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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trying Gluten Elimination Diet...
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4 posts in this topic

hi there! i have already found this forum very helpful.

i was diagnosed with IBS quite a few years ago and havent had much success coping with this.

i really felt like it was a generalized diagnosis and was told to eat more fiber, take supplements, get more exercise....and still had terrible bouts of stomach issues, among other things.

my doctor had suggested an elimination diet before, i never tried it though.

i have done a few cleanses and felt better when i did. (though emotionally challenged)

all of a sudden last week, a big red flag went off when i was reading a discussion about gluten on a website.

gluten has been the biggest part of my diet. always.

i cut back on white flour years ago, which i grew up on, switching to whole wheat breads/pasta.....i realized i had it for breakfast, lunch, dinner. i even work in an italian restaurant.

i always went to bread when im hungry, or pasta.

loved to eat cookies and cupcakes mid afternoon. english muffin in morning with my egg, sometimes alone.

whole wheat wrap sandwich for lunch etc etc.....

i have skin issues, eczema, sometimes unexplained hives, rashes....i get nosebleeds often. was getting about 3 a day in recent times. all year. have had that checked out. told it was genetic.

i had asthma when i was little and bronchitis every few months until the last year or so.

i am very skinny but have had a bloated belly i cant get rid of.

my bowels are a mess....cramping, bouts of D, feeling like there is a rock in there.

the big belly is something i am very self conscious about. i can lose weight everywhere else.

it seems very bloated. looks like im pregnant.

its very tender too.

i suffer from anxiety and depression as well. disassociation. brain fog. fatigue.

so......i have been gluten free for 5 days now.

i am feeling a difference already!

that 'rock in my gut' feeling is gone.

i havent had a nose bleed in 4 days. last week i had about 3 a day.

the fogginess has lifted a bit.

its been a tough transition but ive been able to find some substitutes.

i really like rice pasta and some snacks ive found.

been eating much healthier. now i gotta motivate to exercise more.

maybe i can lose the belly!

overall, feeling successful so far.

i would get a celiac test at the doc's but my insurance was cancelled.

so i decided on the elimination diet.

but might just stick to it.

wanted to introduce myself here and hope for some feedback.

ive really learned a lot from this site!

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so....a few questions:

is the big belly thing a common problem/symptom?

i read about this when someone was talking about beer bellies and how often they can be caused by an underlining gluten intolerence....

also, any one have any info on nosebleeds associated with gluten issues?

thanks for any info.

sorry my first post was such a ramble and didnt make these topics too clear. :)

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so....a few questions:

is the big belly thing a common problem/symptom?

i read about this when someone was talking about beer bellies and how often they can be caused by an underlining gluten intolerence....

also, any one have any info on nosebleeds associated with gluten issues?

thanks for any info.

sorry my first post was such a ramble and didnt make these topics too clear. :)

Yea a bloated belly is common with celiac. I looked about 6 months preggers for years but within a couple months gluten free and dairy free it was gone. You may also want to eliminate dairy for a bit also as the same area that is damaged by celiac is the area that produces enzymes we need to digest dairy. You also may want to post this question in the prediagnosis or coping section of the board as those get more traffic and you may get more replies.

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Yea a bloated belly is common with celiac. I looked about 6 months preggers for years but within a couple months gluten free and dairy free it was gone. You may also want to eliminate dairy for a bit also as the same area that is damaged by celiac is the area that produces enzymes we need to digest dairy. You also may want to post this question in the prediagnosis or coping section of the board as those get more traffic and you may get more replies.

interesting about the dairy....i noticed i was eating more dairy when i first stopped the gluten.

and noticing it bothers me.

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  • Forum Statistics

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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