symptoms you have, same answer from the GI, and the gluten-free diet has helped GREATLY! Energy level through the roof, acid reflux has gone down quite a bit...the overall improvement blew my mind! Give it another week or two, especially since you were just glutened, and hopefully you will start to feel better! I'm usually a little bit off for a few days, sometimes a week or more after I've been glutened. If you're not feeling better in a few weeks on the gluten-free diet, you may want to get your thyroid checked. That's a simple blood test, and may explain the tiredness. But I think you may be like me - intolerant, but no positive diagnosis for celiac.

P.S. - I know what you mean about Wawa pretzels! I used to love those. Now, I just stick to their coffee.

[txplowgirl]

I weighed 200 or more since I was 14. No diet ever helped until I went on a whole foods diet 2 years ago. I have since lost close to 50 lbs. I can't eat any of the gluten free foods because I react to them..
I eat plain meats, fish, chicken, brown rice, sweet potatos, carrots, corn, asparagus, lettuce, peas, peanut butter, nuts, tostito chips, grapes, apples, etc.
It's gonna take awhile for you to heal.
I went from sleeping 3 to 4 hors a night and falling asleep when ever I got still to sleeping 7 to 8 hrs a night and not needing to sleep during the day. My fatigue has eased up a lot but not perfect.
Hang in there and try to be patient. After all it took several years to get this way, so it's gonna take awhile to heal.
I had all of your symptoms plus a whole lot more. They have, I would say resolved about 70%. I've had this since I was 7, so I figure I have another 3 to 4 years to go before I heal 100%.
I wish you well, good luck.
Txplowgirl