Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Want To Sleep 24-7
0

5 posts in this topic

Not sure if I really am Celiac or not (unhelpful GI says no) but I want to sleep all the freaking time. Can barely work or stand on my feet, bloated like a stuffed pig and weigh 240 pounds,have mouth ulcers,depression and acid reflux that was so bad, I was misdiagnosed with asthma and put on steroids that I never needed. I sleep 10 hours a night and wish I could sleep around the clock....I hate being awake. Oh yeah, I've been gluten free a week and a half and cheated once because I came face-to-face with a Wawa pretzel that I coudn't pass up.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, your symptoms are all the miserable symptoms of Gluten Intolerance, which is just as serious as Celiac in terms of how it destroys your life. Get off the gluten as diligently as you can. It is very important. I ballooned up to 200 lbs and cried or slept all the time. Just miserable and could sleep all evening and all night and barely functioned the next day. You might feel rotten for a while before you start to feel better but you really could have all that weight from inflammation. I don't know why but it happens to some people. I weigh 115 now and am back to a normal size and feeling pretty good for all the hell my body has been through. Give is 6 months and see how you feel. I am only on month 7 of the rest of my life...but it feels great and I no longer sleep all the time. When I do need a nap, it is refreshing, not like the gluten fatigue you are describing which is very real. Wishing you fast healing.

0

Share this post


Link to post
Share on other sites

Hang in there Cruise! I had many of the same symptoms you have, same answer from the GI, and the gluten-free diet has helped GREATLY! Energy level through the roof, acid reflux has gone down quite a bit...the overall improvement blew my mind! Give it another week or two, especially since you were just glutened, and hopefully you will start to feel better! I'm usually a little bit off for a few days, sometimes a week or more after I've been glutened. If you're not feeling better in a few weeks on the gluten-free diet, you may want to get your thyroid checked. That's a simple blood test, and may explain the tiredness. But I think you may be like me - intolerant, but no positive diagnosis for celiac.

P.S. - I know what you mean about Wawa pretzels! I used to love those. Now, I just stick to their coffee.

0

Share this post


Link to post
Share on other sites

I weighed 200 or more since I was 14. No diet ever helped until I went on a whole foods diet 2 years ago. I have since lost close to 50 lbs. I can't eat any of the gluten free foods because I react to them..

I eat plain meats, fish, chicken, brown rice, sweet potatos, carrots, corn, asparagus, lettuce, peas, peanut butter, nuts, tostito chips, grapes, apples, etc.

It's gonna take awhile for you to heal.

I went from sleeping 3 to 4 hors a night and falling asleep when ever I got still to sleeping 7 to 8 hrs a night and not needing to sleep during the day. My fatigue has eased up a lot but not perfect.

Hang in there and try to be patient. After all it took several years to get this way, so it's gonna take awhile to heal.

I had all of your symptoms plus a whole lot more. They have, I would say resolved about 70%. I've had this since I was 7, so I figure I have another 3 to 4 years to go before I heal 100%.

I wish you well, good luck.

Txplowgirl

0

Share this post


Link to post
Share on other sites

I weighed 200 or more since I was 14. No diet ever helped until I went on a whole foods diet 2 years ago. I have since lost close to 50 lbs. I can't eat any of the gluten free foods because I react to them..

I eat plain meats, fish, chicken, brown rice, sweet potatos, carrots, corn, asparagus, lettuce, peas, peanut butter, nuts, tostito chips, grapes, apples, etc.

It's gonna take awhile for you to heal.

I went from sleeping 3 to 4 hors a night and falling asleep when ever I got still to sleeping 7 to 8 hrs a night and not needing to sleep during the day. My fatigue has eased up a lot but not perfect.

Hang in there and try to be patient. After all it took several years to get this way, so it's gonna take awhile to heal.

I had all of your symptoms plus a whole lot more. They have, I would say resolved about 70%. I've had this since I was 7, so I figure I have another 3 to 4 years to go before I heal 100%.

I wish you well, good luck.

Txplowgirl

I have had same problems and never realised why I was tired all day and slept in the afternoon or even evening after coming back from work. My kids would also joke on me that either I work or sleep. I have very unusual presentation of Celiac, I had tiredness and deranged liver functions with Diarrhea which was not that profound. Once I was off gluten after diagnosis, I realised I didnt to sleep and was never tired during the day.

Recently again had tiredness and got the tests done, my Anti-TTG level was high, probably some exposure. So please be patient, it is part of the disease, it shall improve once you leave Gluten products.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,152
    • Total Posts
      919,607
  • Topics

  • Posts

    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,189
    • Most Online
      1,763

    Newest Member
    Raany
    Joined