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#1 Victoria6102

 
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Posted 19 April 2011 - 06:13 PM

Hey all,

Well I've been on the gluten free diet for about 7 months (it feels like it's been 7 years haha ;) ) I was diagnosed with Celiac in September, 2010.

In the beginning, I obviously had no idea which gluten free foods tasted good and which ones didn't. I do a lot of activities with my youth group at church, so I am constantly bringing meals and snacks with me and eat them in front of my friends. So, in the beginning I would bring some pretty nasty stuff because it's all I could find. My friends were curious and wanted to try my "strange and abnormal food". I let them and they ended up wasting my cupcake and, may I say, being quite rude by wiping what was left of it all over the pavement right in front of me. The next time I had some crackers and I got up to get a napkin....when I came back my friend had reached her hand in the box (while eating pizza) to try one of my crackers. When I said that I couldn't eat them now because of that, all my friends decided to laugh at me and make a big deal out of it. I didn't get what their problem was...

So after that, noone really wants to try any of my food (not that I want them to). But they make it a point to say something about my food, like "Oh, what do you have today, another meal that looks and tastes like rotten dog food?" Or, "How can you eat something so disgusting like that." Why do they need to make such unnecessary rude remarks to me?! Going gluten free is hard enough as it is, and I don't need my friends acting like this on top of it all.

I also get the annoying questions like "What are you going to do when you are dating, tell him 'oh we have to go somewhere gluten free'" And they say "gluten free" like I am some sort of exaggerator. That's another thing......they don't believe me. Especially about cross contamination. I try to explain that I am doing this because it is for my health..sometimes I even use scary things like "If I eat that my body will destroy itself." hahaha...I have to have a little fun with them sometimes! ;) But most of the time I feel like either A.Freaking out!! B. Wringing their necks. or C. Praying that they all get celiac disease. lol

So how do you deal with those things:
1. Your friends not believing you or saying you are exaggerating.

2. Your friends making awful comments about what you're eating and about how careful you have to be.

Any advice would be greatly appreciated!!

Thanks :)
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#2 psawyer

 
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Posted 19 April 2011 - 06:51 PM

The people who make fun of your dietary needs and do not respect them are not what I would call friends. My friends respect me and my needs, even if they do not fully understand them. That is what it means to be a friend. Your mileage may vary.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
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#3 Jestgar

 
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Posted 19 April 2011 - 06:55 PM

I agree. These are not nice people. Tell them the best part about gluten-free food is that it lets you know which people are unkind jerks. :)
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#4 eatmeat4good

 
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Posted 19 April 2011 - 07:44 PM

Congratulations for hanging in there for 7 months. Me too. Exactly 7 months. I'm sorry they are being so insensitive and rude. I agree with both comments above. It is very superficial for them to ridicule you particularly when none of this is your choice. You are not exaggerating to say your body will destroy itself...I use that line myself! It does destroy you slowly but surely. All of your feelings are normal for someone who has put up with what you have. I'm wishing better friends for you.
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#5 hnybny91

 
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Posted 20 April 2011 - 08:29 AM

I just don't get why people are like this about those of us that can not eat gluten. You would never be so rude to someone with a peanut allergy. I know celiacs is not an allergy but just because we do not experience or troat closing up does not mean it is not a real health concern.

If I were you the next time they started belittling your dietary concerns I would firmly tell them that this way of eating is SAVING YOUR LIFE and they they needed to shut up about it. But, I can be abrasive about things like that...LOL
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#6 kareng

 
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Posted 20 April 2011 - 09:03 AM

Wow! This is a church group? They don't act very kind.

I think I would try to find other friends. I'm assuming these are probably teenagers but they are acting like mean 5 year olds. Next time, when its time to pull out your food, sit next to the youth pastor, priest whoever is the adult leader and let them see the nasty behavior. 100 years ago, if someone had acted like that in my church youth group, they would have been " counseled".
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#7 Karla01

 
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Posted 20 April 2011 - 02:11 PM

Your friends don't sound very nice, sounds like you might need some new ones. My friends respect that I have Celiac and I was diagnosed in August 2010. They actually look for gluten free food for me. I started a new job and even my new fellow coworkers are more understanding and I have only know tham for 4 months. Maybe you could print up some literature for them to read and try to educate them, if they truly are your friends they will want to learn about Celiac disease.
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#8 Victoria6102

 
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Posted 21 April 2011 - 12:11 PM

Thank you all for your help and suggestions!

Sometimes I feel like it is my fault, but what can I do about it? There is no cure for Celiac. One of my "friends" said "Oh, well you're just so weird. Not because YOU are weird, but because the Celiac makes you weird." That sure confuses me.

Got a question...do you all think that drinking out of someone else's water bottle after they've eaten a sandwich then drank out of it, could make you sick?
I did that a month ago. I was actually on a trip with my church group. Don't get me wrong, I love my church and my youth group. Most of them are fine with it, but there are several who won't give it a rest. Constantly, it's got to be about me and how weird my disease is. :P So anyway, we were traveling in a car 18 hours from Canada (great situation to get glutened, huh?!)And my bag of gluten free snacks was on the floor along with someone else's bag of snacks. When I thought I was grabbng my water bottle it was actually someone else's. Didn't realize that til after I had drank out of it. :P I calmly freaked out (if that makes any sense haha) and said that I had not been glutened yet so wasn't sure how long til I would get the side effects of it, but I might know within 3 hours. Well 3 hours passed and my stomach started to hurt but I didn't say anything because they already thought I was exaggerating. Before I knew I had Celiac, I would get random mini-seizures...haven't had any since I went gluten free but that night, at the hotel I woke up with one, so bad I could barely even move. They thought I was making myself do that also. For the enxt couple days traveling home, I had all the great wonderful exciting joyful (;)) side effects from getting glutened. Somehow, they thought it was all in my mind. I'm convinced it wasn't. So basically the whole way home I got comments such as "Stop faking for attention" or "Get over yourself". The last day travelling I was curled up in a ball crying because it hurt so bad, the whole ride. When we got to a rest stop, one of the girls "felt faint" (now who wants attention?!) and had to hold someone's arm. But when I asked to hold their arm to walk inside, I got a few rude comments and looks and they barely helped me at all. I lost great respect for many people that trip. I would not make any of this up! I also wouldn't eat like I do if I didn't have to....who would?!

And please do not lose any respect for churches or Christians because of this. Every church has the few people who will be rude to those who are "different"...guess I'm just having a hard time dealing with it! It's a lot for one girl to handle on her own...haha well enough complaining and long-stories. Thanks for listening :) Your help and advice is still greatly appreciated, especially on how to handle situations like the one above (one last note about that, I did not complain about my 'glutening" except once, to ask if we could find a rest stop.)
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#9 SusieQ

 
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Posted 21 April 2011 - 05:40 PM

Thank you all for your help and suggestions!

Sometimes I feel like it is my fault, but what can I do about it? There is no cure for Celiac. One of my "friends" said "Oh, well you're just so weird. Not because YOU are weird, but because the Celiac makes you weird." That sure confuses me.

Got a question...do you all think that drinking out of someone else's water bottle after they've eaten a sandwich then drank out of it, could make you sick?
I did that a month ago. I was actually on a trip with my church group. Don't get me wrong, I love my church and my youth group. Most of them are fine with it, but there are several who won't give it a rest. Constantly, it's got to be about me and how weird my disease is. :P So anyway, we were traveling in a car 18 hours from Canada (great situation to get glutened, huh?!)And my bag of gluten free snacks was on the floor along with someone else's bag of snacks. When I thought I was grabbng my water bottle it was actually someone else's. Didn't realize that til after I had drank out of it. :P I calmly freaked out (if that makes any sense haha) and said that I had not been glutened yet so wasn't sure how long til I would get the side effects of it, but I might know within 3 hours. Well 3 hours passed and my stomach started to hurt but I didn't say anything because they already thought I was exaggerating. Before I knew I had Celiac, I would get random mini-seizures...haven't had any since I went gluten free but that night, at the hotel I woke up with one, so bad I could barely even move. They thought I was making myself do that also. For the enxt couple days traveling home, I had all the great wonderful exciting joyful (;)) side effects from getting glutened. Somehow, they thought it was all in my mind. I'm convinced it wasn't. So basically the whole way home I got comments such as "Stop faking for attention" or "Get over yourself". The last day travelling I was curled up in a ball crying because it hurt so bad, the whole ride. When we got to a rest stop, one of the girls "felt faint" (now who wants attention?!) and had to hold someone's arm. But when I asked to hold their arm to walk inside, I got a few rude comments and looks and they barely helped me at all. I lost great respect for many people that trip. I would not make any of this up! I also wouldn't eat like I do if I didn't have to....who would?!

And please do not lose any respect for churches or Christians because of this. Every church has the few people who will be rude to those who are "different"...guess I'm just having a hard time dealing with it! It's a lot for one girl to handle on her own...haha well enough complaining and long-stories. Thanks for listening :) Your help and advice is still greatly appreciated, especially on how to handle situations like the one above (one last note about that, I did not complain about my 'glutening" except once, to ask if we could find a rest stop.)

wow. people are so rude. but trust me, i know how you feel when u said that they thought it was in ur mind and wasn't real. that how my family is to me.. my sister told me that nothing would happen to me if i have ONE bite of rice but i didn't want to eat it. she told me to not be rude (because i was at someone's house at the time) and to just eat it so it wouldn't be a hassle for them. so i took only ONE SMALL bite and i regret ever listening to her. after an hour my joints were hurting (thats the main symptom that i get) and i told my sister and she said that thats not possible for it to hurt that fast cus it hasn't digested yet..but i knew that i was right and didn't want to fight and just pretended to agree.. and she said i probably ate something the day before by accident.. and my mom didn't believe in the whole gluten thing ruining my body on the inside. shes just starting to actually believe that gluten ruins my body...kind of...and my siblings say that (when i eat gluten by accident and my joints begin to hurt) its all in my head. they don't believe it cus they cant SEE it! and i hate that they don't believe me most of the time!! so i feel ur pain. btw if the people who were rude to you are ur "friends" then i think u need to meet some new ones.. like ME! haha jk. anyway, how old are you? im 13
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#10 Victoria6102

 
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Posted 21 April 2011 - 05:55 PM

Wow I am so sorry that your family treats you like that! My family understands...so I am blessed for that!

Maybe I should clarify something...these people aren't really my friends...more like my peers. People who are here that I see a lot that I have to get along with somehow. So thank you everyone for your advice about getting new friends. I used the term "friends" incorrectly...I really only have 3 friends and they all understand and buy me gluten free stuff. They're great! Getting Celiac has shown me who really is a true friend and who isn't!

Joint pain...I didn't get joint pain. That must be awful! I basically got overall unbearable pain (especially stomach), headache, lightheadedness, my mini-seizure and felt like I wanted to cry. It was so weird. :P Maybe I'm a wimp but the thing that scares me the most about Celiac is that I'm going to get glutened sometime in my life again. Atleast once. It's nearly impossible not to. I am so dreading the results of it. :P Am I the only one?!

13, huh?! I'd prefer not to put my actual age on here, but I will say that I am a teenage girl who is older than you. :) I do need some more friends!!!
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#11 kareng

 
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Posted 21 April 2011 - 06:36 PM

Where are the adult chaperones during this meaness and illness? Haven't your parents explained it to them? I chaperone groups of teens and I want and need to know what illnesses and special issues they have. I keep an eye on them to make sure they are OK, taking meds, eating, whatever they need.
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
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“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#12 Sadasar

 
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Posted 23 April 2011 - 10:42 AM

I agree. These are not nice people. Tell them the best part about gluten-free food is that it lets you know which people are unkind jerks. :)

I second this one. And I firmly believe what goes around comes around so don't worry either they will grow up or you will move on.
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#13 jolie.fleur.peu

 
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Posted 24 April 2011 - 01:52 AM

I know how you feel. People either always think I'm exaggerating or they "feel sorry" for me. I don't want their pity or attention. I just want them to be understanding and tolerant. When I was nine I was at a girls party ( she was my best friend at the time)and she gave me a piece of candy with the ingredients in asian. When I said "not thanks, I can't" she said " Oh, you just want attention, you just want everything to be about you. You're being so rude, you should just eat it."... in front of her mother who said NOTHING. When I was thirteen another 'friend' grabbed a yogurt I was eating and chucked it to the ground screaming " You're lactose intolerant, if you eat that you'll have some sort of fit!" Uhm no, actually, I'm not lactose intolerant and you just chucked my lunch on the ground...people like that p*ss me off :/
Anyway just tell them to f*ck off :) They probably don't see how frustrating it is so if you just let loose on them next time they take the p*ss of you or your food. They'll get the message
:)
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#14 123bree

 
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Posted 01 May 2011 - 02:53 PM

I know how you feel. People either always think I'm exaggerating or they "feel sorry" for me. I don't want their pity or attention. I just want them to be understanding and tolerant. When I was nine I was at a girls party ( she was my best friend at the time)and she gave me a piece of candy with the ingredients in asian. When I said "not thanks, I can't" she said " Oh, you just want attention, you just want everything to be about you. You're being so rude, you should just eat it."... in front of her mother who said NOTHING. When I was thirteen another 'friend' grabbed a yogurt I was eating and chucked it to the ground screaming " You're lactose intolerant, if you eat that you'll have some sort of fit!" Uhm no, actually, I'm not lactose intolerant and you just chucked my lunch on the ground...people like that p*ss me off :/
Anyway just tell them to f*ck off :) They probably don't see how frustrating it is so if you just let loose on them next time they take the p*ss of you or your food. They'll get the message
:)


I no what you mean. people always "feel sorry" for me to or think a 'little bit does not heart'. they always comment on the food i eat for lunch like if i eat cheese there always like 'you can't eat cheese' than looking at me like i'm going to drop dead any minute. then i'm like 'yeah i can' and that happends every day. most people that don't have celiac disease just don't get it.
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#15 Jungle

 
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Posted 02 May 2011 - 08:59 AM

I am sorry that people are so rude to you. What do you think about making an appt. with your youth pastor and asking him why he allows people to bully you? The behaviours you are describing are not okay for any reason. He needs to come up with a plan to stop them. He is responsible for creating a safe environment. If you get no where with him go to the senior pastor or other elders. You need some help in getting this under control.

Celiac is not that big a deal. We can't eat some foods (unfortunately the yummy ones) and need to be careful but it really only affects the celiac not anyone else. So it isn't really any of their business.
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