Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Trying Gluten Elimination Diet...
0

4 posts in this topic

hi there! i have already found this forum very helpful.

i was diagnosed with IBS quite a few years ago and havent had much success coping with this.

i really felt like it was a generalized diagnosis and was told to eat more fiber, take supplements, get more exercise....and still had terrible bouts of stomach issues, among other things.

my doctor had suggested an elimination diet before, i never tried it though.

i have done a few cleanses and felt better when i did. (though emotionally challenged)

all of a sudden last week, a big red flag went off when i was reading a discussion about gluten on a website.

gluten has been the biggest part of my diet. always.

i cut back on white flour years ago, which i grew up on, switching to whole wheat breads/pasta.....i realized i had it for breakfast, lunch, dinner. i even work in an italian restaurant.

i always went to bread when im hungry, or pasta.

loved to eat cookies and cupcakes mid afternoon. english muffin in morning with my egg, sometimes alone.

whole wheat wrap sandwich for lunch etc etc.....

i have skin issues, eczema, sometimes unexplained hives, rashes....i get nosebleeds often. was getting about 3 a day in recent times. all year. have had that checked out. told it was genetic.

i had asthma when i was little and bronchitis every few months until the last year or so.

i am very skinny but have had a bloated belly i cant get rid of.

my bowels are a mess....cramping, bouts of D, feeling like there is a rock in there.

the big belly is something i am very self conscious about. i can lose weight everywhere else.

it seems very bloated. looks like im pregnant.

its very tender too.

i suffer from anxiety and depression as well. disassociation. brain fog. fatigue.

so......i have been gluten free for 5 days now.

i am feeling a difference already!

that 'rock in my gut' feeling is gone.

i havent had a nose bleed in 4 days. last week i had about 3 a day.

the fogginess has lifted a bit.

its been a tough transition but ive been able to find some substitutes.

i really like rice pasta and some snacks ive found.

been eating much healthier. now i gotta motivate to exercise more.

maybe i can lose the belly!

overall, feeling successful so far.

i would get a celiac test at the doc's but my insurance was cancelled.

so i decided on the elimination diet.

but might just stick to it.

wanted to introduce myself here and hope for some feedback.

ive really learned a lot from this site!

0

Share this post


Link to post
Share on other sites


Ads by Google:

so....a few questions:

is the big belly thing a common problem/symptom?

i read about this when someone was talking about beer bellies and how often they can be caused by an underlining gluten intolerence....

also, any one have any info on nosebleeds associated with gluten issues?

thanks for any info.

sorry my first post was such a ramble and didnt make these topics too clear. :)

0

Share this post


Link to post
Share on other sites

so....a few questions:

is the big belly thing a common problem/symptom?

i read about this when someone was talking about beer bellies and how often they can be caused by an underlining gluten intolerence....

also, any one have any info on nosebleeds associated with gluten issues?

thanks for any info.

sorry my first post was such a ramble and didnt make these topics too clear. :)

Yea a bloated belly is common with celiac. I looked about 6 months preggers for years but within a couple months gluten free and dairy free it was gone. You may also want to eliminate dairy for a bit also as the same area that is damaged by celiac is the area that produces enzymes we need to digest dairy. You also may want to post this question in the prediagnosis or coping section of the board as those get more traffic and you may get more replies.

0

Share this post


Link to post
Share on other sites

Yea a bloated belly is common with celiac. I looked about 6 months preggers for years but within a couple months gluten free and dairy free it was gone. You may also want to eliminate dairy for a bit also as the same area that is damaged by celiac is the area that produces enzymes we need to digest dairy. You also may want to post this question in the prediagnosis or coping section of the board as those get more traffic and you may get more replies.

interesting about the dairy....i noticed i was eating more dairy when i first stopped the gluten.

and noticing it bothers me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined