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Gluten Free...just Because


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31 replies to this topic

#1 NorthernElf

 
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Posted 22 April 2011 - 07:12 PM

Ok...I am stupid for this...glutened myself (mildly).

My daughter's best friend...for some reason...has gone gluten free. I just took my daughter over to her place & her friend runs out & gives me a gluten free peanut butter chocolate iced cookie. The icing is on the bottom. I take a bite & thank her...then just hold it. Dang if it doesn't "get" me. At least I didn't eat any more. I'm sure it was made on gluteny pans.

Really...why do folks go gluten-free ? Especially kids ? I don't know the mom real well..she is kind of a different duck but really...why go to the expense of gluten-free & effort ?!!?!! She is not really gluten-free...just "low gluten-free". The girls (my daughter, her, et al) all went out the other day & she had some soup...well, I can't go out & have soup because of gluten. Hmmm... no celiac diagnosis. Guess to me the thing is that she really is having gluten with not effect but insists on gluten-free...ok, it's not a big deal except...WHY?

It's not even for weight loss - I know many folks do it just for that. This girl is thin & very active. Ok...maybe it's gluten sensitivity only ?

Anyway...been reading about gluten-free diets...people reducing it...heck, even my own hubby has found reducing gluten is good for his digestive tract. So...I guess I'm just ranting...because I HAVE to...repeat, HAVE to...eat gluten-free or I might as well give myself the flu.

Guess I just think the trending thing reduces our cred...we aren't doing it for fun or novelty...we gotta or we're miserable & sick.

Aside...went to a cupcake place today that has gluten-free cupcakes as well as 'regular' ones....used to be on a plate separate, now they are under the glass with the gluten ones,,,guess I won't have any anymore !

Rant over....;-)
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#2 GlutenFreeManna

 
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Posted 22 April 2011 - 07:56 PM

I can get on board with you about the cupcake place rant! A new bakery with "gluten-free" baked goods opened up recently in my area. I emailed them to ask how "gluten free" there gluten free items are--i.e. what measures do they take to prevent cc, etc. The reply said that they do use the same sifters, mixers and pans for their gluten free flour as for their regular flour products, they also bake gluten-free and regualr items on the same day and they do not recomend anyone with a "serious gluten allergy" eat their gluten-free products. In other words they know nothing and are just making them for the people being trendy! Grr...I am not a doctor diagnosed celiac but I can't eat at this bakery because they admit they don't have good cc prevention. I give them props for admitting it, but really why do they bother?

I don't know what's up with your friend--maybe she thinks she has a gluten sensitivity but didn't do any research about how to do the diet? Maybe her symptoms are mild and so she's not careful? I have met at least one doctor-diagnosed celiac that doesn't follow a strict gluten-free diet because their reactions are not severe and they aparently don't care about the cancer risk. I'm not dr diagnosed but my reactions are severe and I have to be very strict. So I doubt this is just about diagnosis vs no diagnosis. It's due to a trend or it's ignorance, IMO. I do agree it's highly annoying when you see someone doing it half way and putitng your health in danger though. All you can do it try to eduacte them I guess (and don't eat any more of their "gluten-free" cooking obviously)!
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#3 WinterSong

 
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Posted 22 April 2011 - 08:13 PM

A little bakery rant of my own: I was looking for a dessert place to go to with a friend today. I found a bakery with gluten free items, and luckily I called them before going. When I asked how careful they are with their gluten free products they said, "Oh not at all." The woman told me how often times some wheat flour gets mixed in with their gluten-free products because things in the kitchen aren't separated. And not only do they keep gluten and gluten-free products next to each other but they often touch. How on earth can they call it gluten free?!?!?! People are going to get sick! :angry:

It really makes me worried to go out to eat when I think that other restaurants might not be taking their gluten free dishes seriously....

On another note, I really don't understand the gluten-free diet craze. Why do it if you don't have to? I'm enjoying all of the great foods I've discovered, but yes things would certainly be much easier if I didn't have Celiac. Plus, aren't there vitamins/minerals that people begin to lack once they go gluten-free? Why deprive yourself of those?

<_<

Love to all fellow Celiacs
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Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#4 K8ling

 
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Posted 23 April 2011 - 04:42 AM

Ugggh annoying on all accounts. This is why we can't get no respect (to quote Rodney Dangerfield) :rolleyes:
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Diagnosed with Gluten Allergy April 2010. Family history of Celiac disease and bowel cancers. Already feeling a billion times better since going gluten free.

#5 Monklady123

 
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Posted 23 April 2011 - 05:52 AM

I know one person who is gluten free because "it makes me feel better" she says. Who knows, it might. But... she isn't really gluten "free" -- she's what I call "gluten lite". She doesn't eat pasta or bread. Except when she's out somewhere like Olive Garden when she'll eat the rolls because "I can't resist." Otherwise she never checks labels for wheat flour or barley malt or any of the other things we have to keep our eyes open for. She orders the grilled seasoned chicken and doesn't worry about the seasoning, or what else has been cooked on the grill. She might pick her croutons out of the salad, or maybe not if it's "too much trouble."

Yes, it annoys me because I feel like other people might not take me as seriously if we're out together. I actually don't go out to eat with her much because of this.
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#6 Chiana

 
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Posted 23 April 2011 - 06:00 AM

I know one person who is gluten free because "it makes me feel better" she says. Who knows, it might. But... she isn't really gluten "free" -- she's what I call "gluten lite". She doesn't eat pasta or bread. Except when she's out somewhere like Olive Garden when she'll eat the rolls because "I can't resist." Otherwise she never checks labels for wheat flour or barley malt or any of the other things we have to keep our eyes open for. She orders the grilled seasoned chicken and doesn't worry about the seasoning, or what else has been cooked on the grill. She might pick her croutons out of the salad, or maybe not if it's "too much trouble."

Yes, it annoys me because I feel like other people might not take me as seriously if we're out together. I actually don't go out to eat with her much because of this.


I think your friend is confusing 'gluten-free' or 'gluten-lite' with 'carb-lite'. :/

I'm mortified by the rash of so-called 'gluten-free' restaurant options.
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#7 Cattknap

 
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Posted 23 April 2011 - 08:25 AM

There was a AP article a couple of weeks ago about athletes who are going gluten free because they feel that they play better without gluten. What people do is their own business - why get so upset?
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#8 WinterSong

 
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Posted 23 April 2011 - 08:51 AM

Sure if they believe that it makes them play better, then that is their choice. It's a health move for their career.

What annoys me is when people claim they are completely gluten-free but are only following the diet halfway. With the fad diet, people don't necessarily worry about spices and CC, and it makes us look like we're neurotic in comparison. It makes me sad to think that friends/loved ones may have a hard time understanding our needs because of this.

And like I said in my earlier post, some restaurants aren't taking it seriously. It can be viewed as just a diet fad and a way to make money. :(
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Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#9 srall

 
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Posted 23 April 2011 - 09:11 AM

Playing devil's advocate here: My house is gluten free because my daughter and I CANNOT eat gluten. So I'd call my husband gluten lite and he is definitely benefiting from it. Much less gas and stomach pain and he's lost a lot of weight. Who knows, maybe he needs to be all the way gluten free, but he is really benefiting from eating less. We have so much gluten in our culture I agree that people need to eat less than they are.

eta: So I wrote the above about an hour ago, and I also have to say that I NEVER feel like people are taking me seriously in restaurants. And reading about that A-hole chef in Colorado just freaked me right out. So I almost always eat at home unless we're traveling. I don't know what it's going to take for all of us to be taken more seriously. I was sort of hoping the gluten free fad would bring more awareness.
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#10 Monklady123

 
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Posted 23 April 2011 - 02:29 PM

There was a AP article a couple of weeks ago about athletes who are going gluten free because they feel that they play better without gluten. What people do is their own business - why get so upset?

Well, just speaking for myself and my friend who I mentioned above -- I get upset because she says she's gluten free, and other people believe she is. So then we all go out and she orders the grilled chicken sandwich, which I know for a fact has gluten in the seasoning because I talked to the chef on the phone. So then when it's my turn to order I get a plain salad. "Oh why don't you have such-and-such?" someone will ask. I reply "because it has gluten in the seasoning" or I'm giving the waiter the third degree... and someone might inevitably say "but so-and-so is eating it."

Now, I have pretty much educated my friends. But this "gluten lite" attitude, I feel, is dangerous for waiters and restaurants. People like my friend say "I'd like the grilled chicken sandwich but I can't have gluten so could I just have it on my plate without the bread?" And if the waiter doesn't know better he might think that gluten free = no bread.

That's why I care.
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#11 WinterSong

 
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Posted 23 April 2011 - 04:08 PM

Well, just speaking for myself and my friend who I mentioned above -- I get upset because she says she's gluten free, and other people believe she is. So then we all go out and she orders the grilled chicken sandwich, which I know for a fact has gluten in the seasoning because I talked to the chef on the phone. So then when it's my turn to order I get a plain salad. "Oh why don't you have such-and-such?" someone will ask. I reply "because it has gluten in the seasoning" or I'm giving the waiter the third degree... and someone might inevitably say "but so-and-so is eating it."

Now, I have pretty much educated my friends. But this "gluten lite" attitude, I feel, is dangerous for waiters and restaurants. People like my friend say "I'd like the grilled chicken sandwich but I can't have gluten so could I just have it on my plate without the bread?" And if the waiter doesn't know better he might think that gluten free = no bread.

That's why I care.



Well said.
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Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#12 mushroom

 
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Posted 23 April 2011 - 05:31 PM

Well, just speaking for myself and my friend who I mentioned above -- I get upset because she says she's gluten free, and other people believe she is. So then we all go out and she orders the grilled chicken sandwich, which I know for a fact has gluten in the seasoning because I talked to the chef on the phone. So then when it's my turn to order I get a plain salad. "Oh why don't you have such-and-such?" someone will ask. I reply "because it has gluten in the seasoning" or I'm giving the waiter the third degree... and someone might inevitably say "but so-and-so is eating it."

Now, I have pretty much educated my friends. But this "gluten lite" attitude, I feel, is dangerous for waiters and restaurants. People like my friend say "I'd like the grilled chicken sandwich but I can't have gluten so could I just have it on my plate without the bread?" And if the waiter doesn't know better he might think that gluten free = no bread.

That's why I care.

I agree entirely. I once ate at a place with a gluten free menu, with a totally untrained waitperson. I ordered the Caesar salad (as usual....:( ) and told him to be sure not to put croutons on it. He actually asked me, "if it doesn't have croutons is it gluten free?" I just said, "in this instance, yes, but don't let that be your rule." and advised the manager on the way out that the young lad needed some training :P

People who water down what "gluten free" means do all of us a great disservice because they lessen respect for the condition and make our food less safe.
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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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#13 Monael

 
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Posted 23 April 2011 - 06:06 PM

I am newly on a gluten-free diet. I have not been diagnosed but I have such a huge relief in my symptoms that I really don't care whether I have Celiac disease or if I am gluten intolerant or whatever else it may be. I just know that I feel so much better that I am disappointed that I didn't know this many years ago because I could have stopped suffering a long time ago.

I was grocery shopping yesterday and was amazed at how they are now starting to label things gluten free on the shelves to make it easier to locate them. And I was thinking to myself how much harder it would have been for me if I did know about this years ago, because it is so hard to figure out all the ins and outs.

Until I went into deep research mode, I didn't realize how many items that you wouldn't think had gluten in them had gluten in them. For instance, spices... And malt. Not to mention the cross contamination issue. It just isn't something someone would automatically know.

On the one hand I could see how it would be irritating to have someone who doesn't really need to be gluten free, take it so casually. But in reading this board and other things online, I have discovered that there are people who actually have a confirmed diagnosis of Celiac disease eating gluten because they don't want to give it up.

I think that this could be a good thing in the long run if there can be awareness of all the ways gluten can get into the food. Until I saw a post here, I didn't even think about separating butter and mayo. And if I hadn't seen that, I don't think it would have occurred to me on my own.
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#14 Kim69

 
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Posted 23 April 2011 - 07:22 PM

When I was first dx I told several work colleagues that i had coeliac disease and couldnt eat gluten most of whom demonstrated polite interest or personal knowledge, however one woman commented that going gluten-free "is all the rage now", as if I had just told her that I was starting the Atkins diet. Yeh right, like I would do this if I had a choice!
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May 2010 Diagnosed coeliac via biopsy - on gluten-free diet, now not anaemic
March 2010 Still Anaemic and very fatigued, abdominal pain still (Drs had thought it was related to abdom operation)
May 2009 Anaemic - had abdominal surgery; hysterectomy to remove large fibroid
March 2009 Vestibular neuritus (not sure if related but who knows!)
November 2008 Depression (still on meds - working well)

#15 krystynycole

 
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Posted 24 April 2011 - 03:17 AM

I hear you! It's one of the most annoying things because it devalues our diagnosis. It makes it seem like we are over reacting crazy people who are out of control, but in reality we are no different than someone with a peanut allergy expect wheat is in more things than peanuts are. Granted our throats won't close up, but we still have severe consequences from the food.

I ranted on this once and one of my family members told me, what's the big deal, many doctors feel wheat is toxic to everyone anyways. I wanted to punch, but I was kind and did not...

I also have a coworker who's sister is ceilac. As a teacher we get food, often sweets, donated to us for appreciation in our teacher's lounge. When I long for just a bite of one of the sweets everyone else is eating my coworkers response is "my sister is celiac and she cheats all the time, just eat a piece." Um what?! No thank you...I'd rather not be up all night sick!

I do not understand why some people are just totally and completely insensitive.
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Gluten Free since November 2010 and feeling fantastic!

(Mis)diagnosis with IBS in 2004
MSG and caffeine free since 2001




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